25 More than meets the eye: Parental perspectives on the health of their extremely preterm children when they reach 18 months, 5 and 7 years
| العنوان: | 25 More than meets the eye: Parental perspectives on the health of their extremely preterm children when they reach 18 months, 5 and 7 years |
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| المؤلفون: | Magdalena Jaworski, Rebecca Pearce, Thuy Mai Luu, Claude Julie Bourque, Annie Janvier, Aurelie Fortin, Laurie-Anne Duquette, Emilie Thivierge, Thuy-An Mai-Vo, Anne Synnes |
| المصدر: | Paediatr Child Health |
| بيانات النشر: | Oxford University Press (OUP), 2020. |
| سنة النشر: | 2020 |
| مصطلحات موضوعية: | Pediatrics, medicine.medical_specialty, business.industry, Extremely preterm, Pediatrics, Perinatology and Child Health, Medicine, Abstract / Résumés, business |
| الوصف: | Background Extremely preterm birth is associated with death and a higher risk of adverse long-term outcomes. Neurodevelopmental impairment (NDI) has become the focus of neonatal follow-up and outcome research, with classifications chosen by clinicians and researchers. However, parents were never consulted about this classification. Objectives To examine parental perspectives about the health of their ex-preterm infants. Design/Methods Over a one-year period, at Sainte-Justine University Hospital’s Neonatal Follow-Up Clinic, all parents of children born Results 249 parental responses were obtained (98% participation rate). On average, parents rated their child’s health to be 8/10 (range 3-10/10, median 8/10). Main themes invoked about areas for improvement were developmental outcomes (65%):“if he could talk and hold his head up himself”; respiratory heath and overall medical fragility (35%): “improve the health of her lungs”; and behavior/emotional issues (21%): “his anxiety”. Twenty-three percent did not wish to improve anything: “I am very happy with his health and development. I hope he continues on the same path.” When examining developmental outcomes more closely, the recurrent sub-themes for improvement were: language/communication (22%), motor/movement (17%) and cognitive/learning (16%): “improving her attention in school”. Conclusion When they come to neonatal follow-up, parents generally perceive the health of their extremely preterm children in a positive way. While some parents have no wishes for improvement in their children, many are concerned by their children’s NDI. On the other hand, several parent-important outcomes, such as lung health and overall medical fragility, are insufficiently investigated during follow-up at the present time. |
| تدمد: | 1918-1485 1205-7088 |
| الوصول الحر: | https://explore.openaire.eu/search/publication?articleId=doi_dedup___::720ff99c5cad4dbb5e555b0d6469a73dTest https://doi.org/10.1093/pch/pxaa068.024Test |
| حقوق: | OPEN |
| رقم الانضمام: | edsair.doi.dedup.....720ff99c5cad4dbb5e555b0d6469a73d |
| قاعدة البيانات: | OpenAIRE |
| تدمد: | 19181485 12057088 |
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