التفاصيل البيبلوغرافية
| العنوان: |
Family Caregiver Roles and Challenges in Supporting Patients with Cancer Treatment Decision-Making: Analysis of Data from a National Survey (TH105A). |
| المؤلفون: |
Dionne-Odom, J. Nicholas1 (AUTHOR), Kent, Erin2 (AUTHOR), Rocque, Gabrielle1 (AUTHOR), Azuero, Andres1 (AUTHOR), Harrell, Erin3 (AUTHOR), Gazaway, Shena3 (AUTHOR), Reed, Rhiannon1 (AUTHOR), Bratches, Reed4 (AUTHOR), Bechthold, Avery C.1 (AUTHOR), Lee, Kyungmi1 (AUTHOR), Puga, Frank1 (AUTHOR), Miller-Sonet, Ellen5 (AUTHOR), Ornstein, Katherine6 (AUTHOR) |
| المصدر: |
Journal of Pain & Symptom Management. Mar2023, Vol. 65 Issue 3, pe248-e249. 2p. |
| مصطلحات موضوعية: |
*CANCER treatment, *FAMILY roles, *CANCER patients, *CAREGIVERS, *DATA analysis |
| مستخلص: |
Outcomes: 1. Describe roles that caregivers play in supporting patients with cancer treatment decision making 2. Describe challenges that caregivers face when supporting patients with cancer treatment decision making Family caregivers play a critical role in patients' cancer treatment decisions. Using data from a large US national survey, we aimed to describe the roles and challenges of family caregivers involved in patients' cancer treatment decision making. Family caregiver–reported data were analyzed from a national survey conducted by CancerCare® from February to July, 2021. Four caregiver roles were explored in the context of cancer treatment decision making (eg, treatment location, treatment plan, starting/stopping treatment): 1) observer (patient as the primary decision maker); 2) primary decision maker; 3)shared decision maker with the patient; and 4) delegator of the decision to the healthcare team. Ten separate challenges faced by caregivers (eg, information, cost, treatment understanding) were then examined. Chi-square tests and multivariable logistic regression analyses were used to assess differences and associations with caregiver sociodemographic characteristics. Of 2,703 caregiver respondents, 61.5% (n=1,661) reported involvement in patient decisions about cancer treatment. Among these caregivers, 22.2% were an observer, 21.3% were the primary decision maker, 53.9% shared decisions with the patient, and 18.1% delegated treatment decisions to the healthcare team. A majority of caregivers (67.1%) reported at least one challenge when providing assistance with decisions, the most frequent being not knowing how treatments would affect the patient's physical condition (23.0%) and quality of life (21.3%). In multivariable models, whether or not the caregiver was Hispanic/Latino/a was the strongest predictor of facing at least one challenge (b=-.581, Wald=10.69, p<.01). Over 60% of family caregivers were involved in patients' cancer treatment decisions. Major challenges were lack of information about the impact of treatments on patients' physical health and quality of life. Challenges may be more commonly faced by Hispanic/Latino/a caregivers. Results underscore and direct palliative care clinicians' efforts to involve and advocate for including families in patient decision making. [ABSTRACT FROM AUTHOR] |
| قاعدة البيانات: |
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