دورية أكاديمية
Transition of care in patients with anorectal malformation. Consensus by the ARM-net consortium
| العنوان: | Transition of care in patients with anorectal malformation. Consensus by the ARM-net consortium |
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| المؤلفون: | Giuliani, Stefano, Grano, Caterina, Aminoff, Dalia, Schwarzer, Nicole, Van De Vorle, Mariette, Cretolle, Celia, Haanen, Michel, Brisighelli, Giulia, Marzheuser, Stefanie, Connor, Martin |
| المساهمون: | Giuliani, Stefano, Grano, Caterina, Aminoff, Dalia, Schwarzer, Nicole, Van De Vorle, Mariette, Cretolle, Celia, Haanen, Michel, Brisighelli, Giulia, Marzheuser, Stefanie, Connor, Martin |
| بيانات النشر: | W.B. Saunders |
| سنة النشر: | 2017 |
| المجموعة: | Sapienza Università di Roma: CINECA IRIS |
| مصطلحات موضوعية: | adult, anorectal malformation, follow-up, imperforate anu, long-term, transition, adolescent, anal canal, europe, female, follow-up studie, human, male, rectum, transition to adult care, young adult, consensu, health status indicators |
| الوصف: | Objectives To develop the first consensus to standardize the management of patients with Anorectal Malformations (ARMs) transitioning from childhood to adulthood. Methods A dedicated task force of experts performed an extensive literature review and multiple meetings to define the most important aspects of transition of care. The findings were discussed with all ARM-net consortium members and a set of practical recommendations agreed upon at the annual meeting in 2016. Result We defined seven domains that are essential to provide an effective and practical transition process. Within each domain we have developed a set of key recommendations that are important to be considered for ARM patients entering the age of transition. Conclusions It is crucial that transition begins at an early age with regular and well-structured follow-up. Cooperation with a selected multidisciplinary team of pediatric and adult practitioners is required to prepare patients and families for effective transition to adult care and to reduce long term morbidity |
| نوع الوثيقة: | article in journal/newspaper |
| اللغة: | English |
| العلاقة: | info:eu-repo/semantics/altIdentifier/pmid/28688794; info:eu-repo/semantics/altIdentifier/wos/WOS:000415328600032; volume:52; issue:11; firstpage:1866; lastpage:1872; numberofpages:7; journal:JOURNAL OF PEDIATRIC SURGERY; http://hdl.handle.net/11573/1210332Test; info:eu-repo/semantics/altIdentifier/scopus/2-s2.0-85021801957 |
| DOI: | 10.1016/j.jpedsurg.2017.06.008 |
| الإتاحة: | https://doi.org/10.1016/j.jpedsurg.2017.06.008Test http://hdl.handle.net/11573/1210332Test |
| حقوق: | info:eu-repo/semantics/closedAccess |
| رقم الانضمام: | edsbas.7541C72D |
| قاعدة البيانات: | BASE |
| DOI: | 10.1016/j.jpedsurg.2017.06.008 |
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