دورية أكاديمية

Quality of dying after acute stroke

التفاصيل البيبلوغرافية
العنوان: Quality of dying after acute stroke
المؤلفون: Reinink, Hendrik, Geurts, Marjolein, Melis-Riemens, Constance, Hollander, Annemarie, Kappelle, Jaap, van der Worp, Bart
المصدر: Reinink , H , Geurts , M , Melis-Riemens , C , Hollander , A , Kappelle , J & van der Worp , B 2021 , ' Quality of dying after acute stroke ' , European Stroke Journal , vol. 6 , no. 3 , pp. 268-275 . https://doi.org/10.1177/23969873211041843Test
سنة النشر: 2021
الوصف: Introduction: There is a lack of evidence concerning the palliative needs of patients with acute stroke during end-of-life care. We interviewed relatives of patients who deceased in our stroke unit about the quality of dying and compared their experiences with those of nurses. Patients and Methods: Relatives of 59 patients were interviewed approximately 6 weeks after the patient had died. The primary outcome was a score assessing the overall quality of dying on a scale ranging from 0 to 10, with 0 representing the worst quality and 10 the best quality. We investigated the frequency and appreciation of specific aspects of the dying phase with an adapted version of the Quality of Death and Dying Questionnaire. The nurse who was most frequently involved in the end-of-life care of the patient completed a similar questionnaire. Results: Family members were generally satisfied with the quality of dying (median overall score 8; interquartile range, 6–9) as well as with the care provided by nurses (9; 8–10) and doctors (8; 7–9). Breathing difficulties were frequently reported (by 46% of the relatives), but pain was not. Unsatisfactory experiences were related to feeding (69% unsatisfactory), inability to say goodbye to loved ones (51%), appearing not to have control (47%), and not retaining a sense of dignity (41%). Two-thirds of the relatives reported that palliative medication adequately resolved discomfort. There was a good correlation between the experiences of relatives and nurses. Discussion and Conclusion: Most relatives were satisfied with the overall quality of dying. Negative experiences concerned feeding problems, not being able to say goodbye to loved ones, sense of self control and dignity, and breathing difficulties. Experiences of nurses may be a reasonable and practical option when evaluating the quality of dying in acute stroke patients.
نوع الوثيقة: article in journal/newspaper
وصف الملف: application/pdf
اللغة: English
العلاقة: https://pure.eur.nl/en/publications/a8dcb822-008a-470b-8f77-3c29d8fd337aTest
DOI: 10.1177/23969873211041843
الإتاحة: https://doi.org/10.1177/23969873211041843Test
https://pure.eur.nl/en/publications/a8dcb822-008a-470b-8f77-3c29d8fd337aTest
https://pure.eur.nl/ws/files/44128197/Quality_of_dying_after_acute_stroke.pdfTest
http://www.scopus.com/inward/record.url?scp=85114339543&partnerID=8YFLogxKTest
حقوق: info:eu-repo/semantics/openAccess
رقم الانضمام: edsbas.290FD1FD
قاعدة البيانات: BASE