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1دورية أكاديمية
المؤلفون: Janet A. Curran, Jennifer Lane, Holly McCulloch, Lisa Keeping-Burke, Catie Johnson, Helen Wong, Christine Cassidy, Jessie-Lee McIsaac, De-Lawrence Lamptey, Julie Clegg, Neil Forbes, Sydney Breneol, Jordan Sheriko, Shauna Best, Stacy Burgess, Doug Sinclair, Annette Elliot Rose, Mary-Ann Standing, Mari Somerville, Sarah King, Shelley Doucet, Heather Flieger, Margie Lamb, Jeanna Parsons Leigh, Dana Stewart
المصدر: PLoS ONE, Vol 19, Iss 7 (2024)
وصف الملف: electronic resource
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2دورية أكاديمية
المؤلفون: Randi Dovland Andersen, Lara Genik, Ann I. Alriksson‐Schmidt, Agneta Anderzen‐Carlsson, Chantel Burkitt, Sindre K. Bruflot, Christine T. Chambers, Reidun B. Jahnsen, Ira Jeglinsky‐Kankainen, Olav Aga Kildal, Kjersti Ramstad, Jordan Sheriko, Frank J. Symons, Lars Wallin, Guro L. Andersen
المصدر: Paediatric & Neonatal Pain, Vol 4, Iss 1, Pp 11-21 (2022)
مصطلحات موضوعية: cerebral palsy, disability, pain, survey, Pediatrics, RJ1-570
الوصف: Abstract Pain is a significant health concern for children living with cerebral palsy (CP). There are no population‐level or large‐scale multi‐national datasets using common measures characterizing pain experience and interference (ie, pain burden) and management practices for children with CP. The aim of the CPPain survey is to generate a comprehensive understanding of pain burden and current management of pain to change clinical practice in CP. The CPPain survey is a comprehensive cross‐sectional study. Researchers plan to recruit approximately 1400 children with CP (primary participants) across several countries over 6‐12 months using multimodal recruitment strategies. Data will be collected from parents or guardians of children with CP (0‐17 years) and from children with CP (8‐17 years) who are able to self‐report. Siblings (12‐17 years) will be invited to participate as controls. The CPPain survey consists of previously validated and study‐specific questionnaires addressing demographic and diagnostic information, pain experience, pain management, pain interference, pain coping, activity and participation in everyday life, nutritional status, mental health, health‐related quality of life, and the effect of the COVID‐19 pandemic on pain and access to pain care. The survey will be distributed primarily online. Data will be analyzed using appropriate statistical methods for comparing groups. Stratification will be used to investigate subgroups, and analyses will be adjusted for appropriate sociodemographic variables. The Norwegian Regional Committee for Medical and Health Research Ethics and the Research Ethics Board at the University of Minnesota in USA have approved the study. Ethics approval in Canada, Sweden, and Finland is pending. In addition to dissemination through peer‐reviewed journals and conferences, findings will be communicated through the CPPain Web site (www.sthf.no/cppain), Web sites directed toward users or clinicians, social media, special interest groups, stakeholder engagement activities, articles in user organization journals, and presentations in public media.
وصف الملف: electronic resource
العلاقة: https://doaj.org/toc/2637-3807Test
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3دورية أكاديمية
المؤلفون: Sara Drisdelle, Liam Power, Scott Thieu, Jordan Sheriko
المصدر: JMIR Research Protocols, Vol 11, Iss 10, p e39140 (2022)
مصطلحات موضوعية: Medicine, Computer applications to medicine. Medical informatics, R858-859.7
الوصف: BackgroundPower wheelchairs can empower children with physical limitations to gain independence in their everyday lives; however, traditional methods of power wheelchair training are often limited by poor accessibility and safety concerns. Immersive virtual reality technology (IVRT) uses advanced display technology to place users in a fully immersive web-based environment that can support real-time skills training, often requiring less resources and fewer safety concerns than real-world methods. IVRT interventions have shown to be a feasible training option among adult power wheelchair users; however, there is still a need to understand the technical and clinical feasibility of developing an IVRT power wheelchair training tool for the pediatric population. ObjectiveThis proposed study aims to use expert feedback and an iterative design process to develop an IVRT training intervention for pediatric power wheelchair skill development. MethodsThis 3-phase feasibility study will be conducted within the assistive technology unit of a public pediatric hospital. Separate participant groups will be recruited for each phase, consisting of approximately 10 to 15 clinicians (phase 1), 10 pediatric power wheelchair users (phase 2), and 15 to 20 additional pediatric power wheelchair users (phase 3). Phase 1 will be conducted to gather feedback on the baseline IVRT training intervention. Clinicians will test the intervention and assess its usability and acceptability using qualitative and quantitative methods. Phase 1 participants will also be invited back for a subsequent session to reassess a revised version of the training intervention that has been updated based on their previous feedback. Phase 2 and phase 3 will also use mixed methods to gather feedback on the usability, acceptability, and user experience of the IVRT training intervention from current pediatric power wheelchair users. In addition, phase 3 participants will perform a skills transfer assessment to compare power mobility skill performance between the virtual reality and real-life environments. Data gathered in phase 2 will be used to further refine the IVRT intervention, whereas phase 3 data will be used to statistically evaluate the final version. ResultsThis study was approved by the Izaak Walton Killam Health Centre research ethics board in August 2021. Phase 1 testing began in February 2022. The entire study is expected to be completed by 2023. ConclusionsThe results of this study will be used to create an IVRT training intervention for pediatric power wheelchair skill development through an iterative and collaborative design process. Results may also assist in directing future studies in this area. International Registered Report Identifier (IRRID)DERR1-10.2196/39140
وصف الملف: electronic resource
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4دورية أكاديمية
المؤلفون: Janet A Curran, Sydney Breneol, Mari Somerville, Jordan Sheriko, Sarah King, Holly McCulloch, Samuel A Stewart, Sandra Magalhaes, Shauna Best, Stacy Burgess, Elizabeth Jeffers, Mary-Ann Standing, Julie Clegg
المصدر: BMJ Open, Vol 12, Iss 3 (2022)
مصطلحات موضوعية: Medicine
وصف الملف: electronic resource
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5دورية أكاديمية
المؤلفون: Sarah Gander, Sarah Zaidi, Andrew Mackie, Roger Stoddard, Myla E Moretti, Lonnie Zwaigenbaum, Wendy J Ungar, Khush Amaria, Adrienne Kovacs, Ronen Rozenblum, Barbara Galuppi, Linda Nguyen, Sonya Strohm, Nadilein Mahlberg, Alicia Via-Dufresne Ley, Ariane Marelli, Donna Thomson, JoAnne Mosel, Connie Putterman, Kinga Pozniak, Nathan Tasker, Julia Hanes, Kyle Chambers, Jessica Havens, Claire Dawe-McCord, Dana Arafeh, Hana Alazem, John Andersen, Kerry Boyd, Caitlin Cassidy, Jamie Churchill, CJ Curran, Anne Fournier, Anna McCormick, Ronit Mesterman, Maryam Oskoui, Janet Rennick, Jordan Sheriko, Kathy Speechley, Kelly Wynne, Fabiola Breault, Yomna Elshamy, Rocio Gutierrez, Hashaam Hasan, Rhiannon Hicks, André Pépin, Rochelle Sorzano, Jennifer Zwicker
المصدر: BMJ Open, Vol 11, Iss 3 (2021)
مصطلحات موضوعية: Medicine
الوصف: Introduction Youth with brain-based disabilities (BBDs), as well as their parents/caregivers, often feel ill-prepared for the transfer from paediatric to adult healthcare services. To address this pressing issue, we developed the MyREADY TransitionTM BBD App, a patient-facing e-health intervention. The primary aim of this randomised controlled trial (RCT) was to determine whether the App will result in greater transition readiness compared with usual care for youth with BBD. Secondary aims included exploring the contextual experiences of youth using the App, as well as the interactive processes of youth, their parents/caregivers and healthcare providers around use of the intervention.Methods and analysis We aimed to randomise 264 youth with BBD between 15 and 17 years of age, to receive existing services/usual care (control group) or to receive usual care along with the App (intervention group). Our recruitment strategy includes remote and virtual options in response to the current requirements for physical distancing due to the COVID-19 pandemic. We will use an embedded experimental model design which involves embedding a qualitative study within a RCT. The Transition Readiness Assessment Questionnaire will be administered as the primary outcome measure. Analysis of covariance will be used to compare change in the two groups on the primary outcome measure; analysis will be intention-to-treat. Interviews will be conducted with subsets of youth in the intervention group, as well as parents/caregivers and healthcare providers.Ethics and dissemination The study has been approved by the research ethics board of each participating site in four different regions in Canada. We will leverage our patient and family partnerships to find novel dissemination strategies. Study findings will be shared with the academic and stakeholder community, including dissemination of teaching and training tools through patient associations, and patient and family advocacy groups.Trial registration number NCT03852550.
وصف الملف: electronic resource
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المؤلفون: Maryam Oskoui, Kathy Selby, David Herzig, Katrina Cardiff, Niamh Cushen, Yan Defosses, Hernan Gonorazky, Juergen Gottowik, Renee Haldenby, Ivan Jurisic, Shaainthabie Karthigesu, Leigh MacIntyre, Alex MacKenzie, Jean Mah, James McCullough, Pamela Ng, Slawomir Opalka, Michal Openchowski, Svetlana Petkun, Beth Potter, Jordan Sheriko, Maureen Smith, Martin Strahm, Sarah Turgeon Desilets, Angelina Woof, Xing Chen
المصدر: Tuesday, April 25.
الوصول الحر: https://explore.openaire.eu/search/publication?articleId=doi_________::ed1840a604381cebc89458e8af4dec52Test
https://doi.org/10.1212/wnl.0000000000203145Test -
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المصدر: Canadian Journal of Neurological Sciences / Journal Canadien des Sciences Neurologiques. :1-2
مصطلحات موضوعية: Neurology, Neurology (clinical), General Medicine
الوصول الحر: https://explore.openaire.eu/search/publication?articleId=doi_________::cbfcf75720e2b26d49249c0a08af45beTest
https://doi.org/10.1017/cjn.2023.40Test -
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المؤلفون: Sara Drisdelle, Liam Power, Scott Thieu, Jordan Sheriko
الوصف: BACKGROUND Power wheelchairs can empower children with physical limitations to gain independence in their everyday lives; however, traditional methods of power wheelchair training are often limited by poor accessibility and safety concerns. Immersive virtual reality technology (IVRT) uses advanced display technology to place users in a fully immersive virtual environment that can support real-time skills training, often requiring less resources and fewer safety concerns than real-world methods. IVRT interventions have shown to be a feasible training option among adult power wheelchair users, but there is still a need to understand the technical and clinical feasibility of developing an IVRT power wheelchair training tool for the pediatric population. OBJECTIVE This proposed study aims to employ expert feedback and an iterative design process to develop an IVRT training intervention for pediatric power wheelchair skill development. METHODS This 3-phase feasibility study will be conducted within the assistive technology unit of a public pediatric hospital. Separate participant groups will be recruited for each phase, consisting of approximately 10-15 clinicians (phase 1), 10 pediatric power wheelchair users (phase 2) and 15-20 additional pediatric power wheelchair users (phase 3). Phase 1 will be conducted to gather feedback on the baseline IVRT training intervention. Clinicians will test the intervention and assess its usability and acceptability using qualitative and quantitative methods. Phase 1 participants will also be invited back for a subsequent session, to re-assess a revised version of the training intervention that has been updated based on their prior feedback. Phase 2 and phase 3 will also utilize mixed methods to gather feedback from current pediatric power wheelchair users on the usability, acceptability, and user experience of the IVRT training intervention. Additionally, phase 3 participants will perform a skills transfer assessment to compare power mobility skill performance between the virtual and real-life environment. Data gathered in phase 2 will be used to further refine the IVRT intervention, whereas phase 3 data will be used to statistically evaluate the final version. RESULTS This study was approved by the institutional review board in August 2021. Phase 1 testing began in February 2022. The entire study is expected to complete by early 2023. CONCLUSIONS The results of this study will be used to create an IVRT training intervention for pediatric power wheelchair skill development through an iterative and collaborative design process. Results may also assist in directing future research in this area.
الوصول الحر: https://explore.openaire.eu/search/publication?articleId=doi_________::371422d7a5ee1381516962d77d202955Test
https://doi.org/10.2196/preprints.39140Test -
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المؤلفون: Holly McCulloch, Sydney Breneol, Samuel A Stewart, Sandra Magalhaes, Mari Somerville, Jordan Sheriko, Shauna Best, Stacy Burgess, Elizabeth Jeffers, Mary-Ann Standing, Sarah King, Julie Clegg, Janet A Curran
المصدر: BMJ open. 12(3)
مصطلحات موضوعية: Cohort Studies, Nova Scotia, Humans, General Medicine, Patient Acceptance of Health Care, Child, Delivery of Health Care
الوصف: IntroductionChildren with medical complexity and their families are an important population of interest within the Canadian healthcare system. Despite representing less than 1% of the paediatric population, children with medical complexity require extensive care and account for one third of paediatric healthcare expenditures. Opportunities to conduct research to assess disparities in care and appropriate allocation of health resources relies on the ability to accurately identify this heterogeneous group of children. This study aims to better understand the population of children with medical complexity in the Canadian Maritimes, including Nova Scotia (NS), New Brunswick (NB) and Prince Edward Island (PEI). This will be achieved through three objectives: (1) Evaluate the performance of three algorithms to identify children with medical complexity in the Canadian Maritimes in administrative data; then using the ‘best fit’ algorithm (2) Estimate the prevalence of children with medical complexity in the Canadian Maritimes from 2003 to 2017 and (3) Describe patterns of healthcare utilisation for this cohort of children across the Canadian Maritimes.Methods and analysisThe research will be conducted in three phases. In Phase 1, an expert panel will codevelop a gold-standard definition of paediatric medical complexity relevant to the Canadian Maritime population. A two-gate validation process will then be conducted using NS data and the gold-standard definition to determine the ‘best fit’ algorithm. During phase 2 the ‘best fit’ algorithm will be applied to estimate the prevalence of children with medical complexity in NS, NB and PEI. Finally, in phase 3 will describe patterns of healthcare utilisation across the Canadian Maritimes.Ethics and disseminationEthics approval for this protocol was granted by the institutional research ethics board at the IWK Health Centre (REB # 1026245). A waiver of consent was approved. This study will use an integrated knowledge translation approach, where end users are involved in each stage of the project, which could increase uptake of the research into policy and practice. The findings of this research study will be submitted for publication and dissemination through conference presentations and with our end users.
الوصول الحر: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::4b4c943e980c42bb67a047080d3d25dfTest
https://pubmed.ncbi.nlm.nih.gov/35304399Test -
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المؤلفون: Sruthi P. Thomas, Christina K. Hardesty, Kristin A. Buxton, Andrew B. Collins, Jessica Pruente, Kelly L.D. Pham, Jordan Sheriko, M. Elise McClanahan, Didem Inanoglu, Rajashree Srinivasan, Laura Ridnour, Robert Cooper, Seema Khurana, the Pediatric ITB Network
المصدر: Journal of Pediatric Rehabilitation Medicine. 13:379-384
مصطلحات موضوعية: Baclofen, 030506 rehabilitation, medicine.medical_specialty, Coronavirus disease 2019 (COVID-19), Severe acute respiratory syndrome coronavirus 2 (SARS-CoV-2), Physical Therapy, Sports Therapy and Rehabilitation, Comorbidity, 03 medical and health sciences, 0302 clinical medicine, Health care, Pandemic, medicine, Humans, Child, Intensive care medicine, Pandemics, Injections, Spinal, Muscle Relaxants, Central, SARS-CoV-2, business.industry, Rehabilitation, COVID-19, medicine.disease, Intrathecal baclofen, Treatment Outcome, Muscle Spasticity, Pediatrics, Perinatology and Child Health, Pediatric rehabilitation medicine, 0305 other medical science, business, 030217 neurology & neurosurgery, Healthcare system
الوصف: The COVID-19 pandemic has been a challenge to healthcare systems around the world. Within pediatric rehabilitation medicine, management of intrathecal baclofen has been particularly challenging. This editorial reviews how programs in the US and Canada coped with the quickly changing healthcare environment and how we can learn from this pandemic to be prepared for future crises.
الوصول الحر: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::01ae711fe2e497909f24e3c7e4e8338cTest
https://doi.org/10.3233/prm-200755Test
النص الكامل