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1دورية أكاديمية
المؤلفون: Georg Bollig, Kirsti Gräf, Harry Gruna, Daniel Drexler, Raymund Pothmann
المصدر: Children, Vol 11, Iss 2, p 224 (2024)
مصطلحات موضوعية: Last Aid Course kids/teens, awareness, death, dying, death literacy, palliative care, Pediatrics, RJ1-570
الوصف: Background: Last Aid Courses (LAC) for adults have been established in 21 countries in Europe, Australia and America to improve the public discussion about death and dying and to empower people to participate in end-of-life care provision. In 2018, the first Last Aid Courses for kids and teens (LAC-KT) were introduced. The aim of the study was to explore the views and experiences of the course participants and Last Aid Course instructors on the LAC-KT. Methods: A mixed-methods approach was used. The views of the LAC-KT participants, aged 7 to 17 years, on the LAC-KT were collected using a questionnaire. In addition, the experiences of the Last Aid Course instructors were explored in focus group interviews. Results: The results show that 84% of the participants had experiences with death and dying and 91% found the LAC-KT helpful for everyone. The majority of the participants appreciate the opportunity to talk and learn about death, dying, grief and palliative care. Conclusions: The LAC-KT is feasible, very well accepted and a welcome opportunity for exchanging and obtaining information about dying, grief and palliative care. The findings of the study indicate that the LAC-KT should be offered to all interested children and teenagers and included in the school curriculum.
وصف الملف: electronic resource
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2دورية أكاديمية
المؤلفون: Erika Zelko, Georg Bollig
المصدر: Palliative Care and Social Practice, Vol 17 (2023)
مصطلحات موضوعية: Medicine (General), R5-920
الوصف: The Third International Last Aid Conference was held from October 28 to 29, 2022, as a hybrid event. Altogether, there were 85 participants from 14 different countries. The main topics of the conference were cultural diversity in palliative care, public palliative care education (PPCE), experience with Last Aid courses from different countries, and founding possibilities for courses and research in Last Aid. The speakers from different countries presented their experiences with Last Aid courses for adult and children, as well as the online courses. The contribution of the work of the Last Aid Research Group International (LARGI) for the development of Last Aid was presented. This report provides an overview of the conference and the content of presentations and highlights the most interesting discussions points.
وصف الملف: electronic resource
العلاقة: https://doaj.org/toc/2632-3524Test
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3دورية أكاديمية
المؤلفون: Georg Bollig, Karin Brochstedt Dieperink, Anthony C Smith, Anders Nikolai Ørsted Schultz, Eithne Hayes Bauer, Frans Brandt
المصدر: BMJ Open, Vol 12, Iss 9 (2022)
مصطلحات موضوعية: Medicine
الوصف: Introduction Increases in the use of telehealth in palliative care (telepalliative care) prior to, and during, the COVID-19 pandemic have resulted in a proliferation of studies on the topic. While knowledge is building on how providers and recipients adapt to telepalliative care, no reviews have, as of yet, examined telepalliative care from a patient and family perspective. Therefore, the aim of this integrative review is to explore patients and families’ perspectives on telepalliative.Methods and analysis An integrative review will be performed inspired by the methodology of Remmington and Toronto from March 2022 to December 2022. Medline, Embase, PsycINFO and CINAHL will be searched for primary peer-reviewed studies that describe telepalliative care from patient and families’ perspectives. Limiters will be used for age; 18 years+, time; 10 years, and language; English and Danish. Hand searches of authors of included articles and reference lists of included articles will be performed. Two reviewers will independently screen and appraise selected articles using the Mixed Method Appraisal Tool. Conflicts will be resolved through discussions with a third reviewer. Data will be extracted independently by two reviewers into a data matrix with predefined headings and analysed using thematic analysis. Findings will be reported thematically, summarised into a thematic synthesis and discussed in relation to relevant literature.Ethics and dissemination Ethical approval is not required for this review. Results will be published in an international peer-reviewed journal and presented at a relevant international conference. Reporting of this protocol was guided by the Preferred Reporting Items for Systematic reviews and Meta-Analyses Protocol checklist and prospectively reported to PROSPERO (CRD42022301206).
وصف الملف: electronic resource
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4دورية أكاديمية
المؤلفون: Georg Bollig, John P. Rosenberg
المصدر: Healthcare, Vol 11, Iss 5, p 745 (2023)
الوصف: This Special Issue, “Public Health Palliative Care (PHPC) and Public Palliative Care Education (PPCE)”, highlights recent advances and challenges in PHPC and PPCE [...]
وصف الملف: electronic resource
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5دورية أكاديمية
المؤلفون: Chantal Giehl, Nino Chikhradze, Georg Bollig, Horst Christian Vollmar, Ina Otte
المصدر: Healthcare, Vol 11, Iss 4, p 592 (2023)
مصطلحات موضوعية: Last Aid course, palliative care, caring relatives, qualitative research, interview, Germany, Medicine
الوصف: Background: The need to care for a loved one in a palliative state can lead to severe physical as well as psychological stress. In this context, Last Aid courses have been developed to support caring for relatives and to stimulate the public discussion on death and dying. The purpose of our pilot study is to gain an understanding of the attitudes, values, and difficulties of relatives caring for a terminally ill person. Methods: A qualitative approach was used in form of five semi-structured guided pilot interviews with lay persons who recently attended a Last Aid course. The transcripts of the interviews were analyzed following Kuckartz’s content analysis. Results: Overall, the interviewed participants have a positive attitude toward Last Aid courses. They perceive the courses as helpful as they provide knowledge, guidance, and recommendations of action for concrete palliative situations. Eight main topics emerged during analysis: expectations regarding the course, transfer of knowledge, reducing fear, the Last Aid course as a safe space, support from others, empowerment and strengthening of own skills, and the improvement needs of the course. Conclusions: In addition to the expectations before participation and the knowledge transfer during the course, the resulting implications for its application are also of great interest. The pilot interviews show initial indications that the impact, as well as supportive and challenging factors regarding the ability to care for relatives to cope, should be explored in further research.
وصف الملف: electronic resource
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6دورية أكاديمية
المؤلفون: Robin Christensen, Georg Bollig, F Brandt, Anders Nikolai Ørsted Schultz, Kristian Kidholm
المصدر: BMJ Open, Vol 12, Iss 4 (2022)
مصطلحات موضوعية: Medicine
وصف الملف: electronic resource
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7دورية أكاديمية
المؤلفون: Georg Bollig, Mariam Safi, Marina Schmidt, Hermann Ewald
المصدر: Healthcare, Vol 10, Iss 4, p 658 (2022)
مصطلحات موضوعية: Last Aid course, palliative care, public palliative care education, citizens, qualitative interview, mixed methods, Medicine
الوصف: Last Aid courses (LAC) have been established in 20 countries in Europe, Australia, and America to improve the public discourse about death and dying and to empower people to contribute to end-of-life care in the community. A mixed-methods approach was used to investigate the views of LAC participants about the course and cultural differences in relation to care and nursing at the end of life in the border region of Germany and Denmark. One-day workshops were held, including Last Aid courses in German and Danish, focus group interviews, and open discussions by the participants. The results show that almost all participants appreciate the LAC as an option to talk and learn about death and end-of-life care. The informants find individual differences more important than cultural differences in end-of-life care but describe differences connected to regulations and organization of services across the border. Suggestions for adaptation and improvement of the LAC include the topics of organization and support across the border, religions, and cultures, and supporting people in grief. The findings of the study will inform a revision of the Last Aid curriculum and future projects across the border and will help to include the views of minorities.
وصف الملف: electronic resource
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8دورية أكاديمية
المؤلفون: Evelyn Mueller, Georg Bollig, Gerhild Becker, Christopher Boehlke
المصدر: Healthcare, Vol 9, Iss 7, p 906 (2021)
مصطلحات موضوعية: Last Aid course, palliative care, hospital staff, education, survey, Medicine
الوصف: In recent years, so called “Last Aid courses”, concerning end-of-life care for people dying, have successfully been established in community settings in several European countries, Australia, and South-America. To date, they have not been evaluated in hospital settings, where educational needs (concerning care of the dying) are especially high, and may differ from the general population. To evaluate if Last Aid courses are feasible in hospital settings, and if informational needs of hospital staff are met by the curriculum, we introduced Last Aid courses at a university hospital. Five courses were offered; participants of courses 1 and 2 completed surveys with open-ended questions; the answers were used to develop the evaluation questionnaire employed in courses 3–5. In these three courses, 55 of the 56 participants completed an evaluation survey to explore their learning goals and obtain feedback. Courses were fully booked; participants were heterogeneous with regard to their professional background. The most prevalent learning goals were “preparation for emotional aspects in care of dying” (65.5% ratings “very important”), “preparation for medical/care aspects in care of dying” (60.0%), and “knowledge of supportive services and facilities” (54.5%). Overall, the evaluation showed that Last Aid courses were more suitable to educate non-medical hospital staff about care of the dying. Medical staff, in contrast to non-medical staff, more often requested courses with an extended curriculum in order to meet their learning goals. Last Aid courses were well accepted and helped to reduce information deficits on care of the dying in a heterogeneous population of hospital staff.
وصف الملف: electronic resource
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9دورية أكاديمية
المؤلفون: Eithne Hayes Bauer, Anders Nikolai Ørsted Schultz, Anette Brink, Lena Oechsle Jørgensen, Georg Bollig
المصدر: Healthcare, Vol 9, Iss 6, p 758 (2021)
مصطلحات موضوعية: patient preferences, relative preferences, palliative care, oncology, day ward, telemedicine, Medicine
الوصف: Demographical challenges require adaptation and tailoring of services to suit palliative patients’ and relatives’ needs. Therefore, an interpretive descriptive study was performed to explore patients’ and relatives’ preferences for the establishment of a day ward and out-of-hours telemedicine. Semi-structured interviews were performed, and data were analysed using thematic analysis. Participants included patients (n = 12) and relatives (n = 5). Three themes emerged: (1) ‘Transport burden’ relates to transition from home-to-hospital-to-home and acknowledges the strain placed on patients and relatives. (2) ‘Role of relatives’ contemplates how the role of families in patient care influences patient preferences. (3) ‘Telemedicine—preferences and concerns’ covers preferences and concerns related to telemedicine in palliative care. The burden of transport and living alone play substantial roles in preferences for place of treatment. Relatives of palliative patients who avail of a day ward and telemedicine may experience an increase in the burden of care. Recognition of concerns pertinent to palliative patients and relatives is an important step in planning new services in palliative care. Concerns may be mitigated by rethinking referral guidelines, incorporating voluntary services, early integration of telemedicine into palliative care and examining patients and relatives’ expectations to care, but requires further research.
وصف الملف: electronic resource
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10دورية أكاديمية
المؤلفون: Georg Bollig, Stefan Meyer, Boris Knopf, Marina Schmidt, Eithne Hayes Bauer
المصدر: Healthcare, Vol 9, Iss 2, p 172 (2021)
مصطلحات موضوعية: death, dying, home death, palliative care, Last Aid course, online course, Medicine
الوصف: The Last Aid course aims to teach public palliative care by increasing public awareness and empowering people about the role of the individual in the death of loved ones. The Covid-19 pandemic, however, has altered educational methods prohibiting classroom settings. Therefore, an online course was created to enable continued and safe public palliative care education. A mixed-methods study was performed to examine the feasibility of delivering the Last Aid course online. Data collection included participant questionnaires with qualitative and quantitative data, observations and a focus group discussion. Data were analyzed using descriptive analysis and qualitative description. In total, 15 online Last Aid courses were held, 174 participants took part in the study and 92 completed questionnaires were included. Findings revealed overall course satisfaction for the online courses in line with previous findings for classroom teaching. The online platform enabled course participation from people previously unable or unwilling to attend, namely caregivers to dying relatives and younger people. Instructors displayed an ability to teach online. However, some instructors expressed frustration over reduced interaction and technical challenges, which was echoed by participant ratings showing that many lacked social networking with fellow participants. Nonetheless, this pilot study demonstrates the feasibility of the online Last Aid course. Attention must be given to increasing both participant-to-participant and instructor-to-participant interaction. More research on the long-term effects of Last Aid courses is needed.
وصف الملف: electronic resource
النص الكامل