The expectations and realities of nutrigenomic testing in australia: A qualitative study

التفاصيل البيبلوغرافية
العنوان: The expectations and realities of nutrigenomic testing in australia: A qualitative study
المؤلفون: Belinda J McClaren, Chriselle Hickerton, Sylvia A Metcalfe, Ainsley J Newson, Clara Gaff, Jaqueline Savard, Melissa Adamski, Erin Tutty, Anna Middleton, Amy Nisselle, Rigan Tytherleigh, Bronwyn Terrill, Elaine Stackpoole, Marie Brigitte Cusack
المساهمون: Hickerton, Chriselle [0000-0001-6909-0970], Apollo - University of Cambridge Repository
المصدر: Health Expectations : An International Journal of Public Participation in Health Care and Health Policy
Health Expectations, Vol 24, Iss 2, Pp 670-686 (2021)
بيانات النشر: Wiley, 2021.
سنة النشر: 2021
مصطلحات موضوعية: Medicine (General), nutrigenetics personal genomic testing, Nonprobability sampling, 03 medical and health sciences, 0302 clinical medicine, R5-920, Nutrigenomics, utritional genomics, Health care, direct‐to‐consumer, Humans, 030212 general & internal medicine, direct-to-consumer, Qualitative Research, Medical education, Motivation, business.industry, 030503 health policy & services, Public Health, Environmental and Occupational Health, Australia, Focus Groups, Focus group, Test (assessment), Original Research Paper, Snowball sampling, Private practice, complementary/alternative medicine, MTHFR, Integrative medicine, Public aspects of medicine, RA1-1270, 0305 other medical science, business, Psychology, Original Research Papers, Qualitative research
الوصف: Background Consumer genomic testing for nutrition and wellness, (nutritional genomics), is becoming increasingly popular. Concurrently, health‐care practitioners (HPs) working in private practice (including doctors interested in integrative medicine, private genetic counsellors, pharmacists, dieticians, naturopaths and nutritionists) are involved as test facilitators or interpreters. Objective To explore Australian consumers’ and HPs’ experiences with nutrigenomic testing. Method Semi‐structured in‐depth interviews were conducted using predominantly purposive sampling. The two data sets were analysed individually, then combined, using a constant comparative, thematic approach. Results Overall, 45 interviews were conducted with consumers (n = 18) and HPs (n = 27). Many of the consumer interviewees experienced chronic ill‐health. Nutrigenomic testing was perceived as empowering and a source of hope for answers. While most made changes to their diet/supplements post‐test, self‐reported health improvements were small. A positive relationship with their HP appeared to minimize disappointment. HPs’ adoption and views of nutrigenomic testing varied. Those enthusiastic about testing saw the possibilities it could offer. However, many felt nutrigenomic testing was not the only ‘tool’ to utilize when offering health care. Discussion This research highlights the important role HPs play in consumers’ experiences of nutrigenomics. The varied practice suggests relevant HPs require upskilling in this area to at least support their patients/clients, even if nutrigenomic testing is not part of their practice. Patient or public contribution Advisory group included patient/public group representatives who informed study design; focus group participants gave feedback on the survey from which consumer interviewees were sourced. This informed the HP data set design. Interviewees from HP data set assisted with snowball sampling.
وصف الملف: application/pdf; text/xml
الوصول الحر: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::a76d964d66a36b90353e76fbd1db0323Test
https://www.repository.cam.ac.uk/handle/1810/321642Test
حقوق: OPEN
رقم الانضمام: edsair.doi.dedup.....a76d964d66a36b90353e76fbd1db0323
قاعدة البيانات: OpenAIRE