Pediatric to Adult Transition Literature: Scoping Review and Rheumatology Research Prioritization Survey Results
| العنوان: | Pediatric to Adult Transition Literature: Scoping Review and Rheumatology Research Prioritization Survey Results |
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| المؤلفون: | Nicole Bitencourt, Erica Lawson, John Bridges, Kristine Carandang, Ela Chintagunta, Peter Chiraseveenuprapund, Kimberly DeQuattro, Y. Ingrid Goh, Tzielan C. Lee, Katharine F. Moore, Rosemary G. Peterson, Jordan E. Roberts, Tova Ronis, Rebecca E. Sadun, Emily A. Smitherman, Elizabeth Stringer, Patience H. White, Joyce C. Chang |
| المصدر: | The Journal of Rheumatology. :jrheum.220262 |
| بيانات النشر: | The Journal of Rheumatology, 2022. |
| سنة النشر: | 2022 |
| مصطلحات موضوعية: | Young Adult, Transition to Adult Care, Caregivers, Rheumatology, Rheumatic Diseases, Surveys and Questionnaires, Immunology, Humans, Immunology and Allergy, Child |
| الوصف: | The transition from pediatric to adult care is the focus of growing research. It is important to identify how to direct future research efforts for maximum effect. Our goals were to perform a scoping review of the transition literature, highlight gaps in transition research, and offer stakeholder guidance on the importance and feasibility of research questions designed to fill identified gaps. The transition literature on rheumatic diseases and other common pediatric-onset chronic diseases was grouped and summarized. Based on the findings, a survey was developed and disseminated to pediatric rheumatologists and young adults with rheumatic diseases as well as their caregivers. The transitional care needs of patients, healthcare teams, and caregivers is well described in the literature. While various transition readiness scales exist, no longitudinal posttransfer study confirms their predictive validity. Multiple outcome measures are used alone or in combination to define a successful transition or intervention. Multimodal interventions are most effective at improving transition-related outcomes. How broader health policy affects transition is poorly studied. Research questions that ranked highest for importance and feasibility included those related to identifying and tracking persons with psychosocial vulnerabilities or other risk factors for poor outcomes. Interventions surrounding improving self-efficacy and health literacy were also ranked highly. In contrast to healthcare teams (n = 107), young adults/caregivers (n = 23) prioritized research surrounding improved work, school, or social function. The relevant transition literature is summarized and future research questions prioritized, including the creation of processes to identify and support young adults vulnerable to poor outcomes. |
| تدمد: | 1499-2752 0315-162X |
| الوصول الحر: | https://explore.openaire.eu/search/publication?articleId=doi_dedup___::8b9d27a229db313c219dbb8740cc8c13Test https://doi.org/10.3899/jrheum.220262Test |
| رقم الانضمام: | edsair.doi.dedup.....8b9d27a229db313c219dbb8740cc8c13 |
| قاعدة البيانات: | OpenAIRE |
| تدمد: | 14992752 0315162X |
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