-
41دورية أكاديمية
المؤلفون: Björk, Maria, Wahlqvist, Moa, Huus, Karina, Anderzén-Carlsson, Agneta
المساهمون: Nyckelfonden, MoGård, Forskningskommittén Region Örebro Län
المصدر: British Journal of Visual Impairment ; volume 40, issue 1, page 18-28 ; ISSN 0264-6196 1744-5809
مصطلحات موضوعية: Ophthalmology
الوصف: Deafblindness is a combined vision and hearing disability that restricts communication, access to information, and mobility, thus limiting a person’s activities and full participation in society. Literature on how this might affect the lives of family members is sparse. The aim of this study is to describe the lived experience of family life from the perspective of one parent when the other has deafblindness. Six partners of deafblind parents, four men and two women, agreed to participate. Three were deaf and communicated in Swedish sign language. Qualitative interviews were conducted and analysed using interpretative phenomenological analysis. Seven themes were identified during the analysis. When one parent has deafblindness, communication within the family and with people outside the family is affected. The non-deafblind partners tried to integrate deafblindness into everyday family life and constantly strove to compensate for the losses caused by deafblindness. They tried to enhance participation and engagement in everyday family life for the parent with deafblindness by facilitating communication and taking a greater part in some areas of their shared responsibilities at home. The results reveal that these partners often put themselves in second place. They and their families needed support to manage family life. Deafblindness affects the life of the entire family, and the non-deafblind partner has to take considerable responsibility for everyday life. Everyday life can be facilitated by an adapted environment and appropriate support, which should be offered to the entire family.
-
42دورية أكاديمية
المساهمون: Swedish Stroke Association, Research Committee of Örebro County Council
المصدر: International Journal of Qualitative Studies on Health and Well-being ; volume 16, issue 1 ; ISSN 1748-2631
-
43
المؤلفون: Johansson, Anita, 1955, Andershed, Birgitta, 1947, Anderzen-Carlsson, Agneta, 1966
المصدر: Scandinavian Journal of Caring Sciences. 28(3):496-504
مصطلحات موضوعية: mother, father, parent, adult child, mental illness, mental health care, phenomenography., Hälso- och sjukvårdsforskning, Health and Medical Care Research, Vårdvetenskap, Nursing Science
الوصف: The aim of this study was to describe parents' conceptions of the mental health care provided to adult children suffering from mental illness. Data were collected using qualitative research interviews with a purposive sample of sixteen mothers and ten fathers. Phenomenographic analysis was used to identify conceptions and formulate descriptive categories. The first category, questioning the availability of care, describes mental health care as being unequal in terms of accessibility and lacking in continuity. The second category, disapproval of parental exclusion, illustrates conceptions that mental healthcare professionals disregard parents and do not provide them with adequate information. The third category, questioning the quality of care, encompasses conceptions of lack of trust in the professionals' competence, an unsatisfactory environment as well as inadequate cooperation with other healthcare providers and authorities. Positive aspects, such as being seen and confirmed, were mentioned as valuable by the parents.
وصف الملف: electronic
الوصول الحر: https://urn.kb.se/resolve?urn=urn:nbn:se:oru:diva-34617Test
https://oru.diva-portal.org/smash/get/diva2:710816/FULLTEXT02.pdfTest -
44
المؤلفون: Sundqvist, Ann-Sofie, 1971, Wahlqvist, Moa, 1979, Anderzen-Carlsson, Agneta, 1966, Olsson, Emma, 1980
وصف الملف: print
-
45
المؤلفون: Arvidsson Lindvall, Mialinn, 1977, Appelros, Peter, 1953, Forsberg, Anette, 1965, Anderzen-Carlsson, Agneta, 1966
مصطلحات موضوعية: stroke, balance experience, qualitative method
الوصف: Background: Stroke is the leading cause of serious, long-term disability among adults. Balance control after stroke may be affected due to motor impairment such as muscle weakness, spasticity and impaired sensory function and also cognitive deficits may affect balance control. The balance limitations affect walking and independence in activities of daily living. Having good balance has been described as an important factor in outdoor walking and for participation in exercises. Studies in which persons with stroke describe their experience of balance in everyday life are scarce.Purpose: The aim of the present presentation is to describe experiences of living with balance limitations in everyday life after first-ever stroke.Methods: Twenty persons initially agreed to participate; however, one person later declined further participation, thus giving a sample size of 19 participants (10 females and 9 men), aged between 42-92 years. The inclusion criteria were: having had a first-ever stroke and having self-reported impaired balance, unaffected speech, independence in toileting and dressing, and walking ability indoors and outdoors with or without a walking aid. A qualitative data collection through individual interviews was conducted. Data was analysed by means of an inductive content analysis covering both the manifest and the latent content of the transcribed interviews.Results: The participants' experiences of balance and its influence in everyday life, are presented in two themes. The first theme “Feeling dizzy and unstable is a continuous challenge”, revolves around participants' descriptions of balance as a constant feeling of dizziness and unsteadiness. The second theme “Feeling trust and confidence despite dizziness and unsteadiness” is about perceived abilities and feelings of confidence about still being able to do things oneself, despite the dizziness and unsteadiness.Conclusion(s): All participants experienced the balance limitations as a continuous challenge in everyday life, yet they also felt trust and confidence and experienced that they still managed their everyday life. In future research it would be of interest to establish which strategies can make persons with stroke feel in balance in relation to fear of falling.Implications:In physical therapy practice, the experiences of balance limitations after stroke from the person with stroke add valuable information to various assessments. By asking the person about their abilities and challenges in daily living, rehabilitation interventions can be more individualized and based on the person's actual condition and their wishes and needs.
وصف الملف: print
الوصول الحر: https://urn.kb.se/resolve?urn=urn:nbn:se:oru:diva-109619Test
https://www.abstractstosubmit.com/wcpt2019/archive/#/viewer/abstract/2884Test -
46
المؤلفون: Hjaldahl, Jennie, 1983, Granberg, Sarah, 1973, Widén, Stephen, 1975, Anderzen-Carlsson, Agneta, 1966
وصف الملف: print
-
47
المؤلفون: Gillå, Cristina, Lind, Maria, Lindgren Fändriks, Anna, Källström, Åsa, 1971, Anderzen-Carlsson, Agneta, 1966, Almqvist, Kjerstin
المصدر: Working Papers and Reports Social work.
مصطلحات موضوعية: Social Work, Socialt arbete
وصف الملف: electronic
-
48
المؤلفون: Almqvist, Kjerstin, 1953, Bäccman, Charlotte, 1973, Anderzen-Carlsson, Agneta, Norlén, Anna, Pernebo, Karin, Massoudi, Pamela
المصدر: iRiSk- Insatser och Risk/skyddsbedömningar för våldsutsatta barn Arbetsrapport.
مصطلحات موضوعية: Psykologi, Psychology
وصف الملف: electronic
-
49دورية أكاديمية
المؤلفون: Olsson, Emma, Anderzén-Carlsson, Agneta, Atladóttir, Sigríður María, Axelin, Anna, Campbell-Yeo, Marsha, Eriksson, Mats, Kristjánsdóttir, Gudrún, Peltonen, Emilia, Stevens, Bonnie, Vederhus, Bente, Andersen, Randi Dovland
المساهمون: Hjúkrunarfræðideild (HÍ), Faculty of Nursing (UI), Heilbrigðisvísindasvið (HÍ), School of Health Sciences (UI), Háskóli Íslands (HÍ), University of Iceland (UI)
مصطلحات موضوعية: Neonatal, Pain, Pain assessment, Nýburar, Sársauki
الوصف: Publisher's version (útgefin grein) ; Background: Preterm infants are especially vulnerable to pain. The intensive treatment often necessary for their survival unfortunately includes many painful interventions and procedures. Untreated pain can lead to both shortand long-term negative effects. The challenge of accurately detecting pain has been cited as a major reason for lack of pain management in these non-verbal patients. The Premature Infant Pain Profile (PIPP) is one of the most extensively validated measures for assessing procedural pain in premature infants. A revised version, PIPP-R, was recently published and is reported to be more user-friendly and precise than the original version. The aims of the study were to develop translated versions of the PIPP-R in Finnish, Icelandic, Norwegian, and Swedish languages, and to establish their content validity through a cultural adaptation process using cognitive interviews. Methods: PIPP-R was translated using the recommendations from the International Society for Pharmacoeconomics and Outcomes Research and enhanced with cognitive interviews. The respondent nurse was given a copy of the translated, national version of the measure and used this together with a text describing the infant in the film to assess the pain of an infant in a short film. During the assessment the nurse was asked to verbalize her thought process (thinking aloud) and upon completion the interviewer administered probing questions (verbal probing) from a structured interview guide. The interviews were recorded, transcribed, and analyzed using a structured matrix approach. Results: The systematic approach resulted in translated and culturally adapted versions of PIPP-R in the Finnish, Icelandic, Norwegian and Swedish languages. During the cultural adaptation process several problems were discovered regarding how the respondent understood and utilized the measure. The problems were either measure problems or other problems. Measure problems were solved by a change in the translated versions of ...
العلاقة: BMC Pediatrics;18(1); Olsson, E., Anderzén-Carlsson, A., Atladóttir, S.M. et al. Cultural adaptation and harmonization of four Nordic translations of the revised Premature Infant Pain Profile (PIPP-R). BMC Pediatr 18, 349 (2018) doi:10.1186/s12887-018-1322-5; https://hdl.handle.net/20.500.11815/1396Test; BMC Pediatrics
الإتاحة: https://doi.org/20.500.11815/1396Test
https://doi.org/10.1186/s12887-018-1322-5Test
https://hdl.handle.net/20.500.11815/1396Test -
50دورية أكاديمية
المساهمون: Swedish Stroke Association, Norrbacka-Eugenia Foundation, Research Committee, Örebro County Council
المصدر: Physiotherapy Theory and Practice ; volume 36, issue 1, page 211-218 ; ISSN 0959-3985 1532-5040
النص الكامل