Patterns of care and follow-up care of patients with uveal melanoma in German-speaking countries: a multinational survey of the German Dermatologic Cooperative Oncology Group (DeCOG)

التفاصيل البيبلوغرافية
العنوان: Patterns of care and follow-up care of patients with uveal melanoma in German-speaking countries: a multinational survey of the German Dermatologic Cooperative Oncology Group (DeCOG)
المؤلفون: Peter Elsner, Cornelia Mauch, Lisa Zimmer, Mareike Alter, Alexander Enk, Friedegund Meier, Matthias Goebeler, Verena Müller, Mirjana Ziemer, Konstantin Drexler, Claudia Pföhler, Sebastian Haferkamp, Jessica C. Hassel, Christiane Bayerl, Katharina C. Kähler, Markus Zutt, Markus Streit, Nicole Kreuzberg, Thomas Tüting, Patrick Terheyden, Christiane Pfeiffer, Carmen Loquai, Dirk Debus, Nina Devereux, Ahn Van Nguyen, Elisabeth Livingstone, Rainer Rompel, Christian Posch, Steffen Emmert, Ulrich Wesselmann, Evelyn Dabrowski, Matthias Schmuth, Max Schlaak, Anja Wessely, Christoffer Gebhardt, Anja Gesierich, Gesina Hansel, Theresa Steeb, Uwe Wollina, Julia Welzel, Erwin S. Schultz, Reinhard Dummer, Jan C. Simon, Hans-Joachim Schulze, Ralf Gutzmer, Michael Max Sachse, Rose K. C. Moritz, Steven Goetze, J. Mangana, Lara Valeska Maul, Markus V. Heppt, Harald Löffler, Kjell M. Kaume, Wolfgang Krapf, Percy Lehmann, Carola Berking, Stefanie Sauder, Alexander A. Navarini, Edgar Dippel, Bastian Schilling, Markus Meissner, Alexander Thiem, Dirk Schadendorf, Pia Dücker, Sergij Goerdt, Gerhard Weyandt, Lucie Heinzerling, Kerstin Schatton, Erika Richtig, Guido Bruning, Armin Bender, Peter Mohr
المصدر: Journal of Cancer Research and Clinical Oncology
بيانات النشر: Springer Science and Business Media LLC, 2020.
سنة النشر: 2020
مصطلحات موضوعية: Uveal Neoplasms, 0301 basic medicine, Cancer Research, Skin Neoplasms, Cross-sectional study, Original Article – Clinical Oncology, Patterns of care, Medizin, Aftercare, Disease, German, Uveal melanoma, 0302 clinical medicine, Germany, Surveys and Questionnaires, Mass Screening, Neoplasm Metastasis, Practice Patterns, Physicians', Melanoma, Referral and Consultation, Treatment patterns, Surveillance, Follow-up, Ocular melanoma, General Medicine, ddc, Oncology, Austria, Population Surveillance, 030220 oncology & carcinogenesis, language, Switzerland, medicine.medical_specialty, Ocular Melanoma, 03 medical and health sciences, medicine, Humans, ddc:610, Monitoring, Physiologic, Health Services Needs and Demand, business.industry, Cancer, Guideline, medicine.disease, language.human_language, Background, Cross-Sectional Studies, 030104 developmental biology, Family medicine, Neoplasm Recurrence, Local, Skin cancer, business, Follow-Up Studies
الوصف: Purpose Uveal melanoma (UM) is an orphan cancer of high unmet medical need. Current patterns of care and surveillance remain unclear as they are situated in an interdisciplinary setting. Methods A questionnaire addressing the patterns of care and surveillance in the management of patients with uveal melanoma was distributed to 70 skin cancer centers in Austria, Germany and Switzerland. Frequency distributions of responses for each item of the questionnaire were calculated. Results 44 of 70 (62.9%) skin cancer centers completed the questionnaire. Thirty-nine hospitals were located in Germany (88.6%), three in Switzerland (6.8%) and two in Austria (4.5%). The majority (68.2%) represented university hospitals. Most patients with metastatic disease were treated in certified skin cancer centers (70.7%, 29/41). Besides, the majority of patients with UM were referred to the respective skin cancer center by ophthalmologists (87.2%, 34/39). Treatment and organization of follow-up of patients varied across the different centers. 35.1% (14/37) of the centers stated to not perform any screening measures. Conclusion Treatment patterns of patients with uveal melanoma in Germany, Austria and Switzerland remain extremely heterogeneous. A guideline for the treatment and surveillance is urgently needed.
وصف الملف: application/pdf
تدمد: 1432-1335
0171-5216
الوصول الحر: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::05ac1f0180e423fc3060e58286fbdaa6Test
https://doi.org/10.1007/s00432-020-03450-0Test
حقوق: OPEN
رقم الانضمام: edsair.doi.dedup.....05ac1f0180e423fc3060e58286fbdaa6
قاعدة البيانات: OpenAIRE