نتائج البحث - "Dhaenens, Britt A. E."

1

دورية أكاديمية

Quality of life in individuals with neurofibromatosis type 1 associated cutaneous neurofibromas: validation of the Dutch cNF-Skindex ...

المؤلفون: Dhaenens, Britt A. E., van Dijk, Sarah A., Fertitta, Laura, Taal, Walter, Wolkenstein, Pierre, Oostenbrink, Rianne

مصطلحات موضوعية: Space Science, Medicine, Cell Biology, Sociology, FOS Sociology, Biological Sciences not elsewhere classified, Cancer, Science Policy

العلاقة: https://dx.doi.org/10.6084/m9.figshare.c.7259400Test

الإتاحة: https://doi.org/10.6084/m9.figshare.c.7259400.v110.6084/m9.figshare.c.7259400Test
https://springernature.figshare.com/collections/Quality_of_life_in_individuals_with_neurofibromatosis_type_1_associated_cutaneous_neurofibromas_validation_of_the_Dutch_cNF-Skindex/7259400/1Test

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2

دورية أكاديمية

Platform trial design for neurofibromatosis type 1, NF2-related schwannomatosis and non-NF2-related schwannomatosis:A potential model for rare diseases

المصدر: Dhaenens , B A E , Heimann , G , Bakker , A , Nievo , M , Ferner , R E , Evans , D G , Wolkenstein , P , Leubner , J , Potratz , C , Carton , C , Iloeje , U , Kirk , G , Blakeley , J O , Plotkin , S , Fisher , M J , Kim , A , Driever , P H , Azizi , A A , Widemann , B C , Gross , A , Parke , T , Legius , E & Oostenbrink , ....

وصف الملف: application/pdf

العلاقة: https://pure.eur.nl/en/publications/d4a21425-c0df-4db6-ae17-09111a025a04Test

الإتاحة: https://doi.org/10.1093/nop/npae001Test
https://pure.eur.nl/en/publications/d4a21425-c0df-4db6-ae17-09111a025a04Test
https://pure.eur.nl/ws/files/135612928/npae001.pdfTest
https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=eur_pure&SrcAuth=WosAPI&KeyUT=WOS:001152283100001&DestLinkType=FullRecord&DestApp=WOSTest

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3

دورية أكاديمية

Additional file 1 of Quality of life in individuals with neurofibromatosis type 1 associated cutaneous neurofibromas: validation of the Dutch cNF-Skindex ...

المؤلفون: Dhaenens, Britt A. E., van Dijk, Sarah A., Fertitta, Laura, Taal, Walter, Wolkenstein, Pierre, Oostenbrink, Rianne

مصطلحات موضوعية: Space Science, Medicine, Cell Biology, Sociology, FOS Sociology, Biological Sciences not elsewhere classified, Cancer, Science Policy

الإتاحة: https://doi.org/10.6084/m9.figshare.25929234.v110.6084/m9.figshare.2592923410.1002/ajmg.a.3313910.1001/archderm.141.1.7110.1038/jid.2014.46510.1111/1346-8138.1402510.1159/00033754810.1186/s13023-019-1265-410.1111/jdv.1814010.2147/prom.s15627910.1002/ajmg.a.3142210.1186/s13023-018-0810-x10.1186/1471-2288-8-2610.1111/j.1524-475x.2009.00556.x10.1038/jid.2011.23810.1177/12034754010050020210.1038/s41436-021-01170-510.1007/s11136-011-9903-x10.5116/ijme.4dfb.8dfd10.1016/j.jcm.2016.02.01210.1007/s11910-996-0036-5Test
https://springernature.figshare.com/articles/journal_contribution/Additional_file_1_of_Quality_of_life_in_individuals_with_neurofibromatosis_type_1_associated_cutaneous_neurofibromas_validation_of_the_Dutch_cNF-Skindex/25929234/1Test

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4

دورية أكاديمية

Optimizing expert and patient input in pediatric trial design : lessons learned and recommendations from a collaboration between conect4children and European Patient‐CEntric ClinicAl TRial PLatforms

المؤلفون: Dhaenens, Britt A. E., Mahler, Fenna, Batchelor, Hannah, Dicks, Pamela, Gaillard, Segolene, Nafria, Begonya, Kopp‐Schneider, Annette, Ribeiro, Maria Alexandra, Schwab, Matthias, Sparber‐Sauer, Monika, Leubner, Jonas, de Wildt, Saskia N., Oostenbrink, Rianne

مصطلحات موضوعية: Medicine (General)

وصف الملف: text

العلاقة: https://strathprints.strath.ac.uk/86025/1/Dhaenens_etal_CTS_2023_Optimizing_expert_and_patient_input_in_pediatric_trial_design.pdfTest; Dhaenens, Britt A. E. and Mahler, Fenna and Batchelor, Hannah and Dicks, Pamela and Gaillard, Segolene and Nafria, Begonya and Kopp‐Schneider, Annette and Ribeiro, Maria Alexandra and Schwab, Matthias and Sparber‐Sauer, Monika and Leubner, Jonas and de Wildt, Saskia N. and Oostenbrink, Rianne (2023 ) Optimizing expert and patient input in pediatric trial design : lessons learned and recommendations from a collaboration between conect4children and European Patient‐CEntric ClinicAl TRial PLatforms. Clinical and Translational Science , 16 (8). pp. 1458-1468. ISSN 1752-8054

الإتاحة: https://doi.org/10.1111/cts.13547Test
https://strathprints.strath.ac.uk/86025Test/
https://strathprints.strath.ac.uk/86025/1/Dhaenens_etal_CTS_2023_Optimizing_expert_and_patient_input_in_pediatric_trial_design.pdfTest

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5

دورية أكاديمية

The PlexiQoL, a patient-reported outcome measure on quality of life in neurofibromatosis type 1-associated plexiform neurofibroma: translation, cultural adaptation and validation into the Dutch language for the Netherlands.

المؤلفون: Dhaenens, Britt A. E., van Dijk, Sarah A., Taal, Walter, Noordhoek, D. Christine, Coffey, Anna, McKenna, Stephen P., Oostenbrink, Rianne

المصدر: Journal of Patient-Reported Outcomes; 3/18/2024, Vol. 8 Issue 1, p1-8, 8p

مصطلحات جغرافية: NETHERLANDS

النص الكامل

6

دورية أكاديمية

Identifying challenges in Neurofibromatosis: a modified Delphi procedure

المؤلفون: Dhaenens, Britt A E, Ferner, Rosalie E, Bakker, Annette, Nievo, Marco, Evans, D Gareth, Wolkenstein, Pierre, Potratz, Cornelia, Plotkin, Scott R, Heimann, Guenter, Legius, Eric, Oostenbrink, Rianne

المصدر: Dhaenens , B A E , Ferner , R E , Bakker , A , Nievo , M , Evans , D G , Wolkenstein , P , Potratz , C , Plotkin , S R , Heimann , G , Legius , E & Oostenbrink , R 2021 , ' Identifying challenges in Neurofibromatosis: a modified Delphi procedure ' , European Journal of Human Genetics . https://doi.org/10.1038/s41431-021-00892-zTest

الإتاحة: https://doi.org/10.1038/s41431-021-00892-zTest
https://research.manchester.ac.uk/en/publications/7a8ae012-6cac-4f94-adca-56f885f91e6eTest

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7

دورية أكاديمية

Identifying challenges in neurofibromatosis: a modified Delphi procedure

المؤلفون: Dhaenens, Britt, a E, Ferner, Rosalie, E, Bakker, Annette, Nievo, Marco, Evans, D Gareth, Wolkenstein, Pierre, Potratz, Cornelia, Plotkin, Scott, R, Heimann, Guenter, Legius, Eric, Oostenbrink, Rianne

المساهمون: Erasmus University Medical Center Rotterdam (Erasmus MC), Guy's and St Thomas' Hospital London, University of Manchester Manchester, CHU Pitié-Salpêtrière AP-HP, Assistance publique - Hôpitaux de Paris (AP-HP) (AP-HP)-Sorbonne Université (SU), Charité - UniversitätsMedizin = Charité - University Hospital Berlin, Massachusetts General Hospital Boston, Novartis Pharma AG, University Hospitals Leuven Leuven

المصدر: ISSN: 1018-4813.

مصطلحات موضوعية: [SDV]Life Sciences [q-bio], socio, psy

العلاقة: https://hal.sorbonne-universite.fr/hal-03213261/file/s41431-021-00892-z.pdfTest; https://hal.sorbonne-universite.fr/hal-03213261Test

الإتاحة: https://doi.org/10.1038/s41431-021-00892-zTest
https://hal.sorbonne-universite.fr/hal-03213261/file/s41431-021-00892-z.pdfTest
https://hal.sorbonne-universite.fr/hal-03213261Test

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8

دورية

Identifying challenges in neurofibromatosis: a modified Delphi procedure

المؤلفون: Dhaenens, Britt A. E., Ferner, Rosalie E., Bakker, Annette, Nievo, Marco, Evans, D. Gareth, Wolkenstein, Pierre, Potratz, Cornelia, Plotkin, Scott R., Heimann, Guenter, Legius, Eric, Oostenbrink, Rianne

المصدر: European Journal of Human Genetics: EJHG; 20210101, Issue: Preprints p1-9, 9p

النص الكامل

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