دورية أكاديمية
Creating a population-based cohort of children born with and without congenital anomalies using birth data matched to hospital discharge databases in 11 European regions: Assessment of linkage success and data quality.
| العنوان: | Creating a population-based cohort of children born with and without congenital anomalies using birth data matched to hospital discharge databases in 11 European regions: Assessment of linkage success and data quality. |
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| المؤلفون: | Loane, M, Given, JE, Tan, J, Barišić, I, Barrachina-Bonet, L, Cavero-Carbonell, C, Coi, A, Densem, J, Garne, E, Gissler, M, Heino, A, Jordan, S, Lutke, R, Neville, AJ, Odak, L, Puccini, A, Santoro, M, Scanlon, I, Urhoj, SK, de Walle, HEK, Wellesley, D, Morris, JK |
| بيانات النشر: | Public Library of Science |
| سنة النشر: | 2023 |
| المجموعة: | St George's University of London: Repository |
| الوصف: | Linking routinely collected healthcare administrative data is a valuable method for conducting research on morbidity outcomes, but linkage quality and accuracy needs to be assessed for bias as the data were not collected for research. The aim of this study was to describe the rates of linking data on children with and without congenital anomalies to regional or national hospital discharge databases and to evaluate the quality of the matched data. Eleven population-based EUROCAT registries participated in a EUROlinkCAT study linking data on children with a congenital anomaly and children without congenital anomalies (reference children) born between 1995 and 2014 to administrative databases including hospital discharge records. Odds ratios (OR), adjusted by region, were estimated to assess the association of maternal and child characteristics on the likelihood of being matched. Data on 102,654 children with congenital anomalies were extracted from 11 EUROCAT registries and 2,199,379 reference children from birth registers in seven regions. Overall, 97% of children with congenital anomalies and 95% of reference children were successfully matched to administrative databases. Information on maternal age, multiple birth status, sex, gestational age and birthweight were >95% complete in the linked datasets for most regions. Compared with children born at term, those born at ≤27 weeks and 28-31 weeks were less likely to be matched (adjusted OR 0.23, 95% CI 0.21-0.25 and adjusted OR 0.75, 95% CI 0.70-0.81 respectively). For children born 32-36 weeks, those with congenital anomalies were less likely to be matched (adjusted OR 0.78, 95% CI 0.71-0.85) while reference children were more likely to be matched (adjusted OR 1.28, 95% CI 1.24-1.32). Children born to teenage mothers and mothers ≥35 years were less likely to be matched compared with mothers aged 20-34 years (adjusted ORs 0.92, 95% CI 0.88-0.96; and 0.87, 95% CI 0.86-0.89 respectively). The accuracy of linkage and the quality of the matched data suggest that ... |
| نوع الوثيقة: | article in journal/newspaper |
| وصف الملف: | application/pdf; application/vnd.openxmlformats-officedocument.wordprocessingml.document |
| اللغة: | English |
| العلاقة: | https://openaccess.sgul.ac.uk/id/eprint/115703/1/journal.pone.0290711.pdfTest; https://openaccess.sgul.ac.uk/id/eprint/115703/10/pone.0290711.s001.docxTest; https://openaccess.sgul.ac.uk/id/eprint/115703/11/pone.0290711.s002.docxTest; https://openaccess.sgul.ac.uk/id/eprint/115703/14/pone.0290711.s003.docxTest; Loane, M; Given, JE; Tan, J; Barišić, I; Barrachina-Bonet, L; Cavero-Carbonell, C; Coi, A; Densem, J; Garne, E; Gissler, M; et al. Loane, M; Given, JE; Tan, J; Barišić, I; Barrachina-Bonet, L; Cavero-Carbonell, C; Coi, A; Densem, J; Garne, E; Gissler, M; Heino, A; Jordan, S; Lutke, R; Neville, AJ; Odak, L; Puccini, A; Santoro, M; Scanlon, I; Urhoj, SK; de Walle, HEK; Wellesley, D; Morris, JK (2023) Creating a population-based cohort of children born with and without congenital anomalies using birth data matched to hospital discharge databases in 11 European regions: Assessment of linkage success and data quality. PLoS One, 18 (8). e0290711. ISSN 1932-6203 https://doi.org/10.1371/journal.pone.0290711Test SGUL Authors: Morris, Joan Katherine |
| DOI: | 10.1371/journal.pone.0290711 |
| الإتاحة: | https://doi.org/10.1371/journal.pone.0290711Test https://openaccess.sgul.ac.uk/id/eprint/115703Test/ https://openaccess.sgul.ac.uk/id/eprint/115703/1/journal.pone.0290711.pdfTest https://openaccess.sgul.ac.uk/id/eprint/115703/10/pone.0290711.s001.docxTest https://openaccess.sgul.ac.uk/id/eprint/115703/11/pone.0290711.s002.docxTest https://openaccess.sgul.ac.uk/id/eprint/115703/14/pone.0290711.s003.docxTest |
| حقوق: | cc_by_4 |
| رقم الانضمام: | edsbas.76BC9E6E |
| قاعدة البيانات: | BASE |
| DOI: | 10.1371/journal.pone.0290711 |
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