المؤلفون: Al-Janabi, H., Efstathiou, N., McLoughlin, C., Calvert, M., Oyebode, Jan

مصطلحات موضوعية: Informal care, Economic evaluation, Delphi, Mental health, Dementia, Stroke

الوصف: Yes
and Health and social care may affect family carers’ health and wellbeing in addition to patients’ lives. It is recommended that such impacts (carer effects) are considered in decision-making. However, the scope of carer effects and range of decisions where carer effects should be considered is uncertain. This study aimed to identify (i) how different categories of healthcare and social care were perceived to impact on family carers and (ii) whether there was consensus about when carer effects should be formally considered in decision-making contexts. Methods: A Delphi study was conducted with 65 UK-based participants with expertise in dementia, mental health, and stroke. Participants considered two broad forms of ‘interventions’ (patient treatment and replacement care) and two broad forms of ‘organisational change’ (staffing and changes in timing/location of care). Participants assessed the likely impacts of health and social care on family carers and whether impacts should be considered in decision-making. The survey was conducted remotely at two time points. Results: Participants predicted widespread impacts from interventions and organisational changes on different domains of family carers’ lives, with ‘emotional health’ the most likely outcome to be affected. Patient treatment and replacement care services (‘interventions’) were associated with positive impacts across all domains. Conversely, timing/location changes and staffing changes (‘organisational changes’) were perceived to have mixed and negative impacts. There was widespread support (80-81%) for considering carer effects in research studies, funding decisions, and patient decision-making. Conclusion: This study highlights a perception that carer effects are widespread and important to consider in economic evaluation and decision-making. It highlights the particular need to measure and value effects on carers’ emotional health and the need to use a societal perspective to avoid cost shifting to family carers when introducing interventions and making organisational changes.
This work was funded by a National Institute for Health Research (NIHR) Career Development Fellowship (CDF-2015-08-025) awarded to HA for this research project.

الإتاحة: http://hdl.handle.net/10454/18513Test

المؤلفون: Al-Janabi, H., McLoughlin, C., Oyebode, Jan, Efstathiou, N., Calvert, M.

مصطلحات موضوعية: UK, Dementia, Economic evaluation, Informal care, Mental health, Qualitative methods, Spillover, Stroke

الوصف: Yes
Health and care services for patients may improve or harm the wellbeing of their family carers. Formal consideration of these effects (also known as spillovers) in decision-making is advocated, but, to date, little is known about how they occur. This paper presents the first empirical study to determine the mechanisms by which health and care services affect family carers' wellbeing. The study focused on three major health conditions: dementia, stroke, and mental health. Focus groups and interviews were conducted with 49 purposefully sampled care professionals and family carers in the UK between December 2016 and September 2017. Transcripts were coded and analysed thematically, using descriptive accounts and an explanatory account. The analysis generated six over-arching mechanisms by which health and care services affect family carers' wellbeing, through: (i) information (degree to which service delivery informs and trains family carers); (ii) management of care (shifts of responsibility for care between formal and family sectors); (iii) patient outcomes (services changing patient outcomes); (iv) alienation (feelings of alienation or inclusion created by service delivery); (v) compliance (barriers to patients complying and engaging with services); and (vi) timing or location (changes in the timing or location of services). Each mechanism was associated with sub-themes relating to both positive and negative spillovers on the family carers. The six mechanisms can be summarised with the mnemonic ‘IMPACT’. The IMPACT mechanisms may be useful in designing and evaluating services to optimise the wellbeing of carers as well as patients.
Hareth Al-Janabi is funded by a National Institute for Health Research (NIHR) Career Development Fellowship (CDF-2015-08-025) for this research project. Mel Calvert is partially funded by the NIHR Birmingham Biomedical Research Centre and the NIHR Surgical Reconstruction and Microbiology Research Centre at the University Hospitals Birmingham NHS Foundation Trust and the University of Birmingham. This paper presents independent research funded by the National Institute for Health Research (NIHR).

الإتاحة: http://hdl.handle.net/10454/18146Test

المؤلفون: McLoughlin, C, Hoeritzauer, I, Cabreira, V, Aybek, S, Adams, C, Alty, J, Ball, HA, Baker, J, Bullock, K, Burness, C, Dworetzky, BA, Finkelstein, S, Garcin, B, Gelauff, J, Goldstein, LH, Jordbru, A, Huys, A-CM, Laffan, A, Lidstone, SC, Linden, SC, Ludwig, L, Maggio, J, Morgante, F, Mallam, E, Nicholson, C, O'Neal, M, O'Sullivan, S, Pareés, I, Petrochilos, P, Pick, S, Phillips, W, Roelofs, K, Newby, R, Stanton, B, Gray, C, Joyce, EM, Tijssen, MA, Chalder, T, McCormick, M, Gardiner, P, Bègue, I, Tuttle, MC, Williams, I, McRae, S, Voon, V, McWhirter, L

الوصف: Functional neurological disorder (FND) is a common and disabling disorder, often misunderstood by clinicians. Although viewed sceptically by some, FND is a diagnosis that can be made accurately, based on positive clinical signs, with clinical features that have remained stable for over 100 years. Despite some progress in the last decade, people with FND continue to suffer subtle and overt forms of discrimination by clinicians, researchers and the public. There is abundant evidence that disorders perceived as primarily affecting women are neglected in healthcare and medical research, and the course of FND mirrors this neglect. We outline the reasons why FND is a feminist issue, incorporating historical and contemporary clinical, research and social perspectives. We call for parity for FND in medical education, research and clinical service development so that people affected by FND can receive the care they need.

وصف الملف: application/pdf

العلاقة: https://openaccess.sgul.ac.uk/id/eprint/115625/1/FND%20is%20a%20feminist%20issue%20_%20JNNP%202023.pdfTest; McLoughlin, C; Hoeritzauer, I; Cabreira, V; Aybek, S; Adams, C; Alty, J; Ball, HA; Baker, J; Bullock, K; Burness, C; et al. McLoughlin, C; Hoeritzauer, I; Cabreira, V; Aybek, S; Adams, C; Alty, J; Ball, HA; Baker, J; Bullock, K; Burness, C; Dworetzky, BA; Finkelstein, S; Garcin, B; Gelauff, J; Goldstein, LH; Jordbru, A; Huys, A-CM; Laffan, A; Lidstone, SC; Linden, SC; Ludwig, L; Maggio, J; Morgante, F; Mallam, E; Nicholson, C; O'Neal, M; O'Sullivan, S; Pareés, I; Petrochilos, P; Pick, S; Phillips, W; Roelofs, K; Newby, R; Stanton, B; Gray, C; Joyce, EM; Tijssen, MA; Chalder, T; McCormick, M; Gardiner, P; Bègue, I; Tuttle, MC; Williams, I; McRae, S; Voon, V; McWhirter, L (2023) Functional neurological disorder is a feminist issue. J Neurol Neurosurg Psychiatry, 94 (10). pp. 855-862. ISSN 1468-330X https://doi.org/10.1136/jnnp-2022-330192Test SGUL Authors: Morgante, Francesca

الإتاحة: https://doi.org/10.1136/jnnp-2022-330192Test
https://openaccess.sgul.ac.uk/id/eprint/115625Test/
https://openaccess.sgul.ac.uk/id/eprint/115625/1/FND%20is%20a%20feminist%20issue%20_%20JNNP%202023.pdfTest

المؤلفون: Corbella-Bagot, L., Riquelme-McLoughlin, C., Morgado-Carrasco, D.

المصدر: Actas Dermo-Sifiliográficas ; volume 114, issue 9, page T784-T801 ; ISSN 0001-7310

مصطلحات موضوعية: Dermatology, Histology, Pathology and Forensic Medicine

الإتاحة: https://doi.org/10.1016/j.ad.2023.08.002Test
https://api.elsevier.com/content/article/PII:S0001731023006397?httpAccept=text/xmlTest
https://api.elsevier.com/content/article/PII:S0001731023006397?httpAccept=text/plainTest

المؤلفون: Corbella-Bagot, L., Riquelme-McLoughlin, C., Morgado-Carrasco, D.

المصدر: Actas Dermo-Sifiliográficas ; volume 114, issue 9, page 784-801 ; ISSN 0001-7310

مصطلحات موضوعية: Dermatology, Histology, Pathology and Forensic Medicine

الإتاحة: https://doi.org/10.1016/j.ad.2023.06.012Test
https://api.elsevier.com/content/article/PII:S0001731023004969?httpAccept=text/xmlTest
https://api.elsevier.com/content/article/PII:S0001731023004969?httpAccept=text/plainTest

المؤلفون: McLoughlin, C. M.

مصطلحات موضوعية: 615, Chemical engineering

الإتاحة: http://ethos.bl.uk/OrderDetails.do?uin=uk.bl.ethos.273046Test

المؤلفون: McLoughlin, C., Thimont, Y., Noudem, J., Harnois, C., Bernstein, P.

مصطلحات موضوعية: Condensed Matter - Superconductivity

الوصف: A large decrease is observed in the critical current density of YBCO coated conductors (CC) and related compounds when a strong perpendicular magnetic field is applied. While measurements are generally carried out at 77K only, here we present a magnetic technique permitting to determine the critical current per unit width of conductor (Icr/w) in a large temperature range. We report measurements carried out on various CCs that show that, in addition to the reduction in the critical temperature that can be attributed to the low value of the irreversibility field near Tc, the field application results in a large decrease of Icr/w at all temperatures. We ascribe this reduction to the Josephson behaviour of the twin boundaries included in the YBCO layer.

الوصول الحر: http://arxiv.org/abs/1207.5691Test

المؤلفون: Al-Janabi, H., McLoughlin, C., Oyebode, Jan, Efstathiou, N., Calvert, M.

مصطلحات موضوعية: UK, Dementia, Economic evaluation, Informal care, Mental health, Qualitative methods, Spillover, Stroke

الوصف: Yes ; Health and care services for patients may improve or harm the wellbeing of their family carers. Formal consideration of these effects (also known as spillovers) in decision-making is advocated, but, to date, little is known about how they occur. This paper presents the first empirical study to determine the mechanisms by which health and care services affect family carers' wellbeing. The study focused on three major health conditions: dementia, stroke, and mental health. Focus groups and interviews were conducted with 49 purposefully sampled care professionals and family carers in the UK between December 2016 and September 2017. Transcripts were coded and analysed thematically, using descriptive accounts and an explanatory account. The analysis generated six over-arching mechanisms by which health and care services affect family carers' wellbeing, through: (i) information (degree to which service delivery informs and trains family carers); (ii) management of care (shifts of responsibility for care between formal and family sectors); (iii) patient outcomes (services changing patient outcomes); (iv) alienation (feelings of alienation or inclusion created by service delivery); (v) compliance (barriers to patients complying and engaging with services); and (vi) timing or location (changes in the timing or location of services). Each mechanism was associated with sub-themes relating to both positive and negative spillovers on the family carers. The six mechanisms can be summarised with the mnemonic ‘IMPACT’. The IMPACT mechanisms may be useful in designing and evaluating services to optimise the wellbeing of carers as well as patients. ; Hareth Al-Janabi is funded by a National Institute for Health Research (NIHR) Career Development Fellowship (CDF-2015-08-025) for this research project. Mel Calvert is partially funded by the NIHR Birmingham Biomedical Research Centre and the NIHR Surgical Reconstruction and Microbiology Research Centre at the University Hospitals Birmingham NHS Foundation Trust and the ...

العلاقة: Al-Janabi H, McLoughlin C, Oyebode J et al (2019) Six mechanisms behind carer wellbeing effects: A qualitative study of healthcare delivery. Social Science and Medicine. 235: 112382.; http://hdl.handle.net/10454/18146Test; https://doi.org/10.1016/j.socscimed.2019.112382Test

الإتاحة: https://doi.org/10.1016/j.socscimed.2019.112382Test
http://hdl.handle.net/10454/18146Test

المؤلفون: McLoughlin, C, Goranitis, I, Al-Janabi, H

الوصف: Objectives Carer quality-of-life (QoL) effects are recommended for inclusion in economic evaluations, but little is known about the relative performance of different types of QoL measures with carers. This study evaluated the validity and responsiveness of 3 care-related QoL measures (the Carer Experience Scale [CES], CarerQoL-7D, and ASCOT-Carer), 1 health-related QoL measure (the EQ-5D-5L), and 1 generic QoL measure (the ICECAP-A). Methods Validity and responsiveness were assessed in a UK sample of informal carers of adults with dementia, stroke, mental illness, or rheumatoid arthritis. A questionnaire containing the 5 QoL measures was posted to carers identified through the Family Resources Survey (N = 1004). Hypotheses regarding the anticipated associations between constructs related to the QoL of carers were tested to investigate construct validity and responsiveness. Results Each measure exhibited some level of construct validity. In general, larger effect sizes and stronger associations were detected for the ASCOT-Carer and ICECAP-A measures in the pooled sample and across all conditions. The 5 measures did not exhibit clear responsiveness to changes over a 12-month period in care recipient health status or hours of care provided per week. Conclusion The results of this study provide initial evidence of the validity of care-related, health-related, and generic QoL (capability) measures in informal carers of adults with 4 highly prevalent conditions. Care-related measures were not always more sensitive to constructs associated with QoL of carers compared with generic measures. The performance of the ICECAP-A was comparable with that of the best-performing care-related measure, the ASCOT-Carer.

العلاقة: pii: S1098-3015(20)30093-0; McLoughlin, C., Goranitis, I. & Al-Janabi, H. (2020). Validity and Responsiveness of Preference-Based Quality-of-Life Measures in Informal Carers: A Comparison of 5 Measures Across 4 Conditions. Value in Health, 23 (6), pp.782-790. https://doi.org/10.1016/j.jval.2020.01.015Test.; http://hdl.handle.net/11343/273840Test

الإتاحة: https://doi.org/10.1016/j.jval.2020.01.015Test
http://hdl.handle.net/11343/273840Test

المؤلفون: McGhie-Fraser, B., Tattan, M., Cabreira, V., Chaabouni, A., Kustra-Mulder, A., Mamo, N., Mcloughlin, C., Münker, L., Niwa, S., Pampel, A.M., Petzke, T., Regnath, F., Rometsch, C., Smakowski, A., Saunders, C., Treufeldt, H., Weigel, A., Rosmalen, J.

المصدر: Journal of Psychosomatic Research ; volume 169, page 111311 ; ISSN 0022-3999

مصطلحات موضوعية: Psychiatry and Mental health, Clinical Psychology

الإتاحة: https://doi.org/10.1016/j.jpsychores.2023.111311Test
https://api.elsevier.com/content/article/PII:S002239992300168X?httpAccept=text/xmlTest
https://api.elsevier.com/content/article/PII:S002239992300168X?httpAccept=text/plainTest