The experience of family caregivers of patients with cancer in an Asian country: A grounded theory approach
| العنوان: | The experience of family caregivers of patients with cancer in an Asian country: A grounded theory approach |
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| المؤلفون: | Christantie Effendy, Adi Utarini, Yvonne Engels, Martina Sinta Kristanti, Myrra Vernooij-Dassen |
| المصدر: | Palliative Medicine Palliative Medicine, 33, 6, pp. 676-684 Palliative Medicine, 33, 676-684 |
| بيانات النشر: | SAGE Publications, 2019. |
| سنة النشر: | 2019 |
| مصطلحات موضوعية: | Adult, Male, medicine.medical_specialty, Alzheimer`s disease Donders Center for Medical Neuroscience [Radboudumc 1], Palliative care, Grounded theory, Healthcare improvement science Radboud Institute for Health Sciences [Radboudumc 18], 03 medical and health sciences, All institutes and research themes of the Radboud University Medical Center, 0302 clinical medicine, Neoplasms, medicine, Asian country, Humans, Family, Aged, Aged, 80 and over, palliative care, 030504 nursing, Family caregivers, business.industry, Social Support, Cancer, Original Articles, General Medicine, Middle Aged, medicine.disease, Culturally Competent Care, language.human_language, Indonesian, Anesthesiology and Pain Medicine, Caregivers, Indonesia, 030220 oncology & carcinogenesis, Family medicine, Grounded Theory, Quality of Life, language, Female, Family caregiver, 0305 other medical science, business, Stress, Psychological |
| الوصف: | Background: Strong family bonds are part of the Indonesian culture. Family members of patients with cancer are intensively involved in caring, also in hospitals. This is considered “normal”: a societal and religious obligation. The values underpinning this might influence families’ perception of it. Aim: To explore and model experiences of family caregivers of patients with cancer in Indonesia in performing caregiving tasks. Design: A grounded theory approach was applied. The constant comparative method was used for data analysis and a paradigm scheme was employed for developing a theoretical model. Setting/participants: The study was conducted in three hospitals in Indonesia. The participants were family caregivers of patients with cancer. Results: A total of 24 family caregivers participated. “Belief in caregiving” appeared to be the core phenomenon. This reflects the caregivers’ conviction that providing care is an important value, which becomes the will power and source of their strength. It is a combination of spiritual and religious, value and motivation to care, and is influenced by contextual factors. It influences actions: coping mechanisms, sharing tasks, and making sacrifices. Social support influences the process of the core phenomenon and the actions of the caregivers. Both positive and negative experiences were identified. Conclusion: We developed a model of family caregivers’ experiences from a country where caregiving is deeply rooted in religion and culture. The model might also be useful in other cultural contexts. Our model shows that the spiritual domain, not only for the patient but also for the family caregivers, should be structurally addressed by professional caregivers. |
| وصف الملف: | application/pdf |
| تدمد: | 1477-030X 0269-2163 |
| الوصول الحر: | https://explore.openaire.eu/search/publication?articleId=doi_dedup___::536a7c840410d278172f46a359e63e28Test https://doi.org/10.1177/0269216319833260Test |
| حقوق: | OPEN |
| رقم الانضمام: | edsair.doi.dedup.....536a7c840410d278172f46a359e63e28 |
| قاعدة البيانات: | OpenAIRE |
| تدمد: | 1477030X 02692163 |
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