التفاصيل البيبلوغرافية
| العنوان: |
APPLaUD: access for patients and participants to individual level uninterpreted genomic data |
| المؤلفون: |
Adrian Thorogood (Centre of Genomics and Policy, Department of Human Genetics, McGill University Faculty of Medicine), Jason Bobe (Icahn School of Medicine at Mount Sinai), Barbara Prainsack (Department of Political Science, Faculty of Social Sciences, University of Vienna), Anna Middleton (Society and Ethics Research, Connecting Science, Wellcome Genome Campus), Erick Scott (Icahn Institute for Genomics & Multiscale Biology), Sarah Nelson (University of Washington), Manuel Corpas (Cambridge Precision Medicine), Natasha Bonhomme (Genetic Alliance), Laura Lyman Rodriguez (National Human Genome Research Institute, National Institutes of Health, USA), Madeleine Murtagh (Newcastle University), Erika Kleiderman (Centre of Genomics and Policy, Department of Human Genetics, McGill University Faculty of Medicine) |
| المصدر: |
Human Genomics |
| بيانات النشر: |
Springer Science and Business Media LLC |
| سنة النشر: |
2018 |
| المجموعة: |
University of Vienna: Phaidra |
| مصطلحات موضوعية: |
Ethics, Law, Genomic data, Individual access, Whole genome sequencing, Direct-to-consumer, Privacy, Raw genomic data, Patient engagement, Citizen science |
| الوصف: |
The abstract is available here: https://uscholar.univie.ac.at/o:1047935Test |
| نوع الوثيقة: |
text |
| وصف الملف: |
application/pdf |
| اللغة: |
English |
| العلاقة: |
isPartOf:https://phaidra.univie.ac.at/o:243553Test[u:scholar collection]; hdl:11353/10.1047935; https://phaidra.univie.ac.at/o:1047935Test |
| DOI: |
10.1186/s40246-018-0139-5 |
| الإتاحة: |
https://doi.org/10.1186/s40246-018-0139-5Test
https://phaidra.univie.ac.at/o:1047935Test |
| حقوق: |
http://creativecommons.org/licenses/by/4.0Test/ ; © The Author(s) 2018 |
| رقم الانضمام: |
edsbas.999E5BFD |
| قاعدة البيانات: |
BASE |
