Why #WeAreNotWaiting—Motivations and Self-Reported Outcomes Among Users of Open-source Automated Insulin Delivery Systems: Multinational Survey
| العنوان: | Why #WeAreNotWaiting—Motivations and Self-Reported Outcomes Among Users of Open-source Automated Insulin Delivery Systems: Multinational Survey |
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| المؤلفون: | Braune, Katarina, Gajewska, Katarzyna Anna, Thieffry, Axel, Lewis, Dana Michelle, Froment, Timothée, O'Donnell, Shane, Speight, Jane, Hendrieckx, Christel, Schipp, Jasmine, Skinner, Timothy, Langstrup, Henriette, Tappe, Adrian, Raile, Klemens, Cleal, Bryan |
| المصدر: | Journal of Medical Internet Research Braune, K, Gajewska, K A, Thieffry, A, Lewis, D M, Froment, T, O'Donnell, S, Speight, J, Hendrieckx, C, Schipp, J, Skinner, T, Langstrup, H, Tappe, A, Raile, K & Cleal, B 2021, ' Why #WeAreNotWaiting-Motivations and Self-Reported Outcomes Among Users of Open-source Automated Insulin Delivery Systems: Multinational Survey ', Journal of Medical Internet Research, vol. 23, no. 6, e25409 . https://doi.org/10.2196/25409Test Braune, K, Gajewska, K A, Thieffry, A, Lewis, D M, Froment, T, O'Donnell, S, Speight, J, Hendrieckx, C, Schipp, J, Skinner, T, Langstrup, H, Tappe, A, Raile, K & Cleal, B 2021, ' Why #WeAreNotWaiting-Motivations and Self-Reported Outcomes Among Users of Open-source Automated Insulin Delivery Systems : Multinational Survey ', Journal of Medical Internet Research, vol. 23, no. 6, 25409 . https://doi.org/10.2196/25409Test Journal of Medical Internet Research, Vol 23, Iss 6, p e25409 (2021) |
| بيانات النشر: | JMIR Publications, 2021. |
| سنة النشر: | 2021 |
| مصطلحات موضوعية: | Open-source, medical device regulation, peer support, Do-it-yourself, Online communities, GLYCEMIC CONTROL, Patient-led, Insulin, Mobile health, Child, open-source, Peer support, diabetes, patient-led, User-led, artificial pancreas, Diabetes, sleep quality, Sleep quality, DEPRESSION, TIME, user-led, online communities, Automated insulin delivery, Public aspects of medicine, RA1-1270, Digital health, 600 Technik, Medizin, angewandte Wissenschaften::610 Medizin und Gesundheit::610 Medizin und Gesundheit, Adult, automated insulin delivery, Computer applications to medicine. Medical informatics, DURATION, R858-859.7, digital health, Artificial pancreas, Insulin Infusion Systems, SDG 3 - Good Health and Well-being, motivation, do-it-yourself, Humans, Hypoglycemic Agents, Patient Reported Outcome Measures, mobile health, METAANALYSIS, Motivation, Original Paper, diabetes technology, Cross-Sectional Studies, Diabetes Mellitus, Type 1, Medical device regulation, Diabetes technology, Self Report, SLEEP-DEPRIVATION |
| الوصف: | BackgroundAutomated insulin delivery (AID) systems have been shown to be safe and effective in reducing hyperglycemia and hypoglycemia but are not universally available, accessible, or affordable. Therefore, user-driven open-source AID systems are becoming increasingly popular. ObjectiveThis study aims to investigate the motivations for which people with diabetes (types 1, 2, and other) or their caregivers decide to build and use a personalized open-source AID. MethodsA cross-sectional web-based survey was conducted to assess personal motivations and associated self-reported clinical outcomes. ResultsOf 897 participants from 35 countries, 80.5% (722) were adults with diabetes and 19.5% (175) were caregivers of children with diabetes. Primary motivations to commence open-source AID included improving glycemic outcomes (476/509 adults, 93.5%, and 95/100 caregivers, 95%), reducing acute (443/508 adults, 87.2%, and 96/100 caregivers, 96%) and long-term (421/505 adults, 83.3%, and 91/100 caregivers, 91%) complication risk, interacting less frequently with diabetes technology (413/509 adults, 81.1%; 86/100 caregivers, 86%), improving their or child’s sleep quality (364/508 adults, 71.6%, and 80/100 caregivers, 80%), increasing their or child’s life expectancy (381/507 adults, 75.1%, and 84/100 caregivers, 84%), lack of commercially available AID systems (359/507 adults, 70.8%, and 79/99 caregivers, 80%), and unachieved therapy goals with available therapy options (348/509 adults, 68.4%, and 69/100 caregivers, 69%). Improving their own sleep quality was an almost universal motivator for caregivers (94/100, 94%). Significant improvements, independent of age and gender, were observed in self-reported glycated hemoglobin (HbA1c), 7.14% (SD 1.13%; 54.5 mmol/mol, SD 12.4) to 6.24% (SD 0.64%; 44.7 mmol/mol, SD 7.0; P |
| وصف الملف: | application/pdf |
| اللغة: | English |
| تدمد: | 1438-8871 1439-4456 |
| الوصول الحر: | https://explore.openaire.eu/search/publication?articleId=doi_dedup___::221ab6959fdbdd316837abfcd5c55858Test http://europepmc.org/articles/PMC8218212Test |
| حقوق: | OPEN |
| رقم الانضمام: | edsair.doi.dedup.....221ab6959fdbdd316837abfcd5c55858 |
| قاعدة البيانات: | OpenAIRE |
| تدمد: | 14388871 14394456 |
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