Factors associated with a lower chance of having gaps in care in adult congenital heart disease
| العنوان: | Factors associated with a lower chance of having gaps in care in adult congenital heart disease |
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| المؤلفون: | Lisa R. Yanek, Ari M. Cedars, Jong Mi Ko |
| المصدر: | Cardiology in the Young. 31:1576-1581 |
| بيانات النشر: | Cambridge University Press (CUP), 2021. |
| سنة النشر: | 2021 |
| مصطلحات موضوعية: | Adult, Heart Defects, Congenital, Transition to Adult Care, medicine.medical_specialty, Heart disease, media_common.quotation_subject, Adult care, Bivariate analysis, 030204 cardiovascular system & hematology, Logistic regression, 03 medical and health sciences, 0302 clinical medicine, medicine, Humans, 030212 general & internal medicine, Child, Paediatric care, media_common, business.industry, General Medicine, Odds ratio, medicine.disease, Feeling, Family medicine, Pediatrics, Perinatology and Child Health, Cohort, Cardiology and Cardiovascular Medicine, business |
| الوصف: | Background:To promote good health in patients with congenital heart disease (CHD), prevention of gaps in care is essential, as adverse prognosis is associated with care gaps. A well-organised, formal transition programme may help prevent loss to follow up after leaving paediatric care. To inform the development of a transition programme, we investigated factors associated with care gaps in adults with CHD.Methods:Between 15 October 2018 and 15 November 2019 data on patient characteristics and patient experiences with transition-related education, difficulties, and gaps in care were collected and assessed in 87 adults with CHD. Two groups (with gaps in care versus without gaps) were compared to identify informative differences using chi-squared, Fisher’s exact tests, or Wilcoxon rank-sum tests. To assess the relationship between care gaps and identified variables, factors with significant difference (p < 0.05) in bivariate analyses were employed as covariates in multivariable logistic regression analysis.Results:About half of the study cohort reported having gaps in care. In a multivariate model, patients having thorough discussion about the importance of receiving adult care in paediatric care were 70% less likely to experience gaps (odds ratio 0.303, 95% CI 0.14, 0.66). Forty-seven percent of patient-perceived barriers to transitioning originated from negative feelings associated with transfer.Conclusion:Gaps in care are highly prevalent in adults with CHD. For a transition programme to be most effective, curriculum development may need to consider the differential impact of various factors and target areas to mitigate the psychological stress associated with transfer. |
| تدمد: | 1467-1107 1047-9511 |
| الوصول الحر: | https://explore.openaire.eu/search/publication?articleId=doi_dedup___::d3d69dab09f15b321c1306d61063b6a2Test https://doi.org/10.1017/s1047951121000524Test |
| حقوق: | OPEN |
| رقم الانضمام: | edsair.doi.dedup.....d3d69dab09f15b321c1306d61063b6a2 |
| قاعدة البيانات: | OpenAIRE |
| تدمد: | 14671107 10479511 |
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