دورية أكاديمية
Why #wearenotwaiting-motivations and self-reported outcomes among users of open-source automated insulin delivery systems: Multinational survey
| العنوان: | Why #wearenotwaiting-motivations and self-reported outcomes among users of open-source automated insulin delivery systems: Multinational survey |
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| المؤلفون: | K Braune, KA Gajewska, A Thieffry, DM Lewis, T Froment, S O'Donnell, Jane Speight, Christel Hendrieckx, J Schipp, T Skinner, H Langstrup, A Tappe, K Raile, B Cleal |
| سنة النشر: | 2021 |
| مصطلحات موضوعية: | Science & Technology, Life Sciences & Biomedicine, Health Care Sciences & Services, Medical Informatics, diabetes, artificial pancreas, automated insulin delivery, open-source, patient-led, user-led, peer support, online communities, diabetes technology, digital health, mobile health, medical device regulation, motivation, sleep quality, do-it-yourself, SLEEP-DEPRIVATION, GLYCEMIC CONTROL, METAANALYSIS, DEPRESSION, DURATION, TIME, 3202 Clinical sciences, 4203 Health services and systems |
| الوصف: | Background Automated insulin delivery (AID) systems have been shown to be safe and effective in reducing hyperglycemia and hypoglycemia but are not universally available, accessible, or affordable. Therefore, user-driven open-source AID systems are becoming increasingly popular. Objective This study aims to investigate the motivations for which people with diabetes (types 1, 2, and other) or their caregivers decide to build and use a personalized open-source AID. Methods A cross-sectional web-based survey was conducted to assess personal motivations and associated self-reported clinical outcomes. Results Of 897 participants from 35 countries, 80.5% (722) were adults with diabetes and 19.5% (175) were caregivers of children with diabetes. Primary motivations to commence open-source AID included improving glycemic outcomes (476/509 adults, 93.5%, and 95/100 caregivers, 95%), reducing acute (443/508 adults, 87.2%, and 96/100 caregivers, 96%) and long-term (421/505 adults, 83.3%, and 91/100 caregivers, 91%) complication risk, interacting less frequently with diabetes technology (413/509 adults, 81.1%; 86/100 caregivers, 86%), improving their or child’s sleep quality (364/508 adults, 71.6%, and 80/100 caregivers, 80%), increasing their or child’s life expectancy (381/507 adults, 75.1%, and 84/100 caregivers, 84%), lack of commercially available AID systems (359/507 adults, 70.8%, and 79/99 caregivers, 80%), and unachieved therapy goals with available therapy options (348/509 adults, 68.4%, and 69/100 caregivers, 69%). Improving their own sleep quality was an almost universal motivator for caregivers (94/100, 94%). Significant improvements, independent of age and gender, were observed in self-reported glycated hemoglobin (HbA1c), 7.14% (SD 1.13%; 54.5 mmol/mol, SD 12.4) to 6.24% (SD 0.64%; 44.7 mmol/mol, SD 7.0; P<.001), and time in range (62.96%, SD 16.18%, to 80.34%, SD 9.41%; P<.001). Conclusions These results highlight the unmet needs of people with diabetes, provide new insights into the evolving phenomenon ... |
| نوع الوثيقة: | article in journal/newspaper |
| اللغة: | unknown |
| العلاقة: | http://hdl.handle.net/10536/DRO/DU:30149273Test; https://figshare.com/articles/journal_contribution/Why_wearenotwaiting-motivations_and_self-reported_outcomes_among_users_of_open-source_automated_insulin_delivery_systems_Multinational_survey/20673525Test |
| الإتاحة: | http://hdl.handle.net/10536/DRO/DU:30149273Test https://figshare.com/articles/journal_contribution/Why_wearenotwaiting-motivations_and_self-reported_outcomes_among_users_of_open-source_automated_insulin_delivery_systems_Multinational_survey/20673525Test |
| حقوق: | CC BY 4.0 |
| رقم الانضمام: | edsbas.BDA9F074 |
| قاعدة البيانات: | BASE |
| الوصف غير متاح. |