دورية أكاديمية
The lymphedema patient experience within the healthcare system: a cross-sectional epidemiologic assessment
العنوان: | The lymphedema patient experience within the healthcare system: a cross-sectional epidemiologic assessment |
---|---|
المؤلفون: | Catharine Bowman, Stanley G. Rockson |
المصدر: | Scientific Reports, Vol 14, Iss 1, Pp 1-12 (2024) |
بيانات النشر: | Nature Portfolio, 2024. |
سنة النشر: | 2024 |
المجموعة: | LCC:Medicine LCC:Science |
مصطلحات موضوعية: | Lymphedema, Lymphoedema, Lymphatic care, Healthcare delivery model, Healthcare satisfaction, Lymphatic education, Medicine, Science |
الوصف: | Abstract Lymphedema is a progressive lymphatic disease that potentiates physical and psychosocial distress. Despite its impact, patients reportedly encounter lymphatic ignorance throughout the healthcare system. This cross-sectional study aims to summarize clinical characteristics and interactions of lymphedema patients within the healthcare system. Two lymphedema patient cohorts were included: The Global Registry Analysis Cohort included lymphedema patients who contributed to an international digital lymphatic registry and the Interactions Cohort included patients who initiated a questionnaire about interactions with the medical system. The global registry was used to obtain demographic and clinical characteristics from affiliated lymphedema patients. A 23-item online questionnaire on healthcare experiences and satisfaction with lymphatic healthcare was then distributed to the Interactions Cohort. Complete responses were obtained from 2474 participants. Participants were a mean age of 57.5 ± 16.1 years and 51.4% had a cancer history. Participants reported substantial delays in diagnosis and treatment. Cancer-related and non-cancer-related lymphedema patients reported similar levels of perceived physician disinterest in their lymphedema; however, non-cancer-related lymphedema patients reported more care dissatisfaction. Ultimately, patients continue to face delays in lymphedema diagnosis and treatment. We developed an evidence-based model highlighting areas of reform needed to improve lymphatic education and healthcare. |
نوع الوثيقة: | article |
وصف الملف: | electronic resource |
اللغة: | English |
تدمد: | 2045-2322 |
العلاقة: | https://doaj.org/toc/2045-2322Test |
DOI: | 10.1038/s41598-024-63145-1 |
الوصول الحر: | https://doaj.org/article/4a291cd58c3b446abab0ac8ecf092164Test |
رقم الانضمام: | edsdoj.4a291cd58c3b446abab0ac8ecf092164 |
قاعدة البيانات: | Directory of Open Access Journals |
تدمد: | 20452322 |
---|---|
DOI: | 10.1038/s41598-024-63145-1 |