المؤلفون: Mittendorf, Kathleen F, Lewis, Hannah S, Duenas, Devan M, Eubanks, Donna J, Gilmore, Marian J, Goddard, Katrina AB, Joseph, Galen, Kauffman, Tia L, Kraft, Stephanie A, Lindberg, Nangel M, Reyes, Ana A, Shuster, Elizabeth, Syngal, Sapna, Ukaegbu, Chinedu, Zepp, Jamilyn M, Wilfond, Benjamin S, Porter, Kathryn M

المصدر: Hereditary Cancer in Clinical Practice. 20(1)

مصطلحات موضوعية: Clinical Research, Cancer, 7.1 Individual care needs, Management of diseases and conditions, Good Health and Well Being, Underserved, Hereditary cancer risk assessment, Digital health, Genetics, Oncology and Carcinogenesis, Oncology & Carcinogenesis

وصف الملف: application/pdf

الوصول الحر: https://escholarship.org/uc/item/1d10p600Test

المؤلفون: O’Daniel, Julianne M, Ackerman, Sara, Desrosiers, Lauren R, Rego, Shannon, Knight, Sara J, Mollison, Lonna, Byfield, Grace, Anderson, Katherine P, Danila, Maria I, Horowitz, Carol R, Joseph, Galen, Lamoure, Grace, Lindberg, Nangel M, McMullen, Carmit K, Mittendorf, Kathleen F, Ramos, Michelle A, Robinson, Mimsie, Sillari, Catherine, Madden, Ebony B, Group, CSER Stakeholder and Engagement Work

المصدر: Genetics in Medicine. 24(5)

مصطلحات موضوعية: Biotechnology, Genetics, Human Genome, Generic health relevance, Good Health and Well Being, Genomic Medicine, Genomics, Humans, Population Groups, Research Design, Stakeholder Participation, Clinical research, Genetic medicine, Stakeholders, Stakeholder engagement, CSER Stakeholder and Engagement Work Group, Clinical Sciences, Genetics & Heredity

وصف الملف: application/pdf

الوصول الحر: https://escholarship.org/uc/item/5z06b91zTest

المؤلفون: Lindberg, Nangel M, Gutierrez, Amanda M, Mittendorf, Kathleen F, Ramos, Michelle A, Anguiano, Beatriz, Angelo, Frank, Joseph, Galen

المصدر: Personalized Medicine. 18(05)

مصطلحات موضوعية: Pharmacology and Pharmaceutical Sciences, Biomedical and Clinical Sciences, Clinical Sciences, Genetics, Human Genome, Prevention, Biotechnology, Genomics, Hispanic or Latino, Humans, Language, Surveys and Questionnaires, Translating, cultural adaptation, genomics research, health disparities, participant materials, translation, underrepresentation, Pharmacology & Pharmacy, Clinical sciences, Pharmacology and pharmaceutical sciences

وصف الملف: application/pdf

الوصول الحر: https://escholarship.org/uc/item/0202x2p1Test

المؤلفون: Mittendorf, Kathleen F, Kauffman, Tia L, Amendola, Laura M, Anderson, Katherine P, Biesecker, Barbara B, Dorschner, Michael O, Duenas, Devan M, Eubanks, Donna J, Feigelson, Heather Spencer, Gilmore, Marian J, Hunter, Jessica Ezzell, Joseph, Galen, Kraft, Stephanie A, Lee, Sandra Soo Jin, Leo, Michael C, Liles, Elizabeth G, Lindberg, Nangel M, Muessig, Kristin R, Okuyama, Sonia, Porter, Kathryn M, Riddle, Leslie S, Rolf, Bradley A, Rope, Alan F, Zepp, Jamilyn M, Jarvik, Gail P, Wilfond, Benjamin S, Goddard, Katrina AB, team, on behalf of the CHARM study

مصطلحات موضوعية: Prevention, Health Services, Genetic Testing, Human Genome, Clinical Research, Cancer, Genetics, 7.1 Individual care needs, Management of diseases and conditions, Good Health and Well Being, Genetic Counseling, Genomics, Healthcare Disparities, Humans, Neoplasms, Genetic counseling, Hereditary cancer, Family history, Underserved populations, CHARM study team, Medical and Health Sciences, General Clinical Medicine, Public Health

وصف الملف: application/pdf

الوصول الحر: https://escholarship.org/uc/item/3mv452fnTest

المؤلفون: Kraft, Stephanie A, Porter, Kathryn M, Duenas, Devan M, Guerra, Claudia, Joseph, Galen, Lee, Sandra Soo-Jin, Shipman, Kelly J, Allen, Jake, Eubanks, Donna, Kauffman, Tia L, Lindberg, Nangel M, Anderson, Katherine, Zepp, Jamilyn M, Gilmore, Marian J, Mittendorf, Kathleen F, Shuster, Elizabeth, Muessig, Kristin R, Arnold, Briana, Goddard, Katrina AB, Wilfond, Benjamin S

المصدر: AJOB Empirical Bioethics. 12(1)

مصطلحات موضوعية: Health Services and Systems, Health Sciences, Genetics, Patient Safety, Cancer, Clinical Research, Clinical Trials and Supportive Activities, Human Genome, Quality Education, Adult, Attitude, Bioethics, Biomedical Research, Comprehension, Ethics, Research, Female, Genetic Testing, Genomics, Health Literacy, Health Services Accessibility, Humans, Informed Consent, Literacy, Male, Middle Aged, Neoplasms, Qualitative Research, Research Subjects, Risk Assessment, Surveys and Questionnaires, Young Adult, Interview, bioethics, informed consent, multimedia, qualitative research, understanding, Sociology, Applied Ethics, Applied ethics

وصف الملف: application/pdf

الوصول الحر: https://escholarship.org/uc/item/4hc9f9n4Test

المؤلفون: Guo, Boya, Knerr, Sarah, Kauffman, Tia L., Mittendorf, Kathleen F., Keast, Erin, Gilmore, Marian J., Feigelson, Heather Spencer, Lynch, Frances L., Muessig, Kristin R., Okuyama, Sonia, Zepp, Jamilyn M., Veenstra, David L., Hsu, Li, Phipps, Amanda I., Lindström, Sara, Leo, Michael C., Goddard, Katrina A. B., Wilfond, Benjamin S., Devine, Beth

المساهمون: National Human Genome Research Institute

المصدر: Cancer Medicine ; volume 12, issue 18, page 19112-19125 ; ISSN 2045-7634 2045-7634

الإتاحة: https://doi.org/10.1002/cam4.6485Test

المؤلفون: Okuyama, Sonia, White, Larissa L., Anderson, Katherine P., Medina, Elizabeth, Deutsch, Sonia, Ransom, Chelese, Jackson, Paige, Kauffman, Tia L., Mittendorf, Kathleen F., Leo, Michael C., Bulkley, Joanna E., Wilfond, Benjamin S., Goddard, Katrina AB, Feigelson, Heather Spencer

المصدر: Journal of Community Genetics ; volume 14, issue 3, page 329-336 ; ISSN 1868-6001

مصطلحات موضوعية: Genetics (clinical), Public Health, Environmental and Occupational Health, Epidemiology

الإتاحة: https://doi.org/10.1007/s12687-023-00647-xTest

المؤلفون: Gilmore, Marian J., Knerr, Sarah, Kraft, Stephanie A., Bulkley, Joanna E., Biesecker, Barbara B., Feigelson, Heather Spencer, Hunter, Jessica Ezzell, Jenkins, Charisma L., Kauffman, Tia L., Lee, Sandra Soo-Jin, Liles, Elizabeth G., Mittendorf, Kathleen F., Muessig, Kristin R., Porter, Kathryn M., Rolf, Bradley A., Rope, Alan F., Zepp, Jamilyn M., Anderson, Katherine Patrice, Devine, Beth, Joseph, Galen, Leo, Michael C., Goddard, Katrina, Wilfond, Benjamin S.

المصدر: Public Health Genomics ; volume 27, issue 1, page 16-22 ; ISSN 1662-4246 1662-8063

مصطلحات موضوعية: Genetics (clinical), Public Health, Environmental and Occupational Health

الإتاحة: https://doi.org/10.1159/000535610Test
https://karger.com/phg/article-pdf/27/1/16/4165541/000535610.pdfTest

المؤلفون: Rahman, Protiva, Ye, Cheng, Mittendorf, Kathleen F, Lenoue-Newton, Michele, Micheel, Christine, Wolber, Jan, Osterman, Travis, Fabbri, Daniel

المساهمون: GE Healthcare and Vanderbilt University Medical Center

المصدر: JAMIA Open ; volume 6, issue 1 ; ISSN 2574-2531

مصطلحات موضوعية: Health Informatics

الإتاحة: https://doi.org/10.1093/jamiaopen/ooad017Test
https://academic.oup.com/jamiaopen/article-pdf/6/1/ooad017/49725668/ooad017.pdfTest

المؤلفون: Linder, Jodell E., Allworth, Aimee, Bland, Harris T., Caraballo, Pedro J., Chisholm, Rex L., Clayton, Ellen Wright, Crosslin, David R., Dikilitas, Ozan, DiVietro, Alanna, Esplin, Edward D., Forman, Sophie, Freimuth, Robert R., Gordon, Adam S., Green, Richard, Harden, Maegan V., Holm, Ingrid A., Jarvik, Gail P., Karlson, Elizabeth W., Labrecque, Sofia, Lennon, Niall J., Limdi, Nita A., Mittendorf, Kathleen F., Murphy, Shawn N., Orlando, Lori, Prows, Cynthia A., Rasmussen, Luke V., Rasmussen-Torvik, Laura, Rowley, Robb, Sawicki, Konrad Teodor, Schmidlen, Tara, Terek, Shannon, Veenstra, David, Velez Edwards, Digna R., Absher, Devin, Abul-Husn, Noura S., Alsip, Jorge, Bangash, Hana, Beasley, Mark, Below, Jennifer E., Berner, Eta S., Booth, James, Chung, Wendy K., Cimino, James J., Connolly, John, Davis, Patrick, Devine, Beth, Fullerton, Stephanie M., Guiducci, Candace, Habrat, Melissa L., Hain, Heather

المساهمون: Cincinnati Children's Hospital Medical Center, National Human Genome Research Institute, Icahn School of Medicine at Mount Sinai, Mayo Clinic, University of Washington, Children's Hospital of Philadelphia, Vanderbilt University Medical Center, Columbia University, Northwestern University

المصدر: Genetics in Medicine ; volume 25, issue 4, page 100006 ; ISSN 1098-3600

مصطلحات موضوعية: Genetics (clinical)

الإتاحة: https://doi.org/10.1016/j.gim.2023.100006Test
https://api.elsevier.com/content/article/PII:S1098360023000023?httpAccept=text/xmlTest
https://api.elsevier.com/content/article/PII:S1098360023000023?httpAccept=text/plainTest