مؤتمر
The impact & experience of cardiac cachexia in patients with advanced heart failure & caregivers
| العنوان: | The impact & experience of cardiac cachexia in patients with advanced heart failure & caregivers |
|---|---|
| المؤلفون: | Fitzsimons, Donna, Carson, Matthew A., Dixon, Lana, Donnelly , Patrick, Hill, Alyson J., McDonagh, Theresa, Piper, Susan E., Reid, Joanne, Slater, Paul, Thompson, Gareth, Hill, Loreena |
| المصدر: | Fitzsimons , D , Carson , M A , Dixon , L , Donnelly , P , Hill , A J , McDonagh , T , Piper , S E , Reid , J , Slater , P , Thompson , G & Hill , L 2022 , ' The impact & experience of cardiac cachexia in patients with advanced heart failure & caregivers ' , ACNAP - EuroHeartCare Congress 2022 , 22/05/2022 . |
| سنة النشر: | 2022 |
| المجموعة: | Queen's University Belfast: Research Portal |
| الوصف: | Background: Cardiac cachexia is a multifactorial wasting syndrome, which is characterised by unintentional weight loss, a reduction in skeletal muscle mass, and reduced quality of life. There is a paucity of qualitative research outlining the impact and experience of cardiac cachexia in advanced heart failure patients and their caregivers. Research in this area may promote a better understanding of the syndrome, enhance current treatment strategies, and highlight priorities for patient care. Purpose: To qualitatively investigate the impact and experience of cardiac cachexia in advanced heart failure patients and their caregivers. Methods: Semi-structured interviews were performed with advanced heart failure (NYHA functional class III-IV) patients meeting diagnostic criteria for cardiac cachexia (number (n) = 8) and their caregivers (n = 5). Interview questions followed a “laddered style approach”, with a focus on determining the experience of cachexia for patients and carers, and its impact on their daily lives. Interviews were digitally recorded and transcribed verbatim. Average interview duration was 43 (15-64) minutes. Data were thematically analysed, using the 6-step approach of Braun & Clarke. Themes were developed and refined by several members of the research team to ensure rigor. Results: Four key themes were developed from the data. 1) “Changed relationship with food and eating”: patients with cachexia referred to eating as something they now ‘make’ themselves do without enjoyment, often just to placate their caregiver. Caregivers noted this change in habit and were concerned about inadequate nutritional intake due to the patient’s lack of interest in food. 2) “Not me in the mirror”: patients struggled with their appearance and had a negative perception of themselves, linked to their weight loss. Caregivers were similarly aware of the physical changes in their loved ones and emotionally impacted. 3) “Lack of understanding regarding cachexia”: despite the patient and caregivers’ concerns, they had a ... |
| نوع الوثيقة: | conference object |
| وصف الملف: | application/pdf |
| اللغة: | English |
| الإتاحة: | https://pure.qub.ac.uk/en/publications/35dfaf16-bd1c-4887-a8d3-aa877163a6aaTest https://pureadmin.qub.ac.uk/ws/files/345794411/ePoster_EuroHeartCare2022_Donna_Fitzsimons_05May22.pdfTest |
| حقوق: | info:eu-repo/semantics/openAccess |
| رقم الانضمام: | edsbas.1AE71B17 |
| قاعدة البيانات: | BASE |
| الوصف غير متاح. |