المؤلفون: Holly Walton, Pei Li Ng, Amy Simpson, Lara Bloom, Lyn S. Chitty, Naomi J. Fulop, Amy Hunter, Jennifer Jones, Joe Kai, Larissa Kerecuk, Maria Kokocinska, Kerry Leeson-Beevers, Sharon Parkes, Angus I. G. Ramsay, Alastair Sutcliffe, Christine Taylor, Stephen Morris

المصدر: Orphanet Journal of Rare Diseases, Vol 18, Iss 1, Pp 1-22 (2023)

مصطلحات موضوعية: Rare conditions, Rare diseases, Care coordination, Survey, Care plan, Care coordinator, Medicine

وصف الملف: electronic resource

العلاقة: https://doaj.org/toc/1750-1172Test

الوصول الحر: https://doaj.org/article/57c13eae22f440109398dc2f30c2fa96Test

المؤلفون: Holly Walton, Amy Simpson, Angus I. G. Ramsay, Emma Hudson, Amy Hunter, Jennifer Jones, Pei Li Ng, Kerry Leeson-Beevers, Lara Bloom, Joe Kai, Larissa Kerecuk, Maria Kokocinska, Alastair G. Sutcliffe, Stephen Morris, Naomi J. Fulop

المصدر: Orphanet Journal of Rare Diseases, Vol 17, Iss 1, Pp 1-25 (2022)

مصطلحات موضوعية: Rare conditions, Rare diseases, Care coordination, Taxonomy, Qualitative, Health care organisation, Medicine

وصف الملف: electronic resource

العلاقة: https://doaj.org/toc/1750-1172Test

الوصول الحر: https://doaj.org/article/da4b5f2da9644371b51dbfe39af368ffTest

المؤلفون: Holly Walton, Amy Simpson, Angus I. G. Ramsay, Amy Hunter, Jennifer Jones, Pei Li Ng, Kerry Leeson-Beevers, Lara Bloom, Joe Kai, Maria Kokocinska, Alastair G. Sutcliffe, Stephen Morris, Naomi J. Fulop

المصدر: Orphanet Journal of Rare Diseases, Vol 17, Iss 1, Pp 1-24 (2022)

مصطلحات موضوعية: Care coordination, Rare conditions, Rare diseases, Qualitative, Health care organisation, Medicine

وصف الملف: electronic resource

العلاقة: https://doaj.org/toc/1750-1172Test

الوصول الحر: https://doaj.org/article/6d5d8c73433b4495ab02be849911bfc5Test

المؤلفون: Amy Simpson, Lara Bloom, Naomi J. Fulop, Emma Hudson, Kerry Leeson-Beevers, Stephen Morris, Angus I. G. Ramsay, Alastair G. Sutcliffe, Holly Walton, Amy Hunter

المصدر: Orphanet Journal of Rare Diseases, Vol 16, Iss 1, Pp 1-12 (2021)

مصطلحات موضوعية: Care coordination, Financial impact, Psychosocial impact, Undiagnosed conditions, Patient experience, Carer experience, Medicine

وصف الملف: electronic resource

العلاقة: https://doaj.org/toc/1750-1172Test

الوصول الحر: https://doaj.org/article/8ca52b90838840d1864b7fa648f6e48cTest

المؤلفون: Stephen Morris, Emma Hudson, Lara Bloom, Lyn S Chitty, Naomi J Fulop, Amy Hunter, Jennifer Jones, Joe Kai, Larissa Kerecuk, Maria Kokocinska, Kerry Leeson-Beevers, Pei Li Ng, Sharon Parkes, Angus IG Ramsay, Amy Simpson, Alastair Sutcliffe, Christine Taylor, Holly Walton

المصدر: Health and Social Care Delivery Research, Vol 10, Iss 5 (2022)

مصطلحات موضوعية: co-ordinated care, care co-ordination, rare conditions, rare diseases, scoping review, survey, discrete-choice experiment, taxonomy, care co-ordinator, specialist centre, care plan, Medicine (General), R5-920, Public aspects of medicine, RA1-1270

وصف الملف: electronic resource

العلاقة: https://doaj.org/toc/2755-0060Test; https://doaj.org/toc/2755-0079Test

الوصول الحر: https://doaj.org/article/5f3de3f1f6304c148057ace8d5f52d24Test

المؤلفون: Anita Louie, Catherine Meyerle, Clair Francomano, Divya Srikumaran, Farhan Merali, Jefferson J. Doyle, Kraig Bower, Lara Bloom, Michael V. Boland, Nicholas Mahoney, Yassine Daoud, Eric L. Singman

المصدر: Molecular Genetics & Genomic Medicine, Vol 8, Iss 4, Pp n/a-n/a (2020)

مصطلحات موضوعية: complication, Ehlers‒Danlos, eye, ophthalmology, surgery, Genetics, QH426-470

وصف الملف: electronic resource

العلاقة: https://doaj.org/toc/2324-9269Test

الوصول الحر: https://doaj.org/article/f9f9a8f3b7174e49a6e1b1458845c353Test

المؤلفون: Amy Simpson (10127935), Lara Bloom (10127938), Naomi J. Fulop (10127941), Emma Hudson (4641847), Kerry Leeson-Beevers (10127944), Stephen Morris (324510), Angus I. G. Ramsay (10127947), Alastair G. Sutcliffe (10127950), Holly Walton (8969093), Amy Hunter (10127953)

مصطلحات موضوعية: Medicine, Biotechnology, Sociology, Science Policy, Mental Health, Care coordination, Financial impact, Psychosocial impact, Undiagnosed conditions, Patient experience, Carer experience, Care coordinators, Multi-disciplinary clinics, Specialist care, Care plans

العلاقة: https://figshare.com/articles/journal_contribution/Additional_file_1_of_How_are_patients_with_rare_diseases_and_their_carers_in_the_UK_impacted_by_the_way_care_is_coordinated_An_exploratory_qualitative_interview_study/13889491Test

الإتاحة: https://doi.org/10.6084/m9.figshare.13889491.v1Test

المؤلفون: Robert C.F. Pena, Marion A. Hofmann Bowman, Myra Ahmad, Julie Pham, Eva Kline-Rogers, Melanie J. Case, Jenney Lee, Kim Eagle, Novelett E. Cotter, Carmen C. David, Mark Fasano, Richard Goldenberg, Jake Howitt, Timo T. Söderlund, Debra Trotter, Asaf Rabin, Mattie Boehler-Tatman, Melissa L. Russo, Laura Marie Drudi, Laura L. Marks, Maisoon D. Yousif, Tabea Hoffstaetter, Ella Taubenfeld, Sreekanth Vemulapalli, Chrisanne S. Campos, Lindsey Rusche, Firas F. Mussa, Gretchen MacCarrick, Earl Goldsborough, Christeen Samuel, Lillian Xu, Nicolas J. Mouawad, Eanas S. Yassa, Xiaoyi Teng, Amani Politano, Jesse Teindl, Lara Bloom, Rebecca Gluck, Meredith Ford O'Neal, Josephine Grima, Eileen Masciale, Takeyoshi Ota, Katelyn Wright, Alan J. Hakim, Gareth Owens, George J. Arnaoutakis, Dejah Judelson, Mario D'Oria, Lurdes del Rio-Sola, Mark Ajalat, Marvin Chau, Stephanie D. Talutis, Karen Woo, Max V. Wohlauer, Jeniann A. Yi, Kim A. Eagle, Hyein Kim, Claudine Henoud, Scott Damrauer, Emilia Krol, Rana O. Afifi, Alana C. Cecchi, Madeline Drake, Anthony Estrera, Avery M Hebert, Dianna M. Milewicz, Siddharth K. Prakash, Aaron W. Roberts, Harleen Sandhu, Akili Smith-Washington, Akiko Tanaka, Jacob Watson, Catherine M. Albright, Christopher R. Burke, Peter H. Byers, L'Oreal Kennedy, Sarah O. Lawrence, Jenney R. Lee, Jonathan Medina, Thamanna Nishath, Courtney Segal, Sherene Shalhub, Michael Soto, Linell Catalan, Megan Patterson, Nicole Ilonzo

المصدر: Seminars in Vascular Surgery. 35:16-34

مصطلحات موضوعية: Aortic Aneurysm, Thoracic, Humans, Surgery, Cardiology and Cardiovascular Medicine, Aortic Aneurysm, Abdominal

الوصول الحر: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::3ac464a99f8688931deda71a6e75c149Test
https://doi.org/10.1053/j.semvascsurg.2022.02.007Test

المؤلفون: Melissa Russo, Mattie Boehler-Tatman, Catherine Albright, Carmen David, L'Oreal Kennedy, Aaron W. Roberts, Sherene Shalhub, Rana Afifi, Melanie Case, Novelett E. Cotter, Carmen C. David, Mark Fasano, Richard Goldenberg, Jake Howitt, Timo T. Söderlund, Debra Trotter, Asaf Rabin, Melissa L. Russo, Laura Marie Drudi, Laura L. Marks, Maisoon D. Yousif, Tabea Hoffstaetter, Ella Taubenfeld, Sreekanth Vemulapalli, Chrisanne S. Campos, Lindsey Rusche, Robert C.F. Pena, Firas F. Mussa, Gretchen MacCarrick, Earl Goldsborough, Christeen Samuel, Lillian Xu, Nicolas J. Mouawad, Eanas S. Yassa, Xiaoyi Teng, Amani Politano, Jesse Teindl, Lara Bloom, Rebecca Gluck, Meredith Ford O'Neal, Josephine Grima, Eileen Masciale, Takeyoshi Ota, Katelyn Wright, Alan J. Hakim, Gareth Owens, George J. Arnaoutakis, Dejah Judelson, Mario D'Oria, Lurdes del Rio-Sola, Mark Ajalat, Marvin Chau, Stephanie D. Talutis, Karen Woo, Max V. Wohlauer, JeniannA. Yi, Kim A. Eagle, Marion A. Hofmann Bowman, Eva Kline-Rogers MS, Hyein Kim, Claudine Henoud, Scott Damrauer, Emilia Krol, Rana O. Afifi, Alana C. Cecchi, Madeline Drake, Anthony Estrera, Avery M Hebert, Dianna M. Milewicz, Siddharth K. Prakash, Harleen Sandhu, Akili Smith-Washington, Akiko Tanaka, Jacob Watson, Myra Ahmad, Catherine M. Albright, Christopher R. Burke, Peter H. Byers, Sarah O. Lawrence, Jenney R. Lee, Jonathan Medina, Thamanna Nishath, Julie Pham, Courtney Segal, Michael Soto, Linell Catalan, Megan Patterson, Nicole Ilonzo

المصدر: Seminars in Vascular Surgery. 35:60-68

مصطلحات موضوعية: Aortic Dissection, Pregnancy, Risk Factors, Postpartum Period, Humans, Multicenter Studies as Topic, Female, Surgery, Cardiology and Cardiovascular Medicine

الوصول الحر: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::70e3a5d8ff0a0d7f6db16fa03328aaaeTest
https://doi.org/10.1053/j.semvascsurg.2022.02.010Test

المؤلفون: Thamanna Nishath, Katie Wright, Christopher R. Burke, Xiaoyi Teng, Novelett Cotter, Jeniann A. Yi, Laura M. Drudi, Melanie Case, Novelett E. Cotter, Carmen C. David, Mark Fasano, Richard Goldenberg, Jake Howitt, Timo T. Söderlund, Debra Trotter, Asaf Rabin, Mattie Boehler-Tatman, Melissa L. Russo, Laura Marie Drudi, Laura L. Marks, Maisoon D. Yousif, Tabea Hoffstaetter, Ella Taubenfeld, Sreekanth Vemulapalli, Chrisanne S. Campos, Lindsey Rusche, Robert C.F. Pena, Firas F. Mussa, Gretchen MacCarrick, Earl Goldsborough, Christeen Samuel, Lillian Xu, Nicolas J. Mouawad, Eanas S. Yassa, Amani Politano, Jesse Teindl, Lara Bloom, Rebecca Gluck, Meredith Ford O'Neal, Josephine Grima, Eileen Masciale, Takeyoshi Ota, Katelyn Wright, Alan J. Hakim, Gareth Owens, George J. Arnaoutakis, Dejah Judelson, Mario D'Oria, Lurdes del Rio-Sola, Mark Ajalat, Marvin Chau, Stephanie D. Talutis, Karen Woo, Max V. Wohlauer, JeniannA. Yi, Kim A. Eagle, Marion A. Hofmann Bowman, Eva Kline-Rogers MS, Hyein Kim, Claudine Henoud, Scott Damrauer, Emilia Krol, Rana O. Afifi, Alana C. Cecchi, Madeline Drake, Anthony Estrera, Avery M Hebert, Dianna M. Milewicz, Siddharth K. Prakash, Aaron W. Roberts, Harleen Sandhu, Akili Smith-Washington, Akiko Tanaka, Jacob Watson, Myra Ahmad, Catherine M. Albright, Peter H. Byers, L'Oreal Kennedy, Sarah O. Lawrence, Jenney R. Lee, Jonathan Medina, Julie Pham, Courtney Segal, Sherene Shalhub, Michael Soto, Linell Catalan, Megan Patterson, Nicole Ilonzo

المصدر: Seminars in Vascular Surgery. 35:43-50

مصطلحات موضوعية: Aortic Dissection, COVID-19, Humans, Surgery, Cardiology and Cardiovascular Medicine, Pandemics, Telemedicine, Specialties, Surgical

الوصول الحر: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::229ac0eeb82134303074e683c3635cd4Test
https://doi.org/10.1053/j.semvascsurg.2022.02.001Test