المؤلفون: de Veer, Rozanne C., van Hooff, Maria C., da Silva, Geraldine, Harms, Maren H., Metselaar, Herold J., Willemse, José, Utomo, Elaine, van der Meer, Adriaan J.

المصدر: de Veer , R C , van Hooff , M C , da Silva , G , Harms , M H , Metselaar , H J , Willemse , J , Utomo , E & van der Meer , A J 2023 , ' Quality of life in Dutch patients with primary biliary cholangitis : Discrepancies between patients’ perspectives and objective disease parameters ' , Hepatology Research , vol. 53 , no. 5 , pp. 401-408 . https://doi.org/10.1111/hepr.13880Test

مصطلحات موضوعية: /dk/atira/pure/sustainabledevelopmentgoals/good_health_and_well_being, name=SDG 3 - Good Health and Well-being

وصف الملف: application/pdf

العلاقة: https://pure.eur.nl/en/publications/019a1e68-4d07-4da0-89ad-f549700458daTest

الإتاحة: https://doi.org/10.1111/hepr.13880Test
https://pure.eur.nl/en/publications/019a1e68-4d07-4da0-89ad-f549700458daTest
https://pure.eur.nl/ws/files/97673914/Quality_of_life_in_Dutch_patients_with_primary_biliary_cholangitis_Discrepancies_between_patients_perspectives_and_objective_disease_parameters.pdfTest
http://www.scopus.com/inward/record.url?scp=85147173068&partnerID=8YFLogxKTest

المؤلفون: Lenz, Dominic, Hørby Jørgensen, Marianne, Kelly, Deirdre, Cardinale, Vincenzo, Geerts, Anja, Gonçalves Costa, Isabel, Fichtner, Alexander, Garbade, Sven F., Hegen, Bianca, Hilberath, Johannes, De Kleine, Ruben, Kupčinskas, Limas, Mclin, Valérie, Niesert, Moritz, Prado Gonzalez, Veronica, Sturm, Ekkehard, Staufner, Christian, Tjwa, Eric, Willemse, José, Zecher, Britta F., Larsen, Fin Stolze, Sebode, Marcial, Ytting, Henriette

المصدر: Lenz , D , Hørby Jørgensen , M , Kelly , D , Cardinale , V , Geerts , A , Gonçalves Costa , I , Fichtner , A , Garbade , S F , Hegen , B , Hilberath , J , De Kleine , R , Kupčinskas , L , Mclin , V , Niesert , M , Prado Gonzalez , V , Sturm , E , Staufner , C , Tjwa , E , Willemse , J , Zecher , B F , Larsen , F S , Sebode , M & Ytting , H 2023 ....

مصطلحات موضوعية: ALF, ERN RARE-LIVER, etiology, Europe, pediatric acute liver failure

وصف الملف: application/pdf

العلاقة: https://research.rug.nl/en/publications/0111de77-128b-4f29-a445-c2973dedd204Test

الإتاحة: https://doi.org/10.1097/MPG.0000000000003777Test
https://hdl.handle.net/11370/0111de77-128b-4f29-a445-c2973dedd204Test
https://research.rug.nl/en/publications/0111de77-128b-4f29-a445-c2973dedd204Test
https://pure.rug.nl/ws/files/830022280/Etiology_and_Outcome_of_Adult_and_Pediatric_Acute_Liver_Failure_in_Europe.pdfTest
http://www.scopus.com/inward/record.url?scp=85163509620&partnerID=8YFLogxKTest

المؤلفون: Penning, Louis C., Berenguer, Marina, Willemse, Jose, Weiskirchen, Ralf, Czlonkowska, Anna, Double, Kay L., Dusek, Petr, Espinós, Carmen, Lutsenko, Svetlana, Medici, Valentina, Papenthin, Wiebke, Stremmel, Wolfgang

المصدر: Biomedicines : open access journal 11(2), 420 (2023). doi:10.3390/biomedicines11020420

جغرافية الموضوع: DE

العلاقة: info:eu-repo/semantics/altIdentifier/pmid/pmid:36830958; info:eu-repo/semantics/altIdentifier/wos/WOS:000938397800001; info:eu-repo/semantics/altIdentifier/issn/2227-9059; https://publications.rwth-aachen.de/record/953716Test; https://publications.rwth-aachen.de/search?p=id:%22RWTH-CONV-251231%22Test

الإتاحة: https://doi.org/10.3390/biomedicines11020420Test
https://doi.org/10.18154/RWTH-CONV-251231Test
https://publications.rwth-aachen.de/record/953716Test
https://publications.rwth-aachen.de/search?p=id:%22RWTH-CONV-251231%22Test

المؤلفون: Penning, Louis C, Berenguer, Marina, Czlonkowska, Anna, Double, Kay L, Dusek, Petr, Espinós, Carmen, Lutsenko, Svetlana, Medici, Valentina, Papenthin, Wiebke, Stremmel, Wolfgang, Willemse, Jose, Weiskirchen, Ralf

المصدر: Biomedicines, vol 11, iss 2

مصطلحات موضوعية: Biological Sciences, Biomedical and Clinical Sciences, Clinical Sciences, Liver Disease, Neurodegenerative, Digestive Diseases, Prevention, Genetics, Neurosciences, Brain Disorders, Chronic Liver Disease and Cirrhosis, 4.2 Evaluation of markers and technologies, 4.1 Discovery and preclinical testing of markers and technologies, Detection, screening and diagnosis, Wilson disease, copper accumulation, hepatic disfunction, neurological disfunction, psychiatric disorders, patients' involvement, patients’ involvement, Biochemistry and cell biology, Pharmacology and pharmaceutical sciences, Medicinal and biomolecular chemistry

وصف الملف: application/pdf

العلاقة: qt27z4n2cb; https://escholarship.org/uc/item/27z4n2cbTest

الإتاحة: https://escholarship.org/uc/item/27z4n2cbTest

المؤلفون: Snijders, Romée J. A. L. M., Assis, David N., Oo, Ye H., Sebode, Marcial, Taubert, Richard, Willemse, José, Tomsin, Bert, Lohse, Ansgar W., Drenth, Joost P. H., Gevers, Tom J. G.

المصدر: Liver International ; volume 43, issue 7, page 1375-1384 ; ISSN 1478-3223 1478-3231

الإتاحة: https://doi.org/10.1111/liv.15573Test

المؤلفون: Mighiu, Claudia, O'Hara, Sonia, Ferri Grazzi, Enrico, Murray, Karen F., Schattenberg, Jörn M., Ventura, Emily, Karakaidos, Melanie, Taylor, Alison, Brrang, Harpreet, Dhawan, Anil, Willemse, Jose, Finnegan, Alan

المساهمون: HCD Economics, Cleveland Clinic Children’s Hospital, University Medical Center of the Johannes Gutenberg-University, PFIC Advocacy and Resource Network, Children’s Liver Disease Foundation, King’s College Hospital, Dutch Liver Patient Association, University of Chester

المصدر: nlmid: 101266602 ; essn: 1750-1172 ; issn: 1750-1172

مصطلحات موضوعية: Employment, Patient-reported Outcomes, Work Productivity, Caregiver Burden, Progressive Familial Intrahepatic Cholestasis

العلاقة: https://ojrd.biomedcentral.com/articles/10.1186/s13023-022-02177-0Test; https://chesterrep.openrepository.com/bitstream/handle/10034/626730/article.pdf?sequence=2Test; Mighiu, C., O'Hara, S., Ferri Grazzi, E., Murray, K. F., Schattenberg, J. M., Ventura, E., Karakaidos, M., Taylor, A., Brrang, H., Dhawan, A., Willemse, J., & Finnegan, A. (2022). Impact of progressive familial intrahepatic cholestasis on caregivers: Caregiver-reported outcomes from the multinational PICTURE study. Orphanet Journal of Rare Diseases, 17(1), 32. https://doi.org/10.1186/s13023-022-02177-0Test; http://hdl.handle.net/10034/626730Test; Orphanet Journal of Rare Diseases

الإتاحة: https://doi.org/10.1186/s13023-022-02177-0Test
http://hdl.handle.net/10034/626730Test
https://chesterrep.openrepository.com/bitstream/handle/10034/626730/article.pdf?sequence=2Test

المؤلفون: Wunsch, Ewa, Krause, Linda, Gevers, Tom JG, Schramm, Christoph, Janik, Maciej K., Krawczyk, Marcin, Willemse, José, Uhlenbusch, Natalie, Löwe, Bernd, Lohse, Ansgar Wilhelm, Milkiewicz, Piotr

المساهمون: Consumers, Health, Agriculture and Food Executive Agency

المصدر: Liver International ; volume 43, issue 2, page 381-392 ; ISSN 1478-3223 1478-3231

الإتاحة: https://doi.org/10.1111/liv.15440Test

المؤلفون: De Veer, Rozanne C., Da Silva, Geraldine, Van Hooff, Maria C., Harms, Maren H., Metselaar, Herold J., Willemse, José, Utomo, Elaine, Van Der Meer, Adriaan J.

المصدر: De Veer , R C , Da Silva , G , Van Hooff , M C , Harms , M H , Metselaar , H J , Willemse , J , Utomo , E & Van Der Meer , A J 2021 , ' Measurement properties of the PBC-40 and PBC-27 : A Dutch validation study ' , BMJ Open Gastroenterology , vol. 8 , no. 1 , e000758 . https://doi.org/10.1136/bmjgast-2021-000758Test

وصف الملف: application/pdf

الإتاحة: https://doi.org/10.1136/bmjgast-2021-000758Test
https://pure.eur.nl/en/publications/62ce6de2-d6ed-4f6e-b40f-926f044a0f60Test
https://pure.eur.nl/ws/files/46186298/Measurement_properties_of_the_PBC_40_and_PBC_27_a_Dutch_validation_study.pdfTest
http://www.scopus.com/inward/record.url?scp=85122453555&partnerID=8YFLogxKTest

المؤلفون: Francque, Sven, Marchesini, Giulio, Kautz, Achim, Walmsley, Martine, Dorner, Rebecca, Lazarus, Jeffrey, V., Zelber-Sagi, Shira, Hallsworth, Kate, Busetto, Luca, Fruhbeck, Gema, Dicker, Dror, Woodward, Euan, Korenjak, Marko, Willemse, Jose, Koek, Gerardus H., Vinker, Shlomo, Ungan, Mehmet, Mendive, Juan M., Lionis, Christos

المصدر: 25895559 ; JHEP Reports

مصطلحات موضوعية: Human medicine

العلاقة: info:eu-repo/semantics/altIdentifier/isi/000706949300003

الإتاحة: https://doi.org/10.1016/J.JHEPR.2021.100322Test
https://hdl.handle.net/10067/1826190151162165141Test
https://repository.uantwerpen.be/docstore/d:irua:9307Test

المؤلفون: Ruiz-Casas, Leonardo, O'Hara, Sonia, Mighiu, Claudia, Finnegan, Alan, Taylor, Alison, Ventura, Emily, Dhawan, Anil, Murray, Karen F., Schattenberg, Jörn M., Willemse, Jose, Karakaidos, Melanie, Brrang, Harpreet

المساهمون: HCD Economics, Madrid, HCD Economics, Daresbury, University of Chester, Children's Liver Disease Foundation, PFIC Advocacy and Resource Network, King's College Hospital, Cleveland Clinic Children's Hospital, University Medical Center of the Johannes Gutenberg-University, Dutch Liver Patient Association

المصدر: eissn: 1744-8379

مصطلحات موضوعية: HRQOL, PFIC, Progressive familial intrahepatic cholestasis, burden of illness, pediatric liver disease, quality of life

العلاقة: https://chesterrep.openrepository.com/bitstream/handle/10034/624191/Burden%20of%20illness%20of%20progressive%20familial%20intrahepatic%20cholestasis%20in%20the%20US%20UK%20France%20and%20Germany%20study%20rationale%20and%20protocol%20of%20the%20PICTURE%20study.pdf?sequence=2Test; Ruiz-Casas, L., O'Hara, S., Mighiu, C., Finnegan, A., Taylor, A., Ventura, E., Dhawan, A., Murray, K. F., Schattenberg, J. M., Willemse, J., Karakaidos, M., & Brrang, H. (2021). Burden of illness of progressive familial intrahepatic cholestasis in the US, UK, France, and Germany: Study rationale and protocol of the PICTURE study. Expert Review of Pharmacoeconomics & Outcomes Research, 21(2), 247-253. https://doi.org/10.1080/14737167.2021.1859371Test; http://hdl.handle.net/10034/624191Test; Expert Review of Pharmacoeconomics & Outcomes Research

الإتاحة: https://doi.org/10.1080/14737167.2021.1859371Test
http://hdl.handle.net/10034/624191Test
https://chesterrep.openrepository.com/bitstream/handle/10034/624191/Burden%20of%20illness%20of%20progressive%20familial%20intrahepatic%20cholestasis%20in%20the%20US%20UK%20France%20and%20Germany%20study%20rationale%20and%20protocol%20of%20the%20PICTURE%20study.pdf?sequence=2Test