المؤلفون: Brooke Allemang, Susan Samuel, Katelyn Greer, Keighley Schofield, Karina Pintson, Megan Patton, Marcela Farias, Kathleen C. Sitter, Scott B. Patten, Andrew S. Mackie, Gina Dimitropoulos

المصدر: Health Expectations, Vol 26, Iss 6, Pp 2228-2244 (2023)

مصطلحات موضوعية: mixed methods, patient‐oriented research, transition to adult care, youth mental health, Medicine (General), R5-920, Public aspects of medicine, RA1-1270

الوصف: Abstract Background A large proportion of youth with chronic conditions have mental health comorbidities. However, the effect of these comorbidities on paediatric–adult transition readiness, and the relevance of widely used tools for measuring transition readiness, are unknown. Objective The objectives of this study were to describe and explore the transition readiness of youth with co‐occurring chronic health and mental health conditions using a combination of quantitative data obtained from participants completing the Transition Readiness Assessment Questionnaire (TRAQ) and qualitative data. Design and Participants A three‐phase sequential explanatory mixed methods design was employed, with the qualitative strand taking priority. First, the TRAQ scores (range 1–5) of youth with co‐occurring conditions (n = 61) enroled in a multisite randomized controlled trial were measured, followed by qualitative interviews with a sample of youth (n = 9) to explain the quantitative results. Results from both strands were then integrated, yielding comprehensive insights. Results Median TRAQ scores ranged from 2.86 on the appointment keeping subscale to 5.00 on the talking with providers subscale. The qualitative results uncovered the complexities faced by this group concerning the impact of a mental health comorbidity on transition readiness and self‐management skills across TRAQ domains. The integrated findings identified a diverse and highly individualized set of strengths and challenges amongst this group that did not align with overarching patterns as measured by the TRAQ. Conclusions This mixed methods study generated novel understandings about how youth with co‐occurring conditions develop competencies related to self‐care, self‐advocacy and self‐management in preparation for paediatric–adult service transitions. Results demonstrated the assessment of transition readiness using a generic scale does not address the nuanced and complex needs of youth with co‐occurring chronic health and mental health conditions. Our findings suggest tailoring transition readiness practices for this group based on youths' own goals, symptoms, coping mechanisms and resources. Patient or Public Involvement This study was conducted in collaboration with five young adult research partners (YARP) with lived experience transitioning from paediatric to adult health/mental health services. The YARP's contributions across study phases ensured the perspectives of young people were centred throughout data collection, analysis, interpretation and presentation of findings. All five YARP co‐authored this manuscript.

وصف الملف: electronic resource

العلاقة: https://doaj.org/toc/1369-6513Test; https://doaj.org/toc/1369-7625Test

الوصول الحر: https://doaj.org/article/c8f15fef159349bfb0183919d950ed9fTest

المؤلفون: Brooke Allemang, Megan Patton, Katelyn Greer, Karina Pintson, Marcela Farias, Keighley Schofield, Susan Samuel, Scott B. Patten, Kathleen C. Sitter, Gina Dimitropoulos

المصدر: Research Involvement and Engagement, Vol 9, Iss 1, Pp 1-13 (2023)

مصطلحات موضوعية: Adolescents and young adults, Graduate-level research, Patient engagement, Patient-oriented research, Peer mentorship, Medicine, Medicine (General), R5-920

الوصف: Abstract Background The involvement of adolescents and young adults (AYAs) with lived experience of health and mental health conditions as partners in research is increasing given the prominence of participatory approaches to research, including patient-oriented research (POR). Much of the relevant research is conducted by graduate students. While guiding AYA engagement frameworks and models exist, the processes of partnering with AYAs in patient-oriented graduate-level research projects have not been well established. Co-developed tools and practices are required to support strengths-based, developmentally appropriate AYA-graduate student partnerships. Objectives The objectives of this commentary are: (1) to share the processes of partnership between a graduate student and five Young Adult Research Partners (YARP), (2) to describe the co-design and implementation of the Strengths, Skills, and Goals Matrix (SSGM), a tool for facilitating strengths-based AYA engagement in research, and (3) to outline considerations for applying this tool across a variety of research contexts with patient partners. Main body Within the YARP-graduate student partnership, the SSGM offered extensive benefits, including tangible skill development, peer mentorship, and rapport building among all members. This tool offers strategies for strengths-based engagement practices which emphasize AYAs’ preferences and goals throughout POR projects. Practical recommendations and considerations for applying the SSGM within graduate-level research and beyond are described, including the importance of connecting AYAs’ current (and desired) skills to specific tasks within the research project and resulting outputs. Conclusions The SSGM has possible relevance in a variety of settings given its broadly applicable structure. Future research could explore the adaptation, application, and evaluation of the SSGM across research contexts to determine its feasibility and ease of implementation. Patient or public contribution This article was conceived of and co-authored by five young adult research partners. The YARP co-designed the SSGM presented in this article, the figures, and substantially contributed to the preparation of the article.

وصف الملف: electronic resource

العلاقة: https://doaj.org/toc/2056-7529Test

الوصول الحر: https://doaj.org/article/4f4dc961afa147c7add0b3d9324558adTest

المؤلفون: Brooke Allemang, Susan Samuel, Karina Pintson, Megan Patton, Katelyn Greer, Marcela Farias, Keighley Schofield, Kathleen C. Sitter, Scott B. Patten, Andrew S. Mackie, Gina Dimitropoulos

المصدر: BMC Health Services Research, Vol 23, Iss 1, Pp 1-18 (2023)

مصطلحات موضوعية: Transition to adult care, Transition readiness, Youth, Chronic health condition, Mental health, Qualitative, Public aspects of medicine, RA1-1270

الوصف: Abstract Background Transition-age youth (TAY) with chronic health conditions frequently experience co-occurring mental health conditions. However, little is known about the perspectives of TAY with co-occurring diagnoses preparing to exit pediatric health and mental health services. Research is needed to understand the impact of a mental health condition on transition readiness and self-management in TAY with chronic health conditions. Methods TAY (aged 16–20 years) with co-occurring chronic health and mental health conditions were recruited in Alberta, Canada. Nine semi-structured individual interviews were completed by phone or videoconference, and transcribed verbatim. Guided by qualitative description, we analyzed the data using thematic analysis in partnership with five young adults with lived experience in the health/mental health systems. Results Participants shared their experiences living with simultaneous physical and mental health concerns and preparing for transition to adult care. Our analysis revealed three overarching themes: 1) “they’re intertwined”: connections between chronic health and mental health conditions in TAY, 2) impact of mental health on transition readiness and self-management, and 3) recommendations for service provision from the perspectives of TAY. Conclusions Our findings highlighted the myriad ways in which physical and mental health are connected as TAY prepare for service transitions using specific examples and powerful metaphors. TAY endorsed the importance of providers discussing these connections in routine clinical care. Future research should involve co-designing and evaluating educational material addressing this topic with diverse TAY, caregivers, and service providers.

وصف الملف: electronic resource

العلاقة: https://doaj.org/toc/1472-6963Test

الوصول الحر: https://doaj.org/article/264f91b3daa146d6911248574865ce83Test

المؤلفون: Brooke Allemang, Susan Samuel, Karina Pintson, Megan Patton, Katelyn Greer, Marcela Farias, Keighley Schofield, Kathleen C. Sitter, Scott B. Patten, Andrew S. Mackie, Gina Dimitropoulos

المصدر: BMC health services research. 23(1)

مصطلحات موضوعية: Young Adult, Mental Health, Adolescent, Caregivers, Health Policy, Mental Disorders, Chronic Disease, Humans, Child, Qualitative Research, Alberta

الوصف: Background Transition-age youth (TAY) with chronic health conditions frequently experience co-occurring mental health conditions. However, little is known about the perspectives of TAY with co-occurring diagnoses preparing to exit pediatric health and mental health services. Research is needed to understand the impact of a mental health condition on transition readiness and self-management in TAY with chronic health conditions. Methods TAY (aged 16–20 years) with co-occurring chronic health and mental health conditions were recruited in Alberta, Canada. Nine semi-structured individual interviews were completed by phone or videoconference, and transcribed verbatim. Guided by qualitative description, we analyzed the data using thematic analysis in partnership with five young adults with lived experience in the health/mental health systems. Results Participants shared their experiences living with simultaneous physical and mental health concerns and preparing for transition to adult care. Our analysis revealed three overarching themes: 1) “they’re intertwined”: connections between chronic health and mental health conditions in TAY, 2) impact of mental health on transition readiness and self-management, and 3) recommendations for service provision from the perspectives of TAY. Conclusions Our findings highlighted the myriad ways in which physical and mental health are connected as TAY prepare for service transitions using specific examples and powerful metaphors. TAY endorsed the importance of providers discussing these connections in routine clinical care. Future research should involve co-designing and evaluating educational material addressing this topic with diverse TAY, caregivers, and service providers.

الوصول الحر: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::720757c103a23299231e84d71ef7a924Test
https://pubmed.ncbi.nlm.nih.gov/36593502Test

المؤلفون: Brooke Allemang, Susan Samuel, Kathleen C. Sitter, Scott B. Patten, Megan Patton, Karina Pintson, Katelyn Greer, Keighley Schofield, Marcela Farias, Zoya Punjwani, Andrew S. Mackie, Gina Dimitropoulos

المصدر: Journal of Transition Medicine. 4

مصطلحات موضوعية: Environmental Engineering

الوصف: Background Up to 57% of adolescents and young adults (AYA) with chronic physical health conditions experience mental health conditions, the presence of which contributes to increased morbidity and poor quality of life. AYA with co-occurring physical and mental health conditions, therefore, may experience additional challenges as they transition from pediatric to adult services. While transition readiness – the acquisition of self-management and advocacy skills – contributes to successful transitions to adult care, this concept has not been adequately explored for AYA with co-occurring physical and mental health conditions. Research is needed to identify whether the presence of a mental health comorbidity is associated with transition readiness, and what the experiences of AYA with co-occurring conditions are as they exit pediatric services. This paper outlines the protocol for the Readiness and Experiences of ADolescents and Young Adults with Co-occurring Physical and Mental Health Conditions Exiting Pediatric Services (READY2Exit) study; the first study to address this gap using a patient-oriented, mixed methods design. Methods A sequential explanatory mixed methods design will be used to understand the transition readiness of 16–21 year olds with physical and mental health conditions using quantitative and qualitative data. First, Transition Readiness Assessment Questionnaire (TRAQ) scores will be compared among AYA with chronic health conditions, with and without mental health comorbidity. Interviews will then be conducted with approximately 15 AYA with co-occurring health and mental health conditions and analyzed using qualitative description. The READY2Exit study will be conducted in collaboration with five Young Adult Research Partners (YARP) aged 18–30 with lived experience in the health/mental health systems across Canada. The YARP will partner in key tasks such as interview guide co-design, data interpretation, and knowledge translation tool development. Discussion AYA with co-occurring physical and mental health conditions may have unique needs as they prepare for health care transitions. The results of this study will inform the refinement of transition readiness practices to improve care for this group. The active involvement of the YARP across study phases will bring the critical perspectives of young adults to READY2Exit, ensuring the methods, research approaches and outputs align with their needs.

الوصول الحر: https://explore.openaire.eu/search/publication?articleId=doi_________::d657e00f64e9c102e4d3e159585b7a11Test
https://doi.org/10.1515/jtm-2022-0001Test