دورية أكاديمية
Development of a condition-specific patient-reported outcome measure for measuring symptoms and appearance in vascular malformations: the OVAMA questionnaire.
| العنوان: | Development of a condition-specific patient-reported outcome measure for measuring symptoms and appearance in vascular malformations: the OVAMA questionnaire. |
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| المؤلفون: | Lokhorst, MM, Horbach, SER, Young-Afat, DA, Stor, MLE, Haverman, L, Spuls, PI, van der Horst, CMAM, OVAMA Steering Group |
| بيانات النشر: | Oxford University Press (OUP) |
| سنة النشر: | 2021 |
| المجموعة: | The University of Melbourne: Digital Repository |
| الوصف: | BACKGROUND: The symptoms and appearance of vascular malformations can severely harm a patient's quality of life. The aim of treatment of vascular malformations generally is to improve condition-specific symptoms and/or appearance. Therefore, it is highly important to start testing treatment effects in clinical studies from the patient's perspective. OBJECTIVES: To develop a patient-reported outcome measure for measuring symptoms and appearance in patients with vascular malformations. METHODS: A first draft of the patient-reported outcome measure was based on the previously internationally developed core outcome set. The qualitative part of this study involved interviews with 14 patients, which led to a second draft. The second draft was field tested cross-sectionally, after which groups of items were evaluated for adequate internal consistency (Cronbach's alpha > 0·7) to form composite scores. Construct validity was evaluated by testing 13 predefined hypotheses on known-group differences. RESULTS: The patient interviews ensured adequate content validity and resulted in a general symptom scale with six items, a head and neck symptom scale with eight items, and an appearance scale with nine items. Cronbach's alpha was adequate for two composite scores: a general symptom score (0·88) and an appearance score (0·85). Ten out of 13 hypotheses on known-group differences were confirmed, confirming adequate construct validity. CONCLUSIONS: With the development of the OVAMA questionnaire, outcomes of patients with vascular malformations can now be evaluated from the patient's perspective. This may help improve the development of evidence-based treatments and the overall care for patients with vascular malformations. |
| نوع الوثيقة: | article in journal/newspaper |
| اللغة: | English |
| تدمد: | 0007-0963 1365-2133 |
| العلاقة: | Lokhorst, M. M., Horbach, S. E. R., Young-Afat, D. A., Stor, M. L. E., Haverman, L., Spuls, P. I., van der Horst, C. M. A. M. & OVAMA Steering Group, (2021). Development of a condition-specific patient-reported outcome measure for measuring symptoms and appearance in vascular malformations: the OVAMA questionnaire. Br J Dermatol, 185 (4), pp.797-803. https://doi.org/10.1111/bjd.20429Test.; http://hdl.handle.net/11343/280667Test |
| الإتاحة: | https://doi.org/10.1111/bjd.20429Test http://hdl.handle.net/11343/280667Test |
| حقوق: | CC BY-NC ; https://creativecommons.org/licenses/by-nc/4.0Test |
| رقم الانضمام: | edsbas.92A3021F |
| قاعدة البيانات: | BASE |
| تدمد: | 00070963 13652133 |
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