المؤلفون: Akyol, Mehmet Umut, Alden, Tord D, Amartino, Hernan, Ashworth, Jane, Belani, Kumar, Berger, Kenneth I, Borgo, Andrea, Braunlin, Elizabeth, Eto, Yoshikatsu, Gold, Jeffrey I, Jester, Andrea, Jones, Simon A, Karsli, Cengiz, Mackenzie, William, Marinho, Diane Ruschel, McFadyen, Andrew, McGill, Jim, Mitchell, John J, Muenzer, Joseph, Okuyama, Torayuki, Orchard, Paul J, Stevens, Bob, Thomas, Sophie, Walker, Robert, Wynn, Robert, Giugliani, Roberto, Harmatz, Paul, Hendriksz, Christian, Scarpa, Maurizio

المصدر: Orphanet Journal of Rare Diseases. 14(1)

مصطلحات موضوعية: Biomedical and Clinical Sciences, Clinical Sciences, Mucopolysaccharidoses (MPS), Clinical Research, Rare Diseases, 7.3 Management and decision making, Management of diseases and conditions, Chondroitinsulfatases, Enzyme Replacement Therapy, Female, Humans, Hypercapnia, Male, Mucopolysaccharidosis IV, Morquio a syndrome, Mucopolysaccharidosis, MPS IVA, Management guidelines, Elosulfase alfa, VIMIZIM, Enzyme replacement therapy, ERT, Haematopoietic stem cell transplantation, HSCT, Surgery, Anaesthetics, MPS Consensus Programme Steering Committee, MPS Consensus Programme Co-Chairs, Other Medical and Health Sciences, Genetics & Heredity, Genetics, Clinical sciences

وصف الملف: application/pdf

الوصول الحر: https://escholarship.org/uc/item/6j0140dzTest

المؤلفون: Akyol, Mehmet Umut, Alden, Tord D, Amartino, Hernan, Ashworth, Jane, Belani, Kumar, Berger, Kenneth I, Borgo, Andrea, Braunlin, Elizabeth, Eto, Yoshikatsu, Gold, Jeffrey I, Jester, Andrea, Jones, Simon A, Karsli, Cengiz, Mackenzie, William, Marinho, Diane Ruschel, McFadyen, Andrew, McGill, Jim, Mitchell, John J, Muenzer, Joseph, Okuyama, Torayuki, Orchard, Paul J, Stevens, Bob, Thomas, Sophie, Walker, Robert, Wynn, Robert, Giugliani, Roberto, Harmatz, Paul, Hendriksz, Christian, Scarpa, Maurizio

المصدر: Orphanet Journal of Rare Diseases. 14(1)

مصطلحات موضوعية: Biomedical and Clinical Sciences, Clinical Sciences, Clinical Research, Rare Diseases, Orphan Drug, Mucopolysaccharidoses (MPS), 7.3 Management and decision making, Management of diseases and conditions, Activities of Daily Living, Consensus, Disease Management, Enzyme Replacement Therapy, Hematopoietic Stem Cell Transplantation, Humans, Mucopolysaccharidoses, Mucopolysaccharidosis VI, N-Acetylgalactosamine-4-Sulfatase, Quality of Life, Recombinant Proteins, Maroteaux-Lamy syndrome, Mucopolysaccharidosis, MPS VI, Management guidelines, Galsulfase, Enzyme replacement therapy, ERT, Haematopoietic stem cell transplantation, HSCT, Surgery, Anaesthetics, MPS Consensus Programme Steering Committee, MPS Consensus Programme Co-Chairs, Other Medical and Health Sciences, Genetics & Heredity, Genetics, Clinical sciences

وصف الملف: application/pdf

الوصول الحر: https://escholarship.org/uc/item/5pc012vkTest

المؤلفون: Eleftheriadis, Panagiotis, Leva, Sonia, Gangi, Manfredi, Rey, Alberto Valdes, Borgo, Andrea, Coslop, Giacomo, Groppo, Emanuele, Grande, Lorenzo, Sedzik, Melissa

المصدر: IEEE Industry Applications Magazine ; volume 30, issue 1, page 46-58 ; ISSN 1077-2618 1558-0598

الإتاحة: https://doi.org/10.1109/mias.2023.3325091Test
http://xplorestaging.ieee.org/ielx7/2943/10359328/10329404.pdf?arnumber=10329404Test

المؤلفون: Agresta, Ferdinando, Montori, Giulia, Podda, Mauro, Ortenzi, Monica, Giordano, Alessio, Bergamini, Carlo, Mazzarolo, Giorgio, Licitra, Edelweiss, Gobbi, Tobia, Procida, Giuseppa, Borgo, Andrea Dal, Botteri, Emanuele, Ansaloni, Luca, Fugazzola, Paola, Savino, Grazia, Guerrieri, Mario, Campanile, Fabio Cesare, Sartori, Alberto, Petz, Wanda, Silecchia, Gianfranco

المصدر: European Journal of Trauma & Emergency Surgery; Feb2024, Vol. 50 Issue 1, p81-91, 11p

مصطلحات موضوعية: LAPAROSCOPY, SURGICAL anastomosis, EMERGENCY medical services, GASTRIC lavage, QUALITY of life, DIVERTICULITIS, EVIDENCE-based medicine, CRITICAL care medicine

المؤلفون: Langereis, Eveline J, Borgo, Andrea, Crushell, Ellen, Harmatz, Paul R, van Hasselt, Peter M, Jones, Simon A, Kelly, Paula M, Lampe, Christina, van der Lee, Johanna H, Odent, Thierry, Sakkers, Ralph, Scarpa, Maurizio, Schafroth, Matthias U, Struijs, Peter A, Valayannopoulos, Vassili, White, Klane K, Wijburg, Frits A

المصدر: Orphanet Journal of Rare Diseases. 8(1)

مصطلحات موضوعية: Biomedical and Clinical Sciences, Clinical Sciences, Mucopolysaccharidoses (MPS), Clinical Research, Regenerative Medicine, Rare Diseases, Digestive Diseases, Stem Cell Research, Transplantation, Musculoskeletal, Hematopoietic Stem Cell Transplantation, Hip Dislocation, Humans, Mucopolysaccharidosis I, Mucopolysaccharidosis type I, Hurler syndrome, Hematopoietic stem cell transplantation, Dysostosis multiplex, Hip dysplasia, Surgical treatment, Consensus, Other Medical and Health Sciences, Genetics & Heredity, Genetics, Clinical sciences

وصف الملف: application/pdf

الوصول الحر: https://escholarship.org/uc/item/7sm648p2Test

المؤلفون: Agresta, Ferdinando, Montori, Giulia, Podda, Mauro, Ortenzi, Monica, Giordano, Alessio, Bergamini, Carlo, Mazzarolo, Giorgio, Licitra, Edelweiss, Gobbi, Tobia, Procida, Giuseppa, Borgo, Andrea Dal, Botteri, Emanuele, Ansaloni, Luca, Fugazzola, Paola, Savino, Grazia, Guerrieri, Mario, Campanile, Fabio Cesare, Sartori, Alberto, Petz, Wanda, Silecchia, Gianfranco, di Saverio, Salomone, Catena, Fausto, Agrusa, Antonino, Salemi, Michelangelo, Morales-Conde, Salvador, Arezzo, Alberto

المساهمون: Agresta, Ferdinando, Montori, Giulia, Podda, Mauro, Ortenzi, Monica, Giordano, Alessio, Bergamini, Carlo, Mazzarolo, Giorgio, Licitra, Edelwei, Gobbi, Tobia, Procida, Giuseppa, Borgo, Andrea Dal, Botteri, Emanuele, Ansaloni, Luca, Fugazzola, Paola, Savino, Grazia, Guerrieri, Mario, Campanile, Fabio Cesare, Sartori, Alberto, Petz, Wanda, Silecchia, Gianfranco, di Saverio, Salomone, Catena, Fausto, Agrusa, Antonino, Salemi, Michelangelo, Morales-Conde, Salvador, Arezzo, Alberto

مصطلحات موضوعية: Acute diverticuliti, Hartmann procedure, Laparoscopy, Peritoneal lavage, Resection with or without a stoma

العلاقة: info:eu-repo/semantics/altIdentifier/pmid/37747500; firstpage:1; lastpage:11; numberofpages:11; journal:EUROPEAN JOURNAL OF TRAUMA AND EMERGENCY SURGERY; https://hdl.handle.net/2318/1935411Test; info:eu-repo/semantics/altIdentifier/scopus/2-s2.0-85172094518

الإتاحة: https://doi.org/10.1007/s00068-023-02362-1Test
https://hdl.handle.net/2318/1935411Test

المؤلفون: Akyol, Mehmet, Alden, Tord, Amartino, Hernan, Ashworth, Jane, Belani, Kumar, Berger, Kenneth, Borgo, Andrea, Braunlin, Elizabeth, Eto, Yoshikatsu, Gold, Jeffrey, Jester, Andrea, Jones, Simon, Karsli, Cengiz, Mackenzie, William, Marinho, Diane, McFadyen, Andrew, McGill, Jim, Mitchell, John, Muenzer, Joseph, Okuyama, Torayuki, Orchard, Paul, Stevens, Bob, Thomas, Sophie, Walker, Robert, Wynn, Robert, Giugliani, Roberto, Harmatz, Paul, Hendriksz, Christian, Scarpa, Maurizio

مصطلحات موضوعية: Medicine, Molecular Biology, Ecology, FOS Biological sciences, Science Policy, Mental Health

العلاقة: https://dx.doi.org/10.6084/m9.figshare.c.4522868Test

الإتاحة: https://doi.org/10.6084/m9.figshare.c.4522868.v110.6084/m9.figshare.c.4522868Test
https://springernature.figshare.com/collections/Recommendations_for_the_management_of_MPS_VI_systematic_evidence-_and_consensus-based_guidance/4522868/1Test

المؤلفون: Akyol, Mehmet Umut, Alden, Tord D., Amartino, Hernan, Ashworth, Jane, Belani, Kumar, Berger, Kenneth I., Borgo, Andrea, Braunlin, Elizabeth, Eto, Yoshikatsu, Gold, Jeffrey I., Jester, Andrea, Jones, Simon A., Karsli, Cengiz, Mackenzie, William, Marinho, Diane Ruschel, McFadyen, Andrew, McGill, Jim, Mitchell, John J., Muenzer, Joseph, Okuyama, Torayuki, Orchard, Paul J., Stevens, Bob, Thomas, Sophie, Walker, Robert, Wynn, Robert, Giugliani, Roberto, Harmatz, Paul, Hendriksz, Christian, Scarpa, Maurizio

المساهمون: Kulak Burun Boğaz Hastalıkları

وصف الملف: application/pdf

العلاقة: Orphanet Journal Of Rare Diseases; http://dx.doi.org/10.1186/s13023-019-1074-9Test; https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6567385Test/; http://hdl.handle.net/11655/24307Test; 14

الإتاحة: https://doi.org/10.1186/s13023-019-1074-9Test
http://hdl.handle.net/11655/24307Test
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6567385Test/

المؤلفون: Akyol, Mehmet Umut, Alden, Tord D., Amartino, Hernan, Ashworth, Jane, Belani, Kumar, Berger, Kenneth I., Borgo, Andrea, Braunlin, Elizabeth, Eto, Yoshikatsu, Gold, Jeffrey I., Jester, Andrea, Jones, Simon A., Karsli, Cengiz, Mackenzie, William, Marinho, Diane Ruschel, McFadyen, Andrew, McGill, Jim, Mitchell, John J., Muenzer, Joseph, Okuyama, Torayuki, Orchard, Paul J., Stevens, Bob, Thomas, Sophie, Walker, Robert, Wynn, Robert, Giugliani, Roberto, Harmatz, Paul, Hendriksz, Christian, Scarpa, Maurizio

المساهمون: Kulak Burun Boğaz Hastalıkları

وصف الملف: application/pdf

العلاقة: Orphanet Journal Of Rare Diseases; http://dx.doi.org/10.1186/s13023-019-1080-yTest; https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6541999Test/; http://hdl.handle.net/11655/24278Test; 14

الإتاحة: https://doi.org/10.1186/s13023-019-1080-yTest
http://hdl.handle.net/11655/24278Test
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6541999Test/

المؤلفون: Eleftheriadis, Panagiotis, Leva, Sonia, Gangi, Manfredi, Rey, Alberto Valdes, Borgo, Andrea, Coslop, Giacomo, Groppo, Emanuele, Grande, Lorenzo, Sedzik, Melissa

المصدر: 2022 IEEE International Conference on Environment and Electrical Engineering and 2022 IEEE Industrial and Commercial Power Systems Europe (EEEIC / I&CPS Europe)

الإتاحة: https://doi.org/10.1109/eeeic/icpseurope54979.2022.9854718Test
http://xplorestaging.ieee.org/ielx7/9854509/9854408/09854718.pdf?arnumber=9854718Test