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1دورية أكاديمية
المؤلفون: Anderson, Rebecca J, Stone, Patrick C, Low, Joseph T S, Bloch, Steven
مصطلحات موضوعية: Allied health professions and studies, Primary care and other community based clinical subjects
وصف الملف: text
العلاقة: https://eprints.kingston.ac.uk/id/eprint/48495/2/Anderson-R-48495-VoR.pdfTest; Anderson, Rebecca J, Stone, Patrick C, Low, Joseph T S and Bloch, Steven (2020) Managing uncertainty and references to time in prognostic conversations with family members at the end of life : a conversation analytic study. Palliative Medicine, 34(7), pp. 896-905. ISSN (print) 0269-2163
الإتاحة: https://doi.org/10.1177/0269216320910934Test
https://eprints.kingston.ac.uk/id/eprint/48495Test/
https://eprints.kingston.ac.uk/id/eprint/48495/2/Anderson-R-48495-VoR.pdfTest -
2دورية أكاديمية
المؤلفون: Llewellyn, Henry, Neerkin, Jane, Thorne, Lewis, Wilson, Elena, Jones, Louise, Sampson, Elizabeth L, Townsley, Emma, Low, Joseph T S
المساهمون: National Brain Appeal Charity
المصدر: BMJ Open ; volume 8, issue 1, page e019057 ; ISSN 2044-6055 2044-6055
الوصف: Background Primary brain tumours newly affect >260 000 people each year worldwide. In the UK, every year >10 000 people are diagnosed with a brain tumour while >5000 die annually from the disease. Prognoses are poor, cognitive deterioration common and patients have prolonged palliative needs. Advance care planning (ACP) may enable early discussion of future care decisions. Although a core commitment in the UK healthcare strategy, and the shared responsibility of clinical teams, ACP appears uncommon in practice. Evidence around ACP practice in neuro-oncology is limited. Objectives We aimed to elicit key social and structural conditions contributing to the avoidance of ACP in neuro-oncology. Design A cross-sectional qualitative study design was used. Setting One tertiary care hospital in the UK. Participants Fifteen healthcare professionals working in neuro-oncology participated in this study, including neuro-oncologists, neurosurgeons, clinical nurse specialists, allied healthcare professionals and a neurologist. Method Semi-structured interviews were conducted with participants to explore their assumptions and experiences of ACP. Data were analysed thematically using the well-established framework method. Results Participants recognised the importance of ACP but few had ever completed formal ACP documentation. We identified eight key factors, which we suggest comprise three main conditions for avoidance: (1) difficulties being a highly emotive, time-intensive practice requiring the right ‘window of opportunity’ and (2) presence and availability of others; (3) ambiguities in ACP definition, purpose and practice. Combined, these created a ‘culture of shared avoidance’. Conclusion In busy clinical environments, ‘shared responsibility’ is interpreted as ‘others’ responsibility’ laying the basis for a culture of avoidance. To address this, we suggest a ‘generalists and specialists’ model of ACP, wherein healthcare professionals undertake particular responsibilities. Healthcare professionals are already ...
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6دورية أكاديمية
المؤلفون: Vijeratnam, Shan Shan, Candy, Bridget, Craig, Rachel, Marshall, Aileen, Stone, Patrick, Low, Joseph T. S.
المساهمون: Marie Curie
المصدر: Digestive Diseases and Sciences ; volume 66, issue 12, page 4072-4089 ; ISSN 0163-2116 1573-2568
مصطلحات موضوعية: Gastroenterology, Physiology
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7دورية أكاديمية
المؤلفون: Low, Joseph T. S., Payne, Sheila, Roderick, Paul
الوصف: Stroke incidence is set to rise in Western societies as population projections predict an increase in the proportion of older people. Most of these stroke survivors are supported by close kin members who play an important role in the rehabilitation and care of this group. The objective of this review was to establish the following: (a) to evaluate the impact of the stroke on the informal carers' quality of life, (b) to identify factors which help carers to cope with their caring role, (c) to evaluate health service provision for stroke carers. A systematic literature search using BIDS-EMBASE, MEDLINE and PSYCHLIT, identified 31 relevant studies. These showed that most studies concentrated on carers' psychological health and the negative impact that the stroke had. Carers ability to cope with the stroke was enhanced both by the use of positive coping strategies and more concrete measures e.g. more stroke information. Furthermore, whilst most carers were generally satisfied with health services, the few interventions directed at improving carer outcomes showed mixed results. The studies reviewed had many limitations; few gave definitions of ‘informal’ carer and there was a predominant use of cross-sectional studies and non-standardised outcome measures. Future studies should broaden their research question to evaluate quality of life, using standardised measures to do this and employing either a longitudinal or randomised control design to improve the robustness of results. More studies are also needed evaluating the effectiveness of health services on carers' quality of life.
العلاقة: Low, Joseph T. S. and Payne, Sheila and Roderick, Paul (1999) The impact of stroke on informal carers : a literature review. Social Science and Medicine, 49 (6). pp. 711-725. ISSN 0277-9536
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9دورية أكاديمية
المؤلفون: Low, Joseph T. S., Roderick, P., Payne, Sheila
العلاقة: Low, Joseph T. S. and Roderick, P. and Payne, Sheila (1998) An investigation on the impact of different stroke services on carers psychological health and coping strategies. Proceedings of the British Psychological Society, 6 (1). p. 33.
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10دورية أكاديمية
المؤلفون: Low, Joseph T. S., Payne, Sheila
العلاقة: Low, Joseph T. S. and Payne, Sheila (1998) The good and bad death perceptions of health professionals working in palliative care. Proceedings of the British Psychological Society, 6 (1). pp. 33-34.
