Telecommunication and rehabilitation for patients with multiple sclerosis: access and willingness to use. A cross-sectional study

التفاصيل البيبلوغرافية
العنوان: Telecommunication and rehabilitation for patients with multiple sclerosis: access and willingness to use. A cross-sectional study
المؤلفون: Thierry Lejeune, Vincent Van Pesch, Maxime Valet, Gaëtan Stoquart, Alice De Haan, Caroline Remy, Souraya El Sankari
المساهمون: UCL - SSS/IREC/NMSK - Neuro-musculo-skeletal Lab, UCL - SSS/IONS/CEMO - Pôle Cellulaire et moléculaire, UCL - SSS/IONS/NEUR - Clinical Neuroscience, UCL - (SLuc) Service de médecine physique et de réadaptation motrice, UCL - (SLuc) Service de neurologie
المصدر: European journal of physical and rehabilitation medicine, Vol. 56, no. 4, p. 403-411 (2020)
سنة النشر: 2020
مصطلحات موضوعية: Adult, Male, 030506 rehabilitation, Multiple Sclerosis, Cross-sectional study, medicine.medical_treatment, Population, Psychological intervention, MEDLINE, Physical Therapy, Sports Therapy and Rehabilitation, Logistic regression, Health Services Accessibility, 03 medical and health sciences, 0302 clinical medicine, Telerehabilitation, Medicine, Humans, education, education.field_of_study, Rehabilitation, Descriptive statistics, business.industry, Middle Aged, Patient Acceptance of Health Care, Cross-Sectional Studies, Female, 0305 other medical science, business, Telecommunications, 030217 neurology & neurosurgery
الوصف: Background Telerehabilitation is a promising approach for patients with multiple sclerosis (MS), but uncertainties regarding patients' access and preferences remain. Aim To investigate the access to telecommunication technologies and rehabilitation services of patients with MS, and their willingness to use these technologies for rehabilitation. Design Cross-sectional survey. Setting Outpatient neurological facility. Population Patients with MS. Methods Patients with MS attending consultations in the Neurology department were asked to fill in a paper questionnaire. This anonymous questionnaire was designed to gain information about needs and access to rehabilitation and telecommunication technologies, as well as interests and perspectives of telerehabilitation among these patients. Descriptive statistics, chi- squared tests and logistic regressions were used to describe the sample and survey answers. Results Two hundred patients completed the questionnaire. Mean age was 44.41(±12.52) years. Seventy-one percent were women, and 49% were unemployed. Ninety-one percent of the patients regularly used internet and 73% used apps. Most patients were interested in using telecommunication technologies to receive a program of physical exercises (62%), for information and personalized advice about physical activity and MS (69%), and to communicate with caregivers (75%). Patients with EDSS>4 were less interested than patients with EDSS≤4 in communicating with the caregivers via apps (33%vs52%,Δ19%[CI-36%;- 2%],p=0.04) but expressed greater interest in receiving information and personal advice about physical activity and MS via the internet (70%vs51%,Δ19%[CI+2%;+36%],p=0.03). One third of the patients was not interested in receiving telerehabilitation interventions (32%), notably patients with EDSS>4 and non-workers. Conclusions Patients with MS are mainly interested in using telecommunication technologies for rehabilitation services, and most of these patients have access to the required technology. Being mildly disabled and having a professional activity are associated with a greater interest in telerehabilitation. In contrary, patients with moderate-to-severe disability and non-workers have reportedly less access and ease in using the required technologies. Clinical rehabilitation impact Telerehabilitation is feasible and wished by patients with MS, specifically in patients with low EDSS scores and workers. Given the strong need for rehabilitation in more disabled patients, the barriers to its access, the lower access and ease of use of telecommunication technologies, a special effort is needed to facilitate their use in these patients.
تدمد: 1973-9095
الوصول الحر: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::c4b364bfdf0e9cb8959501a36383c363Test
https://pubmed.ncbi.nlm.nih.gov/32293811Test
حقوق: OPEN
رقم الانضمام: edsair.doi.dedup.....c4b364bfdf0e9cb8959501a36383c363
قاعدة البيانات: OpenAIRE