Validation of the Italian version of carers’ quality-of-life questionnaire for parkinsonism (PQoL Carer) in progressive supranuclear palsy
| العنوان: | Validation of the Italian version of carers’ quality-of-life questionnaire for parkinsonism (PQoL Carer) in progressive supranuclear palsy |
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| المؤلفون: | Sofia Cuoco, Francesca Di Biasio, Alessio Di Fonzo, Alessandra Nicoletti, Antonino Bruno, Brigida Minafra, Roberta Zangaglia, Alessandro Stefani, Marika Falla, Cristina Rascunà, Roberto Erro, Leonardo Lopiano, Alessandro Padovani, Alessandro Tessitore, Anna Vera Milner, Fabio Bruschi, Maria Cristina Rizzetti, Mario Zappia, Daniela Frosini, Arianna Cappiello, Roberto Ceravolo, Sebastiano Galantucci, Rosa De Micco, Gabriella Santangelo, Enrica Olivola, Roberta Marchese, Tommaso Schirinzi, Andrea Pilotto, Giulia Franco, Nicola Modugno, Margherita Fabbri, Maria Chiara Malaguti, Giulia Lazzeri, Paolo Barone, Anna De Rosa, Maria Antonietta Volontè, Francesco Paolo Bonifacio, Marianna Amboni, Luca Magistrelli, Nicola Biagio Mercuri, Marina Picillo, Francesca Elifani, Barbara Borroni |
| المساهمون: | Picillo, M., Cuoco, S., Amboni, M., Bonifacio, F. P., Bruno, A., Bruschi, F., Cappiello, A., De Micco, R., De Rosa, A., Di Biasio, F., Elifani, F., Erro, R., Fabbri, M., Falla, M., Franco, G., Frosini, D., Galantucci, S., Lazzeri, G., Magistrelli, L., Malaguti, M. C., Milner, A. V., Minafra, B., Olivola, E., Pilotto, A., Rascuna, C., Rizzetti, M. C., Schirinzi, T., Borroni, B., Ceravolo, R., Di Fonzo, A., Lopiano, L., Marchese, R., Mercuri, N. B., Modugno, N., Nicoletti, A., Padovani, A., Santangelo, G., Stefani, A., Tessitore, A., Volonte, M. A., Zangaglia, R., Zappia, M., Barone, P. |
| سنة النشر: | 2019 |
| مصطلحات موضوعية: | Quality of life, Adult, Male, medicine.medical_specialty, Neurology, Movement disorders, Psychometrics, Dermatology, Progressive supranuclear palsy, 03 medical and health sciences, 0302 clinical medicine, Clinical trials, Cronbach's alpha, Parkinsonian Disorders, Progressive, Surveys and Questionnaires, medicine, Humans, Supranuclear Palsy, 030212 general & internal medicine, Aged, Caregiver, Carer, business.industry, Parkinsonism, Discriminant validity, General Medicine, Middle Aged, Translating, medicine.disease, eye diseases, humanities, Clinical trial, Psychiatry and Mental health, Convergent validity, Caregivers, Italy, Physical therapy, Female, Neurology (clinical), Supranuclear Palsy, Progressive, medicine.symptom, business, 030217 neurology & neurosurgery, Quality of Life |
| الوصف: | Progressive supranuclear palsy (PSP) is a rare, rapidly progressive, neurodegenerative disease characterized by falls and ocular movement disturbances. Caring for a partner or relative who suffers from PSP entails a strenuous and demanding task, usually lasting for years that affects carers’ everyday life routines and emotional and social well-being. The 26-item Parkinsonism Carers QoL (PQoL Carer) is a self-administered, concise instrument evaluating the quality of life of caregivers of patients with atypical parkinsonism (both PSP and multiple system atrophy). Here, the PQoL Carer was translated into Italian and validated in 162 carers of PSP patients (54.3% women; mean age (standard deviation), 62.4 (15.4)) diagnosed according to the Movement Disorder Society criteria and recruited in 16 third-level movement disorders centers participating in the Neurecanet project. The mean PQoL total score was 40.66 ± 19.46. The internal consistency was excellent (Cronbach’s alpha = 0.941); corrected item-total correlation was > 0.40 for all the items. A correlation with other health-related quality of life measures as well as with behavioral assessments was shown suggesting adequate convergent validity of the scale. PQoL also correlated with patients’ severity of disease. The discriminant validity of the scale was evidenced by its capacity to differentiate between carers with varying levels of self-reported health (p < 0.001). In conclusion, the Italian version of the PQoL Carer is an easy, consistent, and valid tool for the assessment of the quality of life in carers of PSP patients. |
| اللغة: | English |
| الوصول الحر: | https://explore.openaire.eu/search/publication?articleId=doi_dedup___::538f762a45626c873cccc016efbe81afTest http://hdl.handle.net/11379/532568Test |
| حقوق: | RESTRICTED |
| رقم الانضمام: | edsair.doi.dedup.....538f762a45626c873cccc016efbe81af |
| قاعدة البيانات: | OpenAIRE |
| الوصف غير متاح. |