دورية أكاديمية
Outcomes for gastrostomy-fed children and their parents: qualitative findings from the ‘Your Tube’ study
| العنوان: | Outcomes for gastrostomy-fed children and their parents: qualitative findings from the ‘Your Tube’ study |
|---|---|
| المؤلفون: | Maddison, J, Taylor, J, O’Neill, M, Cade, J, Hewitt, C, Horridge, K, McCarter, A, Fraser, LK, Beresford, B |
| بيانات النشر: | Wiley |
| سنة النشر: | 2021 |
| المجموعة: | White Rose Research Online (Universities of Leeds, Sheffield & York) |
| الوصف: | Aim To identify child and parent outcomes relevant to having a gastrostomy, and to specify outcomes believed to be particularly salient to type of diet (formula vs blended food). Method Twenty parents, two children (both 12y), and 41 professionals (dietitians [n=10]; nurses [n=12]; paediatricians [n=12]; speech and language therapists [n=7)]) were recruited. Parents and children were interviewed; professionals participated in focus groups. Children (2–18y) represented included those on formula (n=11), blended-food (n=7), and mixed (n=2) diets. All had been tube-fed for at least 6 months. Neurological, genetic, and metabolic conditions were represented. Results Participants identified a range of children’s outcomes relevant to a gastrostomy, including physical health, gastrointestinal symptoms, sleep, and time spent feeding. The children described experiences of exclusion caused by being tube-fed. Time, sleep, and emotional health were regarded as most salient to understanding parents’ gastrostomy outcomes. Participants believed type of diet would most likely effect gastrointestinal symptoms, time spent feeding, sleep, and physical health. Interpretation Findings indicate a number of refinements to, and allow further specification of, the current ‘initial’ core outcome set for tube-fed children. Findings also have implications for choice of outcomes measures. Further qualitative research with children and young people is needed. |
| نوع الوثيقة: | article in journal/newspaper |
| وصف الملف: | text |
| اللغة: | English |
| العلاقة: | https://eprints.whiterose.ac.uk/177198/6/Develop%20Med%20Child%20Neuro%20-%202021%20-%20Maddison%20-%20Outcomes%20for%20gastrostomy%E2%80%90fed%20children%20and%20their%20parents%20%20qualitative%20findings.pdfTest; Maddison, J, Taylor, J, O’Neill, M et al. (6 more authors) (2021) Outcomes for gastrostomy-fed children and their parents: qualitative findings from the ‘Your Tube’ study. Developmental Medicine & Child Neurology, 63 (9). pp. 1099-1106. ISSN 0012-1622 |
| الإتاحة: | https://eprints.whiterose.ac.uk/177198Test/ https://eprints.whiterose.ac.uk/177198/6/Develop%20Med%20Child%20Neuro%20-%202021%20-%20Maddison%20-%20Outcomes%20for%20gastrostomy%E2%80%90fed%20children%20and%20their%20parents%20%20qualitative%20findings.pdfTest |
| حقوق: | cc_by_4 |
| رقم الانضمام: | edsbas.D54E2F09 |
| قاعدة البيانات: | BASE |
| الوصف غير متاح. |