المؤلفون: Agneta Anderzén-Carlsson, Guro L. Andersen, Frank J. Symons, Randi Dovland Andersen, Olav Aga Kildal, Chantel C. Burkitt, Sindre K. Bruflot, Ira Jeglinsky-Kankainen, Reidun Jahnsen, Lars Wallin, Lara M. Genik, Jordan Sheriko, Ann I. Alriksson-Schmidt, Kjersti Ramstad, Christine T. Chambers

مصطلحات موضوعية: medicine.medical_specialty, Research ethics, cerebral palsy, Neurologi, business.industry, Stakeholder engagement, Pediatrik, Special Interest Group, medicine.disease, Mental health, Pediatrics, Cerebral palsy, Quality of life (healthcare), disability, Neurology, Family medicine, medicine, Social media, pain, survey, business, Everyday life

وصف الملف: application/pdf

الوصول الحر: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::73bad2b6580ffa8ff3e02e5032014d48Test
http://urn.kb.se/resolve?urn=urn:nbn:se:du-41444Test

المؤلفون: Laura McAdam, James J. Dowling, Monique Taillon, Anna McCormick, Said M’dahoma, Gerald Pfeffer, Cam-Tu Emilie Nguyen, Colleen O'Connell, Craig Campbell, Scott Worley, Hernan Gonorazky, Alex MacKenzie, Aaron Izenberg, Jiri Vajsar, Peter Dobrowolski, Emily Butler, Jean K. Mah, Simona Hasal, Alier Marerro, Hugh J. McMillan, Garth Smith, Erin K. O'Ferrall, Hanns Lochmüller, Michelle M. Mezei, Christen Shoesmith, Nicolas Dupré, Victoria Hodgkinson, Nicolas Chrestian, Louise R. Simard, Meghan Crone, Cecile Phan, Jodi Warman Chardon, Xavier Rodrigue, Jordan Sheriko, Michel Melanson, Kathy Selby, Angela Genge, Edward Leung, Maryam Oskoui, Kristine M. Chapman, Stephanie Plamondon, Kerri Schellenberg, Rami Massie, Bernard Brais, Joshua J. Lounsberry, Susan Dojeiji, Sean W. Taylor, Wendy Johnston, Chantal Poulin, Lawrence Korngut

المصدر: Paediatrics Publications
The Canadian Journal of Neurological Sciences. Le Journal Canadien Des Sciences Neurologiques

مصطلحات موضوعية: Registry, Canada, medicine.medical_specialty, Neuromuscular disease, Population, Pediatrics, Muscular Atrophy, Spinal, Rare Diseases, Humans, Medicine, Prospective Studies, Registries, Child, Adverse effect, education, Real-world evidence, education.field_of_study, business.industry, General Medicine, Spinal muscular atrophy, medicine.disease, SMA, Clinical trial, Neurology, Family medicine, Original Article, Observational study, Neurology (clinical), business, Rare disease

وصف الملف: application/pdf

الوصول الحر: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::dcd6223874661f3ecd05a30e16b4ebadTest
https://doi.org/10.1017/cjn.2020.111Test

المؤلفون: Sheri Price, Jordan Sheriko, Cathy Walls, Jillian H. Filliter, Emma Vanderlee, Erin McAfee, Krista Sweet, Amanda Bye, Patrick J. McGrath, Megan Aston, Joelle Monaghan

المصدر: Journal of Intellectual Disabilities. 25:230-241

مصطلحات موضوعية: Parents, 030506 rehabilitation, Health professionals, Communication, education, Health Professions (miscellaneous), Focus group, 03 medical and health sciences, Psychiatry and Mental health, 0302 clinical medicine, Nursing, Intellectual Disability, 030225 pediatrics, Humans, Family, Personal health, Medical diagnosis, Child, 0305 other medical science, Psychology, Qualitative Research, Qualitative research

الوصول الحر: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::629917aad0ccb0d17fa87e694014dfefTest
https://doi.org/10.1177/1744629519873503Test

المؤلفون: Tim Benstead, Hernan Gonorazky, C. Krieger, Victoria Hodgkinson, Said M’dahoma, E. Leung, Aaron Izenberg, Angela Russell, Gerald Pfeffer, Kristine M. Chapman, A. Marrero, James J. Dowling, H. Briemberg, Monique Taillon, Lorne Zinman, Nicolas Chrestian, Angela Genge, Nicolas Dupré, Simona Hasal, Agessandro Abrahao, G. Matte, S. Dojeiji, Shannon L. Venance, C. Campbell, S. Botez, Hans D. Katzberg, R.G. Smith, Maryam Oskoui, Erin K. O'Ferrall, Alex MacKenzie, I. Grant, G. Linassi, Colleen O'Connell, P.R. Bourque, J. K. Mah, Xavier Rodrigue, Scott Worley, Michel Melanson, S. Taylor, Anna McCormick, Kerri Schellenberg, Laura McAdam, Christen Shoesmith, Stephanie Plamondon, Joshua J. Lounsberry, C. Phan, Kathy Selby, Rami Massie, M. Crone, H. McMillan, Bernard Brais, G. Jewett, Peter Dobrowolski, Jordan Sheriko, Wendy Johnston, Jodi Warman-Chardon, Lawrence Korngut, Neil R. Cashman, S. Kalra, Hanns Lochmüller, Michelle M. Mezei, C. T. Nguyen, Chantal Poulin

المصدر: Paediatrics Publications
Journal of Neuromuscular Diseases

مصطلحات موضوعية: 0301 basic medicine, Research Report, Adult, Male, Pediatrics, medicine.medical_specialty, Canada, Registry, Neuromuscular disease, Adolescent, Duchenne muscular dystrophy, Myotonic dystrophy, Muscular Atrophy, Spinal, 03 medical and health sciences, Young Adult, 0302 clinical medicine, medicine, Humans, Myotonic Dystrophy, Registries, Amyotrophic lateral sclerosis, Child, real-world evidence, Aged, Aged, 80 and over, business.industry, Amyotrophic Lateral Sclerosis, Infant, Spinal muscular atrophy, Middle Aged, medicine.disease, Natural history, Muscular Dystrophy, Duchenne, 030104 developmental biology, Clinical research, Neurology, Muscular Dystrophies, Limb-Girdle, natural history, Child, Preschool, Female, Neurology (clinical), business, 030217 neurology & neurosurgery, Limb-girdle muscular dystrophy

وصف الملف: application/pdf

الوصول الحر: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::5225e12fc979e2aa3b4ca1e72fb59591Test
https://ir.lib.uwo.ca/context/paedpub/article/3596/viewcontent/jnd_8_jnd200538.pdfTest

المؤلفون: Locke, Maggie

المساهمون: School of Health & Human Performance, Master of Science, n/a, Dr. Jordan Sheriko, Dr. Becky Feicht, Dr. Sarah Moore, Dr. Michelle Stone, Received

مصطلحات موضوعية: children, risky play, physical activity, reflexive thematic analysis, outdoor play, qualitative description, caregivers

العلاقة: http://hdl.handle.net/10222/84164Test

الإتاحة: http://hdl.handle.net/10222/84164Test