المؤلفون: M. Guftar Shaikh, Angela K. Lucas-Herald, Antonia Dastamani, Maria Salomon Estebanez, Senthil Senniappan, Noina Abid, Sumera Ahmad, Sophie Alexander, Bindu Avatapalle, Neelam Awan, Hester Blair, Roisin Boyle, Alexander Chesover, Barbara Cochrane, Ross Craigie, Annaruby Cunjamalay, Sarah Dearman, Paolo De Coppi, Karen Erlandson-Parry, Sarah E. Flanagan, Clare Gilbert, Niamh Gilligan, Caroline Hall, Jayne Houghton, Ritika Kapoor, Helen McDevitt, Zainab Mohamed, Kate Morgan, Jacqueline Nicholson, Ana Nikiforovski, Elaine O'Shea, Pratik Shah, Kirsty Wilson, Chris Worth, Sarah Worthington, Indraneel Banerjee

المصدر: Frontiers in Endocrinology, Vol 14 (2023)

مصطلحات موضوعية: congenital hyperinsulinism, glucose, hypoglycaemia, consensus, patient organisation, standardised practice, Diseases of the endocrine glands. Clinical endocrinology, RC648-665

وصف الملف: electronic resource

العلاقة: https://www.frontiersin.org/articles/10.3389/fendo.2023.1231043/fullTest; https://doaj.org/toc/1664-2392Test

الوصول الحر: https://doaj.org/article/6ae549a70f2e4683982d8ee5ac0a6878Test

المؤلفون: Maike Stein, Sarah Hoffmann, Lea Gerischer, Frauke Stascheit, David Legg, Andreas Meisel, Sophie Lehnerer

المصدر: BMC Neurology, Vol 22, Iss 1, Pp 1-8 (2022)

مصطلحات موضوعية: Myasthenia gravis, Counselling, Patient organisation, Unmet needs, E-mail, Social legislation, COVID-19, Neurology. Diseases of the nervous system, RC346-429

وصف الملف: electronic resource

العلاقة: https://doaj.org/toc/1471-2377Test

الوصول الحر: https://doaj.org/article/8b926db9c6cd40ae894e19cd142b462cTest

المؤلفون: Samuelsson, Jonatan, 1985

المصدر: Historisk Tidskrift. 143(3):380-408

مصطلحات موضوعية: amalgam, patient organisation, consumer organisation, Sweden, knowledge, welfare marketisation, active patient, patientorganisationer, konsumentorganisationer, Sverige, kunskap, välfärdsmarknadisering, aktiv patient, medicinsk humaniora, Medical Humanities, idé- och lärdomshistoria, History Of Sciences and Ideas, History, historia

وصف الملف: print

الوصول الحر: https://urn.kb.se/resolve?urn=urn:nbn:se:umu:diva-214374Test
https://www.historisktidskrift.se/index.php/june20/article/view/724Test

المؤلفون: Bultijnck, Renée, De Laere, Luc, De Grande, Rony, Develter, Thijs, Vantieghem, Sophie, Uvin, Pieter, Ghysel, Christophe, De Laere, Bram, the patient organization Think Blue Vlaanderen vzw, missing

المصدر: QUALITY OF LIFE RESEARCH ; ISSN: 0962-9343 ; ISSN: 1573-2649

مصطلحات موضوعية: Medicine and Health Sciences, ADT, HRQoL, EPIC26, FACT, Patient organisation, Patient-reported outcomes, Healthcare communication, NEEDS, CARE, VALIDATION, MEN

وصف الملف: application/pdf

العلاقة: https://biblio.ugent.be/publication/01J0TV1ZQ825VBHKR513MFDVW5Test; http://hdl.handle.net/1854/LU-01J0TV1ZQ825VBHKR513MFDVW5Test; http://doi.org/10.1007/s11136-024-03712-1Test; https://biblio.ugent.be/publication/01J0TV1ZQ825VBHKR513MFDVW5/file/01J0TV2FRJHFX4SK5JRB0RR31RTest

الإتاحة: https://doi.org/10.1007/s11136-024-03712-1Test
https://biblio.ugent.be/publication/01J0TV1ZQ825VBHKR513MFDVW5Test
http://hdl.handle.net/1854/LU-01J0TV1ZQ825VBHKR513MFDVW5Test
https://biblio.ugent.be/publication/01J0TV1ZQ825VBHKR513MFDVW5/file/01J0TV2FRJHFX4SK5JRB0RR31RTest

المؤلفون: Stein, Maike, Hoffmann, Sarah, Gerischer, Lea, Stascheit, Frauke, Legg, David, Meisel, Andreas, Lehnerer, Sophie

مصطلحات موضوعية: Myasthenia gravis, Counselling, Patient organisation, Unmet needs, E-mail, Social legislation, COVID-19, Caregiver, Medical inquiries, Specialized care, ddc:610

وصف الملف: application/pdf

العلاقة: https://refubium.fu-berlin.de/handle/fub188/41671Test; http://dx.doi.org/10.17169/refubium-41391Test

الإتاحة: https://doi.org/10.17169/refubium-41391Test
https://doi.org/10.1186/s12883-022-02981-yTest
https://refubium.fu-berlin.de/handle/fub188/41671Test

المؤلفون: Francesco deLorenzo, Kathi Apostolidis

المصدر: Molecular Oncology, Vol 13, Iss 3, Pp 653-666 (2019)

مصطلحات موضوعية: cancer patients, cancer policy, cancer research, innovation, patient organisation, The European Cancer Patient Coalition, Neoplasms. Tumors. Oncology. Including cancer and carcinogens, RC254-282

وصف الملف: electronic resource

العلاقة: https://doaj.org/toc/1574-7891Test; https://doaj.org/toc/1878-0261Test

الوصول الحر: https://doaj.org/article/e314b607bffc473ebcbae53e176d6868Test

المؤلفون: Niedermann Schneider, K., Rausch, A. K., Braun, J., Becker, H., Böhm, P., Bräm, R., Gilliam-Feld, G., Kiefer, D., Kurz, R., Schönfelder, M., Stamm, T., Kiltz, U.

مصطلحات موضوعية: Bewegungsempfehlung, Training, Arthrose, Arthritis, Patientenorganisation, Physical activitiy recommendation, Patient organisation, Osteoarthritis, 615.82 Physiotherapie, 616.7 Krankheiten des Bewegungsapparates und Orthopädie

وصف الملف: application/pdf

الإتاحة: https://doi.org/10.21256/zhaw-23969Test
https://digitalcollection.zhaw.ch/handle/11475/23969Test

المؤلفون: Michael Schlander, Søren Holm, Erik Nord, Jeff Richardson, Silvio Garattini, Peter Kolominsky-Rabas, Deborah Marshall, Ulf Persson, Maarten Postma, Steven Simoens, Oriol de Solà Morales, Keith Tolley, Mondher Toumi, Harry Telser, James R Bonham, Helmut Hintner, Anja Diem, Martin Laimer, Réjean Hébert, Nabarun Dasgupta, Carrie E. Pierce, Melissa Jordan, Barbara Bori, Mohanad Fors, Emilie Prazakova, Simon Day, Thomas J. Croce, Jonas Fransson, Philip Wood, Anne-Grethe Lauridsen, Joanne Higgs, Vesna Stojmirova Aleksovska, Christina Olsen, Ritchie Head, Antonio Asero, Vincenzo Papa, Christa van Kan, Loic Favennec, Silvana Venturella, Michela Salvador, Alan Krol, Stephanie J. Nielsen, Birthe B. Holm, Daniel Lewi, Patricia Durão, Heather Band, Andrea West, Marinda J. A. Hammann, Marije C. Effing-Boele, Hanka K. Dekker, Amy Hunter, Amy Simpson, Gumei Liu, Katherine Needleman, Debra Lewis, Gayatri Rao, Martin J. Whitaker, Raquel Castro

المصدر: Orphanet Journal of Rare Diseases, Vol 11, Iss S1, Pp 1-9 (2016)

مصطلحات موضوعية: Adrenal Insufficiency, Epidermolysis Bullosa, Patient Organisation, Natural History Study, Acanthamoeba Keratitis, Medicine

وصف الملف: electronic resource

العلاقة: http://link.springer.com/article/10.1186/s13023-016-0515-yTest; https://doaj.org/toc/1750-1172Test

الوصول الحر: https://doaj.org/article/e08ac2370ca64d8296b3c0c96288eec5Test

المؤلفون: Courbier, Sandra, Dimond, Rebecca, Bros-Facer, Virginie

المصدر: Orphanet Journal of Rare Diseases 14(1) 175

مصطلحات موضوعية: Rare diseases, quantitative survey, Data sharing, Data protection, Patient engagement, Recommendations, Evidence-based approach, Patient organisation, Public trust, Healthcare, Research

العلاقة: https://zenodo.org/communities/fp7-bmcTest; https://zenodo.org/record/3334917Test; https://doi.org/10.1186/s13023-019-1123-4Test; oai:zenodo.org:3334917

الإتاحة: https://doi.org/10.1186/s13023-019-1123-4Test
https://zenodo.org/record/3334917Test

المؤلفون: M. Guftar Shaikh, Angela K. Lucas-Herald, Antonia Dastamani, Maria Salomon Estebanez, Senthil Senniappan, Noina Abid, Sumera Ahmad, Sophie Alexander, Bindu Avatapalle, Neelam Awan, Hester Blair, Roisin Boyle, Alexander Chesover, Barbara Cochrane, Ross Craigie, Annaruby Cunjamalay, Sarah Dearman, Paolo De Coppi, Karen Erlandson-Parry, Sarah E. Flanagan, Clare Gilbert, Niamh Gilligan, Caroline Hall, Jayne Houghton, Ritika Kapoor

مصطلحات موضوعية: Endocrinology, Reproduction, Cell Metabolism, congenital hyperinsulinism, glucose, hypoglycaemia, consensus, patient organisation, standardised practice, treatment

العلاقة: https://figshare.com/articles/dataset/DataSheet_1_Standardised_practices_in_the_networked_management_of_congenital_hyperinsulinism_a_UK_national_collaborative_consensus_docx/24458188Test

الإتاحة: https://doi.org/10.3389/fendo.2023.1231043.s001Test
https://figshare.com/articles/dataset/DataSheet_1_Standardised_practices_in_the_networked_management_of_congenital_hyperinsulinism_a_UK_national_collaborative_consensus_docx/24458188Test