المؤلفون: Gee, Graham, Bright, Tess, Morgan, Amy, Atkinson, Carlie, Andrews, Shawana, Clark, Yvonne, Glover, Karen, Hirvonen, Tanja, Davis, Elise, Jones, Kimberley A, O'Reilly, Rachel, Mensah, Fiona

الوصف: Objective ; Complex post-traumatic stress disorder (complex trauma) describes a cluster of symptoms frequently associated with prolonged exposure to inescapable threats or abuse. For Aboriginal and Torres Strait Islander peoples in Australia impacted by complex trauma, there may be compounding factors, such as experiences of historical trauma, loss and socio-economic deprivation stemming from colonisation. However, there is no culturally appropriate tool to assess complex trauma. This paper presents the psychometric evaluation of a preliminary version Aboriginal and Torres Strait Islander Complex Trauma and Strengths Questionnaire (ACTSQ). ; Methods ; Following 2 years of rigorous Aboriginal-led co-design, participants were recruited through community networks and partner health services in South Australia, Victoria, and Northern Territory (October 2020–May 2022). A trained interviewer contacted Aboriginal (n = 109) and Torres Strait Islander (n = 1) parents aged >16 years by phone to complete the ACTSQ. Underlying domain structures were investigated with exploratory factor analysis and reviewed by experts to refine. Reliability and inter-rater reliability were assessed using McDonald’s Omega and Intraclass Correlation Coefficient (ICC). ; Results ; Forty-four items on five factors were retained. Factors were labelled complex trauma symptoms (16 items), grief, loss and disconnection (6 items), support and relationships (9 items), sense of self and strengths (7 items), and Cultural connections and resources (6 items). There were moderate correlations between factors, with the exception of factor 5. Omega was >0.75 for all factors. The inter-rater reliability for each factor was fair to good (ICC 0.5–0.7). ; Conclusions ; This study conducted a comprehensive psychometric validation that provides initial evidence towards the cultural validity of the ACTSQ to support assessment of complex trauma and strengths among Aboriginal and Torres Strait Islander peoples. Future studies are required to replicate and ...

وصف الملف: pdf

العلاقة: ispartof: Australian Journal of Psychology issue 1 vol 76; 991005666666607891; https://researchportal.murdoch.edu.au/esploro/outputs/journalArticle/Aboriginal-and-Torres-Strait-Islander-Complex/991005666666607891Test; https://researchportal.murdoch.edu.au/view/delivery/61MUN_INST/12162684630007891/13162684620007891Test; alma:61MUN_INST/bibs/991005666666607891

الإتاحة: https://doi.org/10.1080/00049530.2024.2335917Test
https://researchportal.murdoch.edu.au/esploro/outputs/journalArticle/Aboriginal-and-Torres-Strait-Islander-Complex/991005666666607891Test
https://researchportal.murdoch.edu.au/view/delivery/61MUN_INST/12162684630007891/13162684620007891Test

المؤلفون: Swift, Elena, Gibbs, Lisa, Reddihough, Dinah, Mackinnon, Andrew, Davis, Elise

المساهمون: Department of Education, Employment and Workplace Relations, Australian Government, Centre of Research Excellence in Cerebral Palsy

المصدر: Journal of Patient-Reported Outcomes ; volume 7, issue 1 ; ISSN 2509-8020

مصطلحات موضوعية: Health Information Management, Health Informatics

الوصف: Background Cerebral palsy (CP) is one of the most common childhood disabilities, impacting many areas of a child’s life. Increasingly, quality of life (QOL) measures are used to capture holistic wellbeing of children with CP. However most validated QOL measures for children are based on adult perspective only, with limited focus on child perspective. Conceptual differences between children’s and adults’ definitions of QOL may reflect different underlying QOL models which contribute to measurement score divergence. This qualitative study investigated the conceptual meaning of QOL for children with CP, comparing child and parent perspectives. Eighteen families completed 8 child interviews and 18 parent interviews. Children (11 boys, 7 girls) represented the spectrum of motor functioning, with comorbidities including epilepsy, intellectual disability, and communication impairments. Child and parent interviews were analysed separately using constructivist grounded theory methods and then findings were integrated to examine similarities and differences. Results All participants sought child inclusion in social activities, education, and recreation, requiring negotiation, adaptations, and advocacy. Five conceptual categories emerged from child interviews: socialising, play, negotiating limitations, self-identity, and developing agency. This reflected an individual model of QOL supporting child development goals. Parent interview findings revealed concepts related to child-specific QOL (day-to-day functioning and enabling child goals), as well as parent and family functioning concepts aligned to models of “family QOL”, embracing impacts of family relationships and the interdependence of QOL among family members. Conclusions This study identified similarities and differences in child and parent perceptions of QOL for the child with CP. Children provided insights into the importance of play and peer support, and their developing self-identity and sense of agency. Self-directed free play, especially, was ...

الإتاحة: https://doi.org/10.1186/s41687-023-00656-xTest

المؤلفون: Epstein, Amy, Whitehouse, Andrew, Williams, Katrina, Murphy, Nada, Leonard, Helen, Davis, Elise, Reddihough, Dinah, Downs, Jenny

المصدر: Autism: The International Journal of Research and Practice. Jan 2019 23(1):71-80.

تمت مراجعته من قبل الزملاء: Y

Page Count: 10

الواصفات: Autism, Pervasive Developmental Disorders, Quality of Life, Children, Parents, Parent Attitudes, Health, Well Being, Daily Living Skills, Social Life, Leisure Time, Natural Resources, Foreign Countries, Comorbidity, Parent Background, Educational Attainment, Physical Health, Behavior

مصطلحات جغرافية: Australia

معرفات التقييم و الدراسة: Autism Diagnostic Observation Schedule

مستخلص: Domains of quality of life in children with autism spectrum disorder have not previously been explored and there has been no quality of life measure developed for this population. Our study investigated parent observations to identify the domains important to children with autism spectrum disorder who also had an intellectual disability. In all, 21 parents (19 mothers, 2 fathers) of children with autism spectrum disorder (aged 6-17 years) participated in a qualitative study to discuss their child's quality of life. Thematic analysis using a grounded theory framework was conducted and 10 domains emerged in relation to health and well-being, capacity to perform and develop skills in daily life, and connections with the community and environment. Unique aspects of quality of life included varying levels of social desire, consistency of routines, and time spent in nature and the outdoors, which are not comprehensively captured in existing measures. Parent observations provide an initial framework for understanding quality of life in autism spectrum disorder and support the development of a new measure for this population.

Abstractor: As Provided

المؤلفون: Davis, Elise Catherine, Menser, Terri, Cerda Juarez, Alondra, Tomaszewski, Lesley E., Kash, Bita A.

المصدر: European Journal of Training and Development. 2019 43(1-2):2-20.

تمت مراجعته من قبل الزملاء: Y

Page Count: 19

الواصفات: Foreign Countries, Health Services, Allied Health Personnel, Hospitals, Clinics, Primary Health Care, Pharmacy, Community Health Services, Public Health

مصطلحات جغرافية: Kenya

مستخلص: Purpose: This paper aims to present a literature review of the health workforce, hospital and clinic systems, infrastructure, primary care, regulatory climate, the pharmaceutical industry and community health behavior of the Kenyan health-care system with the purpose of providing a thorough background on the health-care environment in Kenya. Design/methodology/approach: A systematic literature review was conducted using Pub Med, searching for "Kenya" in the title of articles published from January 1, 2015 to February 24, 2016; this provided a broad overview of the type of research being conducted in Kenya. Other data provided by governmental agencies and non-governmental agencies was also reviewed to describe the current state of population health in Kenya. Findings: An initial review of 615 Pubmed articles included 455 relevant articles. A complete review of these studies was conducted, resulting in a final sample of 389 articles. These articles were categorized into three main subject areas with 14 secondary subject areas (Figure 1). Research limitations/implications: The narrow scope of the search parameters set for the systematic review was a necessary limitation to focus on the most relevant literature. The findings of this study provide a thorough background on health care in Kenya to researchers and practitioners. Originality/value: This compilation of data specific to Kenya provides a detailed summary of both the country's health-care services and health status, focusing on potential means of realizing increased quality and length of life.

Abstractor: As Provided

المؤلفون: Goodwin, Isabella, Davis, Elise, Winkler, Di, Douglas, Jacinta, Wellecke, Cornelia, D’Cruz, Kate, Mulherin, Peter, Liddicoat, Stephanie

المصدر: Australian Journal of Social Issues ; volume 57, issue 4, page 956-969 ; ISSN 0157-6321 1839-4655

الوصف: People with mobility impairment have the right to live in accessible housing that meets their needs. Although the Australian National Construction Code for residential housing will be amended to include minimum accessibility standards in September 2022, some states have chosen not to adopt these standards (New South Wales, Western Australia and South Australia). The inclusion of people with lived experience in decisions surrounding accessible housing design is lacking. This study sought the perspective of people with mobility impairment on the most important modifications they would make to the design of their own homes, and the homes of their friends and family, to make them more accessible. An online survey was completed from February to March 2021 by 145 people living in Australia including 112 people with mobility impairment, and 33 family members. Results indicated that 71 per cent of the participants were living in housing that did not fully meet their accessibility needs. Descriptive qualitative analyses demonstrated that commonly reported modifications included a step‐free entrance, wider internal doors and corridors, and level access throughout the home. These modifications would promote social inclusion, functioning, independence and overall quality of life. These results have policy implications for the implementation of accessibility standards in the National Construction Code.

الإتاحة: https://doi.org/10.1002/ajs4.214Test

المؤلفون: Wellecke, Cornelia, D'Cruz, Kate, Winkler, Di, Douglas, Jacinta, Goodwin, Isabella, Davis, Elise, Mulherin, Peter

المصدر: Disability and Health Journal ; volume 15, issue 3, page 101281 ; ISSN 1936-6574

مصطلحات موضوعية: Public Health, Environmental and Occupational Health, General Medicine

الإتاحة: https://doi.org/10.1016/j.dhjo.2022.101281Test
https://api.elsevier.com/content/article/PII:S1936657422000140?httpAccept=text/xmlTest
https://api.elsevier.com/content/article/PII:S1936657422000140?httpAccept=text/plainTest

المؤلفون: Downs, Jenny, Jacoby, Peter, Leonard, Helen, Epstein, Amy, Murphy, Nada, Davis, Elise, Reddihough, Dinah, Whitehouse, Andrew, Williams, Katrina

المصدر: Quality of Life Research, 2019 Mar 01. 28(3), 783-794.

الوصول الحر: https://www.jstor.org/stable/48704944Test

المؤلفون: Riggs, Elisha, Block, Karen, Gibbs, Lisa, Davis, Elise, Szwarc, Josef, Casey, Sue, Duell-Piening, Philippa, Waters, Elizabeth

المصدر: Australian Journal of Adult Learning. Jul 2012 52(2):397-405.

تمت مراجعته من قبل الزملاء: Y

Page Count: 9

الواصفات: Foreign Countries, Refugees, Mothers, Second Language Learning, English (Second Language), Language Role, Land Settlement, Child Health, Health Services, Barriers, Cultural Differences, Child Rearing, Gender Differences, Needs Assessment, Language Proficiency, Self Esteem, Focus Groups, Qualitative Research, Low Achievement, Social Isolation

مصطلحات جغرافية: Australia, Iraq, Lebanon, Sudan

مستخلص: The importance of English language acquisition for resettlement of refugees is well established, particularly as a pathway to education, employment, health and social connections. A qualitative study was conducted in 2011 in Melbourne, Australia utilising focus groups with 87 refugee background women from Karen, Iraqi, Assyrian Chaldean, Lebanese, South Sudanese and Bhutanese refugee backgrounds. Focus groups and interviews were also conducted with 18 service providers and five bicultural and community workers. Several barriers were identified that prevented refugee mothers from learning English; however, some innovative and flexible models appear promising. The development, implementation and evaluation of innovative models and settings for refugee background women with young children to learn English in a culturally appropriate way are essential.

Abstractor: As Provided

المؤلفون: Gilson, Kim-Michelle, Davis, Elise, Corr, Lara, Stevenson, Shawn, Williams, Katrina, Reddihough, Dinah, Herrman, Helen, Fisher, Jane, Waters, Elizabeth

المصدر: Journal of Intellectual & Developmental Disability. 2018 43(4):463-472.

تمت مراجعته من قبل الزملاء: Y

Page Count: 10

الواصفات: Mental Health, Well Being, Parents, Disabilities, Children, Adolescents, Stress Management, Barriers, Social Isolation, Self Management, Social Support Groups, Parent Counseling

مستخلص: Background: Raising a child with a disability can place significant strain on the mental wellbeing of parents and carers. This study developed a mental wellbeing resource specifically for parents and carers of children and adolescents with a disability. Methods: Interviews with 20 parents and carers and 13 health and disability service professionals were conducted to determine resource content and format. Results: Key information areas for the resource were information about parent/carer wellbeing; understanding the barriers to wellbeing, including lack of support, being unable to ask for help, being isolated from the community, and having insufficient time or income to spend on self; suggestions on how to organise respite; and opportunities for increasing wellbeing. Conclusions: Given parental mental health is key to the quality of life of the child and family, it is recommended that the resource is distributed to parents and professionals, and adapted for different cultural and linguistic backgrounds.

Abstractor: As Provided

المؤلفون: Davis, Elise Catherine, Evans, Ashley, Uptmore, Caroline, Lang, Sarah, McElroy, Jessica K., Ellenburg, David, Nguyen, Tony, Kash, Bita A.

المصدر: European Journal of Training and Development. 2018 42(1):48-56.

تمت مراجعته من قبل الزملاء: Y

Page Count: 9

الواصفات: Foreign Countries, Business, Entrepreneurship, Models, Primary Health Care, Access to Health Care, Retailing, Clinics, Physicians, Recruitment, Health Insurance

مصطلحات جغرافية: Kenya

مستخلص: Purpose: The purpose of this paper is to present proposed solutions and interventions to some of the major barriers to providing adequate access to healthcare in Kenya. Specific business models are proposed to improve access to quality healthcare in low- and middle-income countries. Finally, strategies are developed for the retail clinic concept (RCC). Design/methodology/approach: Google Scholar, PubMed and EBSCOhost were among the databases used to collect articles relevant to the purpose in Kenya. Various governmental and news articles were collected from Google searches. Relevant business models from other sectors were considered for potential application to healthcare and the retail clinic concept. Findings: After a review of current methodologies and approaches to business and franchising models in various settings, the most relevant models are proposed as solutions to improving quality healthcare in Kenya through the RCC. For example, authors reviewed physician recruitment strategies, insurance plans and community engagement. The paper is informed by existing literature and reports as well as key informants. Research limitations/implications: This paper lacks primary data collection within Kenya and is limited to a brief scoping review of literature. The findings provide effective strategies for various business and franchising models in healthcare. Originality/value: The assembling of relevant information specific to Kenya and potential business models provides effective means of improving health delivery through business and franchising, focusing on innovative approaches and models that have proven effective in other settings.

Abstractor: As Provided