دورية أكاديمية
The impact and experience of cardiac cachexia in advanced heart failure patients and their caregivers.
| العنوان: | The impact and experience of cardiac cachexia in advanced heart failure patients and their caregivers. |
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| المؤلفون: | Fitzsimons, D, Carson, M A, Reid, J, Hill, L, Dixon, Lana, Donnelly , Patrick, Slater, Paul, Hill, Alyson J, Piper, Susan E., McDonagh, Theresa, Thompson, G |
| المصدر: | Fitzsimons , D , Carson , M A , Reid , J , Hill , L , Dixon , L , Donnelly , P , Slater , P , Hill , A J , Piper , S E , McDonagh , T & Thompson , G 2022 , ' The impact and experience of cardiac cachexia in advanced heart failure patients and their caregivers. ' , European Journal of Cardiovascular Nursing , vol. 21 , no. Supplement 1 , pp. i8-i9 . https://doi.org/10.1093/eurjcn/zvac060.008Test |
| سنة النشر: | 2022 |
| المجموعة: | Queen's University Belfast: Research Portal |
| مصطلحات موضوعية: | heart failure, cachexia, prevalence, diagnosis |
| الوصف: | Background Cardiac cachexia is a multifactorial wasting syndrome, which is characterised by unintentional weight loss, a reduction in skeletal muscle mass, and reduced quality of life. There is a paucity of qualitative research outlining the impact and experience of cardiac cachexia in advanced heart failure patients and their caregivers. Research in this area may promote a better understanding of the syndrome, enhance current treatment strategies, and highlight priorities for patient care. Purpose To qualitatively investigate the impact and experience of cardiac cachexia in advanced heart failure patients and their caregivers. Methods Semi-structured interviews were performed with advanced heart failure (NYHA functional class III-IV) patients meeting diagnostic criteria for cardiac cachexia (number (n) = 8) and their caregivers (n = 5). Interview questions followed a "laddered style approach", with a focus on determining the experience of cachexia for patients and carers, and its impact on their daily lives. Interviews were digitally recorded and transcribed verbatim. Average interview duration was 43 (15-64) minutes. Data were thematically analysed, using the 6-step approach of Braun & Clarke. Themes were developed and refined by several members of the research team to ensure rigor. Results Four key themes were developed from the data. 1) "Changed relationship with food and eating": patients with cachexia referred to eating as something they now ‘make’ themselves do without enjoyment, often just to placate their caregiver. Caregivers noted this change in habit and were concerned about inadequate nutritional intake due to the patient’s lack of interest in food. 2) "Not me in the mirror": patients struggled with their appearance and had a negative perception of themselves, linked to their weight loss. Caregivers were similarly aware of the physical changes in their loved ones and emotionally impacted. 3) "Lack of understanding regarding cachexia": despite the patient and caregivers’ concerns, they had a ... |
| نوع الوثيقة: | article in journal/newspaper |
| وصف الملف: | application/pdf |
| اللغة: | English |
| العلاقة: | https://pure.qub.ac.uk/en/publications/310c66cc-72c6-4f2c-af87-12b8bb869dadTest |
| DOI: | 10.1093/eurjcn/zvac060.008 |
| الإتاحة: | https://doi.org/10.1093/eurjcn/zvac060.008Test https://pure.qub.ac.uk/en/publications/310c66cc-72c6-4f2c-af87-12b8bb869dadTest https://pureadmin.qub.ac.uk/ws/files/347549997/Abstract_for_EuroHeartCare_2022.pdfTest |
| حقوق: | info:eu-repo/semantics/openAccess |
| رقم الانضمام: | edsbas.2D218723 |
| قاعدة البيانات: | BASE |
| DOI: | 10.1093/eurjcn/zvac060.008 |
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