دورية أكاديمية
Support practices by an interdisciplinary team in a palliative-care unit for relatives of patients in agonal phase ; BMC Palliat Care
| العنوان: | Support practices by an interdisciplinary team in a palliative-care unit for relatives of patients in agonal phase ; BMC Palliat Care |
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| المؤلفون: | MELIN, M., AMIEVA, Helene, FRASCA, M., OUVRARD-BROUILLOU, Camille, BERGER, V., HOARAU, H., ROUMIGUIERE, C., PATERNOSTRE, B., STADELMAIER, N., RAOUX, Nadine, BERGUA, Valerie, BURUCOA, B. |
| سنة النشر: | 2020 |
| مصطلحات موضوعية: | Sciences du Vivant [q-bio]/Santé publique et épidémiologie |
| الوصف: | BACKGROUND: In the absence of extant recommendations, the aim of this study was to formalise support practices used by an interdisciplinary team in a palliative-care unit (PCU) for the relatives of patients in the agonal phase preceding death. The secondary objective was to understand the expectations of relatives during this phase in terms of the support provided by professionals and volunteers. METHODS: Thirty-two people took part in this study; all were interviewed through focus groups (FGs). Each FG comprised one category of individuals working in the PCU: nurses, care- assistants, doctors, psychologists, other professionals, palliative-care volunteers, and relatives. Groups were surveyed using an interview guide, and the interviews were recorded and transcribed to enable identification and characterization of all practices. Care practices were classified into four categories: current consensual practices (i.e. performed by all team members), occasional consensual practices, non-consensual practices (performed by one or a few participants), and practices to be developed. RESULTS: In total, 215 practices were mentioned by professionals and palliative-care volunteers: 150 current consensual practices, 48 occasional consensual practices, 1 non-consensual practice, 16 practices yet to be developed, and 29 practices for relatives. Many practices were mentioned by different categories of participants; thus, after cross-checking, the number of practices decreased from 215 to 52. A list of practices deemed desirable by all was drawn up and then validated by the entire interprofessional team. These practices were organised around four themes: providing care and ensuring comfort; communicating, informing, and explaining; interacting; and mobilising interdisciplinary skills. CONCLUSIONS: These results underline the importance of the quality of care provided to patients, the attention given to the relatives themselves, and they highlight the importance of the helping relationship. Following this study, which established ... |
| نوع الوثيقة: | article in journal/newspaper |
| اللغة: | English |
| تدمد: | 1472-684x |
| العلاقة: | https://oskar-bordeaux.fr/handle/20.500.12278/26673Test |
| DOI: | 10.1186/s12904-020-00680-4 |
| الإتاحة: | https://doi.org/20.500.12278/26673Test https://doi.org/10.1186/s12904-020-00680-4Test https://oskar-bordeaux.fr/handle/20.500.12278/26673Test https://hdl.handle.net/20.500.12278/26673Test |
| حقوق: | Attribution 3.0 United States ; open ; http://creativecommons.org/licenses/by/3.0/usTest/ |
| رقم الانضمام: | edsbas.18F64916 |
| قاعدة البيانات: | BASE |
Full Text Finder | تدمد: | 1472684x |
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| DOI: | 10.1186/s12904-020-00680-4 |