New patient-reported experience measure for children with allergic disease: development, validation and results from integrated care
| العنوان: | New patient-reported experience measure for children with allergic disease: development, validation and results from integrated care |
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| المؤلفون: | Steve Sizmur, TM Rothenberg, R Griffin, John O. Warner, C O'Keeffe, A Tallett, B Hopwood, Claudia Gore |
| المساهمون: | Chelsea & Westminster Hospital NHS Foundation Trust |
| المصدر: | Archives of Disease in Childhood. 101:935-943 |
| بيانات النشر: | BMJ, 2016. |
| سنة النشر: | 2016 |
| مصطلحات موضوعية: | INFORMATION NEEDS, Male, Parents, Allergy, Pilot Projects, Pediatrics, FOOD ALLERGY, Care provision, PATHWAY, 0302 clinical medicine, Surveys and Questionnaires, 1114 Paediatrics And Reproductive Medicine, UK, 030212 general & internal medicine, Child, Health Service, Delivery of Health Care, Integrated, Focus Groups, Caregivers, 1117 Public Health And Health Services, Child, Preschool, Hay fever, TRIAL, Female, Life Sciences & Biomedicine, Attitude to Health, Adolescent, Children's Rights, Patient perspective, Young Adult, 03 medical and health sciences, NATIONAL APPROACH, Nursing, Qualitative research, 030225 pediatrics, Patient experience, Hypersensitivity, medicine, Humans, Competence (human resources), Asthma, Science & Technology, UNMET NEED, business.industry, Infant, Newborn, Infant, 1103 Clinical Sciences, medicine.disease, Focus group, Integrated care, LIFE, Pediatrics, Perinatology and Child Health, Self Report, business |
| الوصف: | ObjectivesTo develop and validate a new allergy-specific patient-reported experience measure (PREM) for children and their parents, and to collect feedback in an integrated care setting.DesignTwo allergy-specific PREMs were produced using focus groups, cognitive testing, two prospective validation studies (collaboration: Royal College of Paediatrics and Child Health, Picker Institute Europe, Imperial College/London): ‘Your Allergy Care’, for children aged 8–16 years; ‘Your Child's Allergy Care’, for parents of children aged 0–7 years.SettingCommunity event, primary/secondary/tertiary allergy care settings.Main outcome measuresPerformance of PREMs in validation study; reported experience of allergy care.Participants687 children with allergic conditions and their parents/carers.ResultsIn total, 687 questionnaires were completed; 503/687 (253 child; 250 parent) for the final survey. In both surveys, demographic variations were not associated with differences in results. Although 71% of patients reported one or more allergic conditions (food allergy/eczema/hay fever/asthma), 62% required multiple visits before receiving final diagnosis. Overall, patient experience was good for communication with patient/parent, competence and confidence in ability, and 73% felt looked after ‘very well’ and 23% ‘quite well’. Areas for improvement included communication with nurseries/schools, more information on side effects, allergic conditions and allergen/irritant avoidance. Allergy care in primary/emergency care settings was associated with higher problem-scores (worse experience) than in specialist clinics.ConclusionsThese new PREMs will allow allergy-specific patient experience reporting for children and parents and help identification of priority areas for improvement and commissioning of care. Efforts towards better allergy care provision must be targeted at primary and emergency care settings and underpinned by improving communication between healthcare providers and the community. |
| تدمد: | 1468-2044 0003-9888 |
| الوصول الحر: | https://explore.openaire.eu/search/publication?articleId=doi_dedup___::8af043b2766df2be25e547869fcddc84Test https://doi.org/10.1136/archdischild-2015-309598Test |
| حقوق: | OPEN |
| رقم الانضمام: | edsair.doi.dedup.....8af043b2766df2be25e547869fcddc84 |
| قاعدة البيانات: | OpenAIRE |
| تدمد: | 14682044 00039888 |
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