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المؤلفون: Michelle A, Farrar, Didu, Kariyawasam, Sarah, Grattan, Klair, Bayley, Mark, Davis, Sandra, Holland, Leigh B, Waddel, Kristi, Jones, Michelle, Lorentzos, Anja, Ravine, Tiffany, Wotton, Veronica, Wiley
المصدر: Journal of neuromuscular diseases.
الوصول الحر: https://explore.openaire.eu/search/publication?articleId=pmid________::38f9bf48b34f13c90272a3f368fb956dTest
https://pubmed.ncbi.nlm.nih.gov/36373292Test -
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المؤلفون: Stephanie Parkinson, Maina P. Kava, Cara Schofield, Donna Cross, Klair Bayley, Peter Jacoby, Odette Gaynor, Jenny Downs, Damian Clark, Susan Morris, Kerry Evans, Anita Cairns, Monique M. Ryan, Linda Chiu, Nitamarie Vorster, Aris Siafarikas
المصدر: Journal of Paediatrics and Child Health. 56:1419-1425
مصطلحات موضوعية: Parents, medicine.medical_specialty, Adolescent, Duchenne muscular dystrophy, Walking, Personal Adjustment, 03 medical and health sciences, 0302 clinical medicine, Wheelchair, 030225 pediatrics, Intervention (counseling), medicine, Humans, 030212 general & internal medicine, Child, business.industry, medicine.disease, Mental health, Confidence interval, Muscular Dystrophy, Duchenne, medicine.anatomical_structure, Wheelchairs, Joint pain, Standing Position, Pediatrics, Perinatology and Child Health, Physical therapy, medicine.symptom, Ankle, business
الوصول الحر: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::4e3d558be118fd7c1119d26c44730e2cTest
https://doi.org/10.1111/jpc.14963Test -
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المؤلفون: Philip A. Powell, Karen Facey, J. Godfrey, Donna Rowen, Jill Carlton, Klair Bayley, John Brazier, F. Chandler, Emily Crossley
المصدر: Medical Decision Making
Powell, P A, Carlton, J, Rowen, D, Brazier, J, Facey, K, Bayley, K, Chandler, F, Godfrey, J & Crossley, E 2021, ' Measuring What Matters : Little Evidence Supporting the Content Validity of EQ-5D in People with Duchenne Muscular Dystrophy and Their Caregivers ', Medical Decision Making, pp. 272989X211062237 . https://doi.org/10.1177/0272989X211062237Testمصطلحات موضوعية: Adult, Psychometrics, business.industry, Health Status, Health Policy, Duchenne muscular dystrophy, medicine.disease, Muscular Dystrophy, Duchenne, Cross-Sectional Studies, Caregivers, EQ-5D, Patient-Centered Care, Surveys and Questionnaires, Quality of Life, Content validity, Humans, Medicine, Letters to the Editor, Child, business, Clinical psychology
وصف الملف: application/pdf
الوصول الحر: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::21d462da6924a4b5eb81581d62032b25Test
https://doi.org/10.1177/0272989x211062237Test -
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المؤلفون: Nada Murphy, Nitamarie Vorster, Peter Jacoby, Klair Bayley, Janine Anderson, Anita Cairns, Linda Chiu, Monique M. Ryan, Jenny Downs, Kerry Evans, Donna Cross, Stephanie Parkinson, Peter W Rowe, Odette Gaynor, Damian Clarke, Maina P. Kava, Aris Siafarikas
المصدر: Neuromuscular Disorders. 29:221-230
مصطلحات موضوعية: Male, Parents, 0301 basic medicine, medicine.medical_specialty, Adolescent, Duchenne muscular dystrophy, Grounded theory, 03 medical and health sciences, 0302 clinical medicine, Wheelchair, Physical medicine and rehabilitation, Quality of life (healthcare), medicine, Humans, Child, Genetics (clinical), Motor skill, Muscle Weakness, Community Participation, Muscle weakness, Neuromuscular Diseases, Self-Help Devices, medicine.disease, Muscular Dystrophy, Duchenne, 030104 developmental biology, Wheelchairs, Neurology, Pediatrics, Perinatology and Child Health, Female, Neurology (clinical), Thematic analysis, medicine.symptom, Psychology, 030217 neurology & neurosurgery, Qualitative research
الوصول الحر: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::9430e2d0547312bb3e7ee0ebb0cb4d5eTest
https://doi.org/10.1016/j.nmd.2019.01.010Test -
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المؤلفون: H. Young, J. Sodhi, M. McGuire, Jenny Downs, Cara Schofield, M. Kiefer, Kiah Evans, Klair Bayley, Nitamarie Vorster, K. Carroll, Paula Bray, S. G. Paguinto, E. Townsend
المصدر: Disability and rehabilitation. 44(10)
مصطلحات موضوعية: 030506 rehabilitation, medicine.medical_specialty, Contracture, Adolescent, Delphi Technique, medicine.medical_treatment, Control (management), Delphi method, 03 medical and health sciences, 0302 clinical medicine, Wheelchair, International Classification of Functioning, Disability and Health, medicine, Humans, Medical prescription, Child, Rehabilitation, Durable medical equipment, Muscular Dystrophy, Duchenne, Prescriptions, Wheelchairs, Scale (social sciences), Standing Position, Physical therapy, 0305 other medical science, Psychology, 030217 neurology & neurosurgery
الوصول الحر: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::d0c93e6b822aa1be2867e8da2186d9e9Test
https://pubmed.ncbi.nlm.nih.gov/32878485Test -
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المؤلفون: Helen Leonard, Klair Bayley, Nigel G. Laing, Elizabeth Geelhoed, Lucinda J. Teoh
المصدر: Muscle & Nerve. 53:877-884
مصطلحات موضوعية: Gerontology, Physiology, Total cost, business.industry, Cross-sectional study, Duchenne muscular dystrophy, Retrospective cohort study, medicine.disease, 03 medical and health sciences, Cellular and Molecular Neuroscience, 0302 clinical medicine, 030225 pediatrics, Physiology (medical), Economic cost, Health care, medicine, Neurology (clinical), Young adult, business, Socioeconomic status, health care economics and organizations, 030217 neurology & neurosurgery
الوصول الحر: https://explore.openaire.eu/search/publication?articleId=doi_________::acfcc02a1960ee472b19b4771679303cTest
https://doi.org/10.1002/mus.24965Test -
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المصدر: Musclenerve. 53(6)
مصطلحات موضوعية: Adult, Male, Adolescent, Age Factors, Australia, Infant, Muscular Dystrophy, Duchenne, Young Adult, Cross-Sectional Studies, Cost of Illness, Child, Preschool, Health Care Surveys, Humans, Female, Child, Delivery of Health Care, Retrospective Studies
الوصول الحر: https://explore.openaire.eu/search/publication?articleId=pmid________::89bb4aeff024d81b0c14ec9e91597904Test
https://pubmed.ncbi.nlm.nih.gov/26562484Test -
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المؤلفون: Klair Bayley, Nigel G. Laing
المصدر: Future Neurology. 7:363-365
مصطلحات موضوعية: Newborn screening, Pediatrics, medicine.medical_specialty, Neurology, business.industry, Duchenne muscular dystrophy, medicine, Neurology (clinical), medicine.disease, business
الوصول الحر: https://explore.openaire.eu/search/publication?articleId=doi_________::09f7f24dbc5e67fe0b9856abe4185b6cTest
https://doi.org/10.2217/fnl.12.33Test -
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المؤلفون: Nigel G, Laing, Mark R, Davis, Klair, Bayley, Sue, Fletcher, Steve D, Wilton
المصدر: The Clinical biochemist. Reviews. 32(3)
مصطلحات موضوعية: musculoskeletal diseases, Mini-Review
الوصول الحر: https://explore.openaire.eu/search/publication?articleId=pmid________::3634f325441352ae8823069756bbbd3eTest
https://pubmed.ncbi.nlm.nih.gov/21912442Test
