المؤلفون: Hannah Staunton, Claire Trennery, Rob Arbuckle, Maitea Guridi, Elena Zhuravleva, Pat Furlong, Ryan Fischer, Rebecca Hall

المصدر: Health and Quality of Life Outcomes, Vol 19, Iss 1, Pp 1-16 (2021)

مصطلحات موضوعية: Duchenne muscular dystrophy, Quality of life, Children, Adolescent, Clinical outcome assessment, Computer applications to medicine. Medical informatics, R858-859.7

وصف الملف: electronic resource

العلاقة: https://doaj.org/toc/1477-7525Test

الوصول الحر: https://doaj.org/article/416ee6bbd7c444bd92c33fa1ca6a1306Test

المؤلفون: Elena S. Izmailova, John A. Wagner, Nadir Ammour, Ninad Amondikar, Andrea Bell‐Vlasov, Steven Berman, Dan Bloomfield, Linda S. Brady, Xuemei Cai, Roberto A. Calle, Michelle Campbell, Francesca Cerreta, Ieuan Clay, Luca Foschini, Pat Furlong, Rob Goldel, Jennifer S. Goldsack, Peter M.A. Groenen, Amos Folarin, Jill Heemskerk, Peter Honig, Matthew Hotopf, Tania Kamphaus, Daniel R. Karlin, Christopher Leptak, Qi Liu, Husseini Manji, Robert J. Mather, Joseph P. Menetski, Vaibhav A. Narayan, Elektra Papadopoulos, Bakul Patel, Bray Patrick‐Lake, Jagdeep T. Podichetty, Abhishek Pratap, Laurent Servais, Diane Stephenson, Pam Tenaerts, Bruce J. Tromberg, Steve Usdin, Srikanth Vasudevan, Vadim Zipunnikov, Steven C. Hoffmann

المصدر: Clinical and Translational Science, Vol 14, Iss 1, Pp 94-101 (2021)

مصطلحات موضوعية: Therapeutics. Pharmacology, RM1-950, Public aspects of medicine, RA1-1270

وصف الملف: electronic resource

العلاقة: https://doaj.org/toc/1752-8054Test; https://doaj.org/toc/1752-8062Test

الوصول الحر: https://doaj.org/article/036413a7e3c24b77b02be80c333983beTest

المؤلفون: Manuela Battaglia, Pat Furlong, Nico Martinus Wulffraat, Felicitas Bellutti Enders

المصدر: Frontiers in Medicine, Vol 6 (2019)

مصطلحات موضوعية: translational medicine, patient-centric approaches, shared decision medicine, the innovation journey, patient advocacy, Medicine (General), R5-920

وصف الملف: electronic resource

العلاقة: https://www.frontiersin.org/article/10.3389/fmed.2019.00110/fullTest; https://doaj.org/toc/2296-858XTest

الوصول الحر: https://doaj.org/article/b990adf379d84e25b4c8d93a3786358dTest

المؤلفون: Hannah Staunton (11187400), Claire Trennery (11187403), Rob Arbuckle (7882049), Maitea Guridi (3482645), Elena Zhuravleva (264322), Pat Furlong (11187406), Ryan Fischer (6655010), Rebecca Hall (9712111)

مصطلحات موضوعية: Medicine, Microbiology, Neuroscience, Biotechnology, Sociology, Cancer, Space Science, Duchenne muscular dystrophy, Quality of life, Children, Adolescent, Clinical outcome assessment

العلاقة: https://figshare.com/articles/journal_contribution/Additional_file_1_of_Development_of_a_Clinical_Global_Impression_of_Change_CGI-C_and_a_Caregiver_Global_Impression_of_Change_CaGI-C_measure_for_ambulant_individuals_with_Duchenne_muscular_dystrophy/15058249Test

الإتاحة: https://doi.org/10.6084/m9.figshare.15058249.v1Test

المؤلفون: Hannah Staunton (11187400), Claire Trennery (11187403), Rob Arbuckle (7882049), Maitea Guridi (3482645), Elena Zhuravleva (264322), Pat Furlong (11187406), Ryan Fischer (6655010), Rebecca Hall (9712111)

مصطلحات موضوعية: Medicine, Microbiology, Neuroscience, Biotechnology, Sociology, Cancer, Space Science, Duchenne muscular dystrophy, Quality of life, Children, Adolescent, Clinical outcome assessment

العلاقة: https://figshare.com/articles/journal_contribution/Additional_file_3_of_Development_of_a_Clinical_Global_Impression_of_Change_CGI-C_and_a_Caregiver_Global_Impression_of_Change_CaGI-C_measure_for_ambulant_individuals_with_Duchenne_muscular_dystrophy/15058255Test

الإتاحة: https://doi.org/10.6084/m9.figshare.15058255.v2Test

المؤلفون: Hannah Staunton (11187400), Claire Trennery (11187403), Rob Arbuckle (7882049), Maitea Guridi (3482645), Elena Zhuravleva (264322), Pat Furlong (11187406), Ryan Fischer (6655010), Rebecca Hall (9712111)

مصطلحات موضوعية: Medicine, Microbiology, Neuroscience, Biotechnology, Sociology, Cancer, Space Science, Duchenne muscular dystrophy, Quality of life, Children, Adolescent, Clinical outcome assessment

العلاقة: https://figshare.com/articles/journal_contribution/Additional_file_2_of_Development_of_a_Clinical_Global_Impression_of_Change_CGI-C_and_a_Caregiver_Global_Impression_of_Change_CaGI-C_measure_for_ambulant_individuals_with_Duchenne_muscular_dystrophy/15058252Test

الإتاحة: https://doi.org/10.6084/m9.figshare.15058252.v2Test

المؤلفون: Craig M McDonald, Eduardo Marbán, Suzanne Hendrix, Nathaniel Hogan, Rachel Ruckdeschel Smith, Michelle Eagle, Richard S Finkel, Cuixia Tian, Joanne Janas, Matthew M Harmelink, Arun S Varadhachary, Michael D Taylor, Kan N Hor, Oscar H Mayer, Erik K Henricson, Pat Furlong, Deborah D Ascheim, Siegfried Rogy, Paula Williams, Linda Marbán, Russell Butterfield, Anne Connolly, Francesco Muntoni, Nanette C. Joyce, Maya Evans, Mehrdad Abedi, Prasanth Surampudi, Sanjay Jhawar, Jonathan G. Dayan, Colleen Anthonisen, Erica Goude, Alina Nicorici, Omaid Sarwary, Poonam Prasad, Jayoon Baek, Andrew Newton, Hannah Johnson, Kyle Kusmik, Lauri Filar, Angie Edmondson, Irina Rybalsky, Wendy Chouteau, Anthony F. Giordano, Aixa Rodriguez, Kristan Anderson, Germaine Wezel, Melisa Vega, Julie Duke, Jorge Collado, Matthew Civitello, Julie Wells, Erika Pyzik, Rebecca Rehborg, Michelle Brown, Jennifer Van Eyk, Russell G. Rogers

المصدر: The Lancet. 399:1049-1058

مصطلحات موضوعية: Male, Muscular Dystrophy, Duchenne, Treatment Outcome, Double-Blind Method, Cell- and Tissue-Based Therapy, Humans, General Medicine, Cardiomyopathies, Child

الوصول الحر: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::a87185d41d12b7ed0501e09dfd3109fcTest
https://doi.org/10.1016/s0140-6736Test(22)00012-5

المؤلفون: Pat Furlong, Sheila Moeschen

المصدر: Clinical OMICs. 8:24-27

مصطلحات موضوعية: General Medicine

الوصول الحر: https://explore.openaire.eu/search/publication?articleId=doi_________::b645d6366170253b7d7b99d93902cfcdTest
https://doi.org/10.1089/clinomi.08.s2.07Test

المؤلفون: Jason Harris, Mary Woolley, Alan Balch, Eric Hargis, EM Oehrlein, Pat Furlong, Eleanor M. Perfetto

المصدر: The Patient

مصطلحات موضوعية: medicine.medical_specialty, Health economics, business.industry, Public health, media_common.quotation_subject, Patient Advocacy, United States, Health administration, Nursing, Health care, medicine, Humans, Quality (business), Health Facilities, Psychology, business, Letter to the Editor, Goals, Quality of Health Care, media_common, Quality of Life Research

الوصول الحر: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::4d53eab1daecaedffeb1aeee5b480c09Test
https://doi.org/10.1007/s40271-020-00453-4Test

المؤلفون: Bray Patrick-Lake, Roberto A. Calle, Husseini K. Manji, Diane Stephenson, John A. Wagner, Peter Honig, Pat Furlong, Bruce J. Tromberg, Vadim Zipunnikov, Matthew Hotopf, Vaibhav A. Narayan, Qi Liu, Andrea Bell-Vlasov, Pam Tenaerts, Robert J. Mather, Francesca Cerreta, Ieuan Clay, Rob Goldel, Steven C. Hoffmann, Jennifer S. Goldsack, Amos Folarin, Ninad Amondikar, Jill Heemskerk, Nadir Ammour, Joseph P. Menetski, Luca Foschini, Srikanth Vasudevan, Elektra J. Papadopoulos, Tania Nayak Kamphaus, Steven Berman, Bakul Patel, Elena S. Izmailova, Peter M.A. Groenen, Christopher Leptak, Laurent Servais, Linda S. Brady, Dan Bloomfield, Abhishek Pratap, Jagdeep T. Podichetty, Xuemei Cai, Michelle Campbell, Steve Usdin, Daniel R. Karlin

المصدر: Clinical and Translational Science, Vol 14, Iss 1, Pp 94-101 (2021)
Clinical and Translational Science

مصطلحات موضوعية: Mini–Reviews, Computer science, lcsh:Public aspects of medicine, General Neuroscience, lcsh:RM1-950, Reviews, lcsh:RA1-1270, General Medicine, General Biochemistry, Genetics and Molecular Biology, Engineering management, lcsh:Therapeutics. Pharmacology, Medical product, General Pharmacology, Toxicology and Pharmaceutics, Mini–Review

الوصول الحر: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::8ace65bae56b2e7ae45f15fc2e538c2cTest
https://doi.org/10.1111/cts.12851Test