Outcome measures in neuromuscular disease: is the world still flat?
العنوان: | Outcome measures in neuromuscular disease: is the world still flat? |
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المؤلفون: | Michael P. Lunn, Peter Van den Bergh |
المصدر: | Journal of the Peripheral Nervous System. 20:255-259 |
بيانات النشر: | Wiley, 2015. |
سنة النشر: | 2015 |
مصطلحات موضوعية: | medicine.medical_specialty, Neuromuscular disease, Rasch model, General Neuroscience, Outcome measures, medicine.disease, Outcome (game theory), Natural history of disease, Cognitive bias, Clinical trial, Physical medicine and rehabilitation, Quality of life (healthcare), medicine, Neurology (clinical), Psychology |
الوصف: | Valid, responsive, and meaningful outcome measures for the measurement of the impairment, activity limitations, and quality of life in patients with neuromuscular disease are crucial to identify the natural history of disease and benefits of therapy in clinical practice and trials. Although understanding of many aspects of neuromuscular diseases has advanced dramatically, the development of outcome measures has received less attention. The scales developed from Rasch theory by the PeriNomS Group represent the biggest significant shift in thought in neuromuscular outcome measures for decades. There remain problems with many of them, and further developments are required. However, incorporating them into our outcome sets for daily use and in clinical trials will lead to the more efficient capture of meaningful change and will result in better assessment of individuals and groups of patients in both clinical trials and neurological practice. |
تدمد: | 1085-9489 |
الوصول الحر: | https://explore.openaire.eu/search/publication?articleId=doi_________::b696de872b5fa5059f50120a8e0b8e8eTest https://doi.org/10.1111/jns.12119Test |
حقوق: | CLOSED |
رقم الانضمام: | edsair.doi...........b696de872b5fa5059f50120a8e0b8e8e |
قاعدة البيانات: | OpenAIRE |
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