المؤلفون: Avery Adams, Jerome Atutornu, Hugbaad Aidid, Julian Borra, Daniela Boraschi, Claudette Burch, Tuba Bircan, Anna Dickinson, Alessia Costa, Catherine Galloway, Ann Enticknap, Emma Garlick, Francesca Gale, Sasha Henriques, Em Haydon, Richard Milne, Marion Mitchell, Katherine I Morley, Jack Monaghan, Laura Olivares Boldu, Milena Muella Santos, Kate Orviss, Fifi Olumogba, Christine Patch, Vivienne Parry, Sam Shingles, Lauren Robarts, Ben Tomlin, Cindy Smidt, Sarah Parkinson, Anna Middleton

المصدر: Wellcome Open Research, Vol 8 (2023)

مصطلحات موضوعية: Genetics, genomics, public engagement, Responsible Research and Innovation, inclusivity, participation, eng, Medicine, Science

وصف الملف: electronic resource

العلاقة: https://wellcomeopenresearch.org/articles/8-310/v2Test; https://doaj.org/toc/2398-502XTest

الوصول الحر: https://doaj.org/article/31d170914e3e4fdaa6f2fafdeedee373Test

المؤلفون: Richard Milne, Katherine I. Morley, Mohamed A. Almarri, Shamim Anwer, Jerome Atutornu, Elena E. Baranova, Paul Bevan, Maria Cerezo, Yali Cong, Alessia Costa, Christine Critchley, Josepine Fernow, Peter Goodhand, Qurratulain Hasan, Aiko Hibino, Gry Houeland, Heidi C. Howard, S. Zakir Hussain, Charlotta Ingvoldstad Malmgren, Vera L. Izhevskaya, Aleksandra Jędrzejak, Cao Jinhong, Megumi Kimura, Erika Kleiderman, Brandi Leach, Keying Liu, Deborah Mascalzoni, Álvaro Mendes, Jusaku Minari, Dianne Nicol, Emilia Niemiec, Christine Patch, Jack Pollard, Barbara Prainsack, Marie Rivière, Lauren Robarts, Jonathan Roberts, Virginia Romano, Haytham A. Sheerah, James Smith, Alexandra Soulier, Claire Steed, Vigdis Stefànsdóttir, Cornelia Tandre, Adrian Thorogood, Torsten H. Voigt, Nan Wang, Anne V. West, Go Yoshizawa, Anna Middleton

المصدر: Genome Medicine, Vol 13, Iss 1, Pp 1-12 (2021)

مصطلحات موضوعية: Medicine, Genetics, QH426-470

وصف الملف: electronic resource

العلاقة: https://doaj.org/toc/1756-994XTest

الوصول الحر: https://doaj.org/article/abf880e667a640afbd423e6e9e373400Test

المؤلفون: Richard Milne (10875017), Katherine I. Morley (10875020), Mohamed A. Almarri (6038108), Shamim Anwer (10875023), Jerome Atutornu (10875026), Elena E. Baranova (10875029), Paul Bevan (10875032), Maria Cerezo (4858756), Yali Cong (10744958), Alessia Costa (10875035), Christine Critchley (644098), Josepine Fernow (10875038), Peter Goodhand (6157697), Qurratulain Hasan (7947497), Aiko Hibino (10875041), Gry Houeland (10875044), Heidi C. Howard (10875047), S. Zakir Hussain (10875050), Charlotta Ingvoldstad Malmgren (10875053), Vera L. Izhevskaya (10875056), Aleksandra Jędrzejak (10875059), Cao Jinhong (10875062), Megumi Kimura (6111824), Erika Kleiderman (5003609), Brandi Leach (10875065), Keying Liu (10875068), Deborah Mascalzoni (76505), Álvaro Mendes (10875071), Jusaku Minari (2236939), Dianne Nicol (5624477), Emilia Niemiec (8230986), Christine Patch (10875074), Jack Pollard (463829), Barbara Prainsack (360706), Marie Rivière (10875077), Lauren Robarts (10875080), Jonathan Roberts (190787), Virginia Romano (10875083), Haytham A. Sheerah (10098594), James Smith (51839), Alexandra Soulier (8568303), Claire Steed (10875086), Vigdis Stefànsdóttir (10875089), Cornelia Tandre (10875092), Adrian Thorogood (5316602), Torsten H. Voigt (10875095), Nan Wang (21935), Anne V. West (10875098), Go Yoshizawa (3412559), Anna Middleton (4046554)

مصطلحات موضوعية: Biotechnology, Science Policy, genomic data, UK, 22 countries Abstract Background Pu., DNA, increase trust

العلاقة: https://figshare.com/articles/journal_contribution/Additional_file_1_of_Demonstrating_trustworthiness_when_collecting_and_sharing_genomic_data_public_views_across_22_countries/14677154Test

الإتاحة: https://doi.org/10.6084/m9.figshare.14677154.v1Test

المؤلفون: Anna, Middleton, Christine, Patch, Jonathan, Roberts, Richard, Milne, Alessia, Costa, Lauren, Robarts, Jerome, Atutornu

مصطلحات موضوعية: Genetic Privacy, Genetics, Medical, Health Personnel, Humans, Informed Consent, United Kingdom

وصف الملف: Print-Electronic; application/pdf

العلاقة: https://www.repository.cam.ac.uk/handle/1810/307109Test

الإتاحة: https://doi.org/10.17863/CAM.54202Test
https://www.repository.cam.ac.uk/handle/1810/307109Test

المؤلفون: Gabriela Chavarria-Soley, Fernanda Francis-Cartín, Gabriel Macaya, Ronald Alfaro, Lauren Robarts, Anna Middleton, Henriette Raventos

المصدر: European Neuropsychopharmacology. 63:e78-e79

مصطلحات موضوعية: Pharmacology, Psychiatry and Mental health, Neurology, Pharmacology (medical), Neurology (clinical), Biological Psychiatry

الوصول الحر: https://explore.openaire.eu/search/publication?articleId=doi_________::505f0aa449dbaaa21d3c0ea9cd7b174fTest
https://doi.org/10.1016/j.euroneuro.2022.07.149Test

المؤلفون: Richard Milne, Katherine I. Morley, Mohamed A. Almarri, Jerome Atutornu, Elena E. Baranova, Paul Bevan, Maria Cerezo, Yali Cong, Alessia Costa, Carolina Feijao, Cláudia de Freitas, Josepine Fernow, Peter Goodhand, Qurratulain Hasan, Aiko Hibino, Gry Houeland, Heidi C. Howard, Zakir Hussain Sheikh, Charlotta Ingvoldstad Malmgren, Vera L. Izhevskaya, Aleksandra Jędrzejak, Cao Jinhong, Megumi Kimura, Erika Kleiderman, Keying Liu, Deborah Mascalzoni, Álvaro Mendes, Jusaku Minari, Dianne Nicol, Emilia Niemiec, Christine Patch, Barbara Prainsack, Marie Rivière, Lauren Robarts, Jonathan Roberts, Virginia Romano, Haytham A. Sheerah, James Smith, Alexandra Soulier, Claire Steed, Vigdis Stefànsdóttir, Cornelia Tandre, Adrian Thorogood, Torsten H. Voigt, Nan Wang, Go Yoshizawa, Anna Middleton

المصدر: Genetics in Medicine

مصطلحات موضوعية: Hälso- och sjukvårdsorganisation, hälsopolitik och hälsoekonomi, DNA, Intention, Genomics, Health Care Service and Management, Health Policy and Services and Health Economy, Return of results, United States, Attitude, Surveys and Questionnaires, Attitudes, Data donation, International, Humans, International research results, Genetics (clinical)

وصف الملف: application/pdf

الوصول الحر: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::8a5c870a4eb863859c89f39ae03fbc06Test
http://urn.kb.se/resolve?urn=urn:nbn:se:uu:diva-468511Test

المؤلفون: Qurratulain Hasan, Heidi C. Howard, Richard Milne, Lauren Robarts, Jack Pollard, Vigdis Stefansdottir, Vera L. Izhevskaya, Cornelia Tandre, Alexandra Soulier, Jerome Atutornu, Virginia Romano, Claire Steed, Megumi Kimura, Jonathan Roberts, Marie Rivière, Peter Goodhand, A. P. Costa, Charlotta Ingvoldstad Malmgren, Go Yoshizawa, Adrian Thorogood, Josepine Fernow, Aleksandra Jędrzejak, Brandi Leach, Torsten Heinemann, Deborah Mascalzoni, Haytham A. Sheerah, Christine Critchley, Anne V. West, Paul Bevan, Shamim Anwer, Emilia Niemiec, Maria Cerezo, Mohamed A. Almarri, Elena E. Baranova, Yali Cong, Keying Liu, Nan Wang, Erika Kleiderman, Christine Patch, Dianne Nicol, Aiko Hibino, Álvaro Mendes, Katherine I. Morley, Cao Jinhong, Gry Houeland, Jusaku Minari, S. Zakir Hussain, James Smith, Anna Middleton, Barbara Prainsack

المساهمون: Institut d'Histoire et de Philosophie des Sciences et des Techniques (IHPST), Université Paris 1 Panthéon-Sorbonne (UP1)-Centre National de la Recherche Scientifique (CNRS), DILTEC - Didactique des langues, des textes et des cultures - EA 2288 (DILTEC), Université Sorbonne Nouvelle - Paris 3, Milne, Richard [0000-0002-8770-2384], Apollo - University of Cambridge Repository

المصدر: Genome Medicine
Genome Medicine, BioMed Central, 2021, 13, pp.92. ⟨10.1186/s13073-021-00903-0⟩
Genome Medicine, BioMed Central, 2021, 13 (1), ⟨10.1186/s13073-021-00903-0⟩
Genome medicine 13, 92 (2021). doi:10.1186/s13073-021-00903-0
Genome Medicine, Vol 13, Iss 1, Pp 1-12 (2021)

مصطلحات موضوعية: Hälso- och sjukvårdsorganisation, hälsopolitik och hälsoekonomi, 0301 basic medicine, International surveys, QH426-470, 030105 genetics & heredity, Trust, Online Systems, [SHS.HISPHILSO]Humanities and Social Sciences/History, Philosophy and Sociology of Sciences, 03 medical and health sciences, Surveys and Questionnaires, Genomic data, Genetics, Humans, Sanctions, ddc:610, Public value, Marketing, Molecular Biology, Genetics (clinical), Trustworthiness, Medicinsk genetik, [SDV.GEN]Life Sciences [q-bio]/Genetics, Relative value, [SHS.SOCIO]Humanities and Social Sciences/Sociology, Information Dissemination, Public trust, Research, Genomics, Health Care Service and Management, Health Policy and Services and Health Economy, Transparency (behavior), Genomic research, [SDV.ETH]Life Sciences [q-bio]/Ethics, 3. Good health, Data sharing, 030104 developmental biology, Data access, [SDV.GEN.GH]Life Sciences [q-bio]/Genetics/Human genetics, Ranking, Medicine, Molecular Medicine, Business, Medical Genetics

وصف الملف: application/pdf; application/zip; text/xml

الوصول الحر: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::624a25559396cd2fb1595d4e9b9e3a32Test
https://doi.org/10.1186/s13073-021-00903-0Test

المؤلفون: Alejandro Ávila-Aguirre, Lauren Robarts, Fabiola Jimenez-Gonzalez, Fernanda Francis-Cartin, Maria Jose Castro-Gomez, Anna Middleton, Henriette Raventós, Gabriela Chavarria-Soley

المساهمون: Chavarria-Soley, Gabriela [0000-0002-7153-4072], Francis-Cartin, Fernanda [0000-0002-1756-8001], Jimenez-Gonzalez, Fabiola [0000-0001-6504-9153], Ávila-Aguirre, Alejandro [0000-0001-7171-6629], Castro-Gomez, Maria Jose [0000-0002-5599-0027], Robarts, Lauren [0000-0003-3893-7512], Middleton, Anna [0000-0003-3103-8098], Raventós, Henriette [0000-0001-9423-8308], Apollo - University of Cambridge Repository

المصدر: Personalized Medicine

مصطلحات موضوعية: Adult, Costa Rica, Male, medicine.medical_specialty, Sociodemographic Factors, data sharing, 03 medical and health sciences, Life insurance, medicine, genomics, Humans, survey, 030304 developmental biology, Biological Specimen Banks, Pharmacology, 0303 health sciences, attitudes, Information Dissemination, 030305 genetics & heredity, donation, Genetic data, General Medicine, DNA, Middle Aged, 3. Good health, Data sharing, Attitude, Donation, Family medicine, Molecular Medicine, Female, Psychology, Medical doctor, Confidentiality, Research Article

وصف الملف: application/pdf; application/zip; text/xml

الوصول الحر: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::22a8c44c969a13b00093ff0b230bb397Test
https://www.repository.cam.ac.uk/handle/1810/318931Test

المؤلفون: Vera L. Izhevskaya, Gry Houeland, Aleksandra Jędrzejak, Dianne Nicol, Deborah Mascalzoni, Jerome Atutornu, Josepine Fernow, Jack Pollard, Alexandra Soulier, Aiko Hibino, Christine Critchley, Jusaku Minari, Erika Kleiderman, Lauren Robarts, Keying Liu, James Smith, Álvaro Mendes, Adrian Thorogood, Shamim Anwer, Heidi Carmen Howard, Cornelia Tandre, Katherine I. Morley, Virginia Romano, Brandi Leach, Torsten Heinemann, Charlotta Ingvoldstad Malmgren, Paul Bevan, Nan Wang, Anne V. West, Jonathan Roberts, Cao Jinhong, Anna Middleton, Vigdis Stefansdottir, Barbara Prainsack, Christine Patch, Peter Goodhand, Haytham A. Sheerah, Go Yoshizawa, S. Zakir Hussain, Mohamed A. Almarri, Yali Cong, Claire Steed, Emilia Niemiec, Qurratulain Hasan, Maria Cerezo, Richard Milne, Elena E. Baranova, Marie Rivière, Megumi Kimura

المساهمون: DILTEC - Didactique des langues, des textes et des cultures - EA 2288 (DILTEC), Université Sorbonne Nouvelle - Paris 3

المصدر: American Journal of Human Genetics
American Journal of Human Genetics, Elsevier (Cell Press), 2020, ⟨10.1016/j.ajhg.2020.08.023⟩
The American journal of human genetics 107(4), 743-752 (2020). doi:10.1016/j.ajhg.2020.08.023

مصطلحات موضوعية: 0301 basic medicine, Male, Health Knowledge, Attitudes, Practice, data sharing, health data, Disease, 030105 genetics & heredity, Health data, [SHS.HISPHILSO]Humanities and Social Sciences/History, Philosophy and Sociology of Sciences, data donation, Surveys and Questionnaires, Genetics (clinical), media_common, [SHS.SOCIO]Humanities and Social Sciences/Sociology, attitudes, public, High-Throughput Nucleotide Sequencing, Genomics, global, Europe, Donation, Female, Public Health, Psychology, Systemvetenskap, informationssystem och informatik med samhällsvetenskaplig inriktning, Hälso- och sjukvårdsorganisation, hälsopolitik och hälsoekonomi, Adult, Asia, media_common.quotation_subject, Internet privacy, Information Systems, Social aspects, Trust, Article, 03 medical and health sciences, Perception, ddc:570, Genetics, Genomic data, Humans, survey, Global perceptions, [SDV.GEN]Life Sciences [q-bio]/Genetics, business.industry, Genome, Human, Information Dissemination, Perspective (graphical), genomic data sharing, Australia, Health Care Service and Management, Health Policy and Services and Health Economy, Sequence Analysis, DNA, [SDV.ETH]Life Sciences [q-bio]/Ethics, Data sharing, Public perceptions, 030104 developmental biology, Attitudes, Public trust, genomic data, Americas, business, Medical ethics

وصف الملف: application/pdf

الوصول الحر: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::072c94135fd2d8d37b9ee4804a4866efTest
https://hdl.handle.net/11250/2760207Test

المؤلفون: Anna, Middleton, Christine, Patch, Jonathan, Roberts, Richard, Milne, Alessia, Costa, Lauren, Robarts, Jerome, Atutornu

مصطلحات موضوعية: Viewpoint, /692/700/3935, /706/689

وصف الملف: text/xml; application/zip; application/pdf

العلاقة: https://www.repository.cam.ac.uk/handle/1810/317416Test

الإتاحة: https://doi.org/10.17863/CAM.64529Test
https://www.repository.cam.ac.uk/handle/1810/317416Test