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المؤلفون: Bartha Maria Knoppers, Adrian Thorogood
المصدر: Current Opinion in Systems Biology. 4:53-57
مصطلحات موضوعية: 0301 basic medicine, business.industry, Applied Mathematics, education, Big data, Legislation, Public relations, International law, Bioinformatics, General Biochemistry, Genetics and Molecular Biology, Computer Science Applications, Ethos, Data sharing, 03 medical and health sciences, 030104 developmental biology, 0302 clinical medicine, Alliance, Modeling and Simulation, General Data Protection Regulation, Drug Discovery, 030212 general & internal medicine, business, Set (psychology)
الوصول الحر: https://explore.openaire.eu/search/publication?articleId=doi_________::bbf4a57e57fbe19cdba8bb7d5a99d091Test
https://doi.org/10.1016/j.coisb.2017.07.001Test -
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المؤلفون: Shaman Narayanasamy, Varvara Markina, Adrian Thorogood, Adriana Blazkova, Mahsa Shabani, Bartha M. Knoppers, Barbara Prainsack, Robert Koesters
مصطلحات موضوعية: Genetics, Genetic Engineering, Biomarkers, Developmental Genetics (incl. Sex Determination), Epigenetics (incl. Genome Methylation and Epigenomics), Gene Expression (incl. Microarray and other genome-wide approaches), Genome Structure and Regulation, Genomics, Genetically Modified Animals, Livestock Cloning, Gene and Molecular Therapy, NGS, ELSI, policies, procedures, patient rights, research participant rights, raw, GDPR
الإتاحة: https://doi.org/10.3389/fgene.2020.00303.s002Test
https://figshare.com/articles/dataset/Data_Sheet_2_Genomic_Sequencing_Capacity_Data_Retention_and_Personal_Access_to_Raw_Data_in_Europe_PDF/12250460Test -
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المؤلفون: Shaman Narayanasamy, Varvara Markina, Adrian Thorogood, Adriana Blazkova, Mahsa Shabani, Bartha M. Knoppers, Barbara Prainsack, Robert Koesters
مصطلحات موضوعية: Genetics, Genetic Engineering, Biomarkers, Developmental Genetics (incl. Sex Determination), Epigenetics (incl. Genome Methylation and Epigenomics), Gene Expression (incl. Microarray and other genome-wide approaches), Genome Structure and Regulation, Genomics, Genetically Modified Animals, Livestock Cloning, Gene and Molecular Therapy, NGS, ELSI, policies, procedures, patient rights, research participant rights, raw, GDPR
الإتاحة: https://doi.org/10.3389/fgene.2020.00303.s006Test
https://figshare.com/articles/dataset/Table_1_Genomic_Sequencing_Capacity_Data_Retention_and_Personal_Access_to_Raw_Data_in_Europe_XLSX/12250472Test -
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المؤلفون: Adrian Thorogood, Bartha Maria Knoppers, Robert Cook-Deegan
المصدر: Genetics in Medicine
مصطلحات موضوعية: 0301 basic medicine, Genomic data, data sharing, Context (language use), computer.software_genre, 03 medical and health sciences, Special Article, Databases, Genetic, genomics, Humans, Genetics (clinical), Data Curation, legal, Clinical genomics, Database, variant databases, Information Dissemination, Corporate governance, Interpretation (philosophy), Liability, Genetic Variation, Data sharing, 030104 developmental biology, Harm, Business, liability, Databases, Nucleic Acid, computer
الوصول الحر: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::00427351ba949d3c41f4f3279da9759dTest
http://europepmc.org/articles/PMC5527130Test -
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المؤلفون: Adrian Thorogood, Bartha Maria Knoppers, Yann Joly, Amalia M Issa
المصدر: Genetics in Medicine
مصطلحات موضوعية: 0301 basic medicine, medicine.medical_specialty, United States Food and Drug Administration, Evidence gathering, business.industry, Comment, MEDLINE, Correction, Precision medicine, United States, 03 medical and health sciences, 030104 developmental biology, 0302 clinical medicine, 030220 oncology & carcinogenesis, Mutation, Rare mutations, medicine, Humans, Precision Medicine, Intensive care medicine, business, Drug Approval, Genetics (clinical)
الوصول الحر: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::74b87a6b57723a21b7cccb9944ab98f1Test
http://europepmc.org/articles/PMC6752286Test -
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المؤلفون: Bartha Maria Knoppers, Adrian Thorogood, Ma'n H. Zawati
المصدر: Genetics in Medicine. 21:2401-2402
مصطلحات موضوعية: Duty to Recontact, 0301 basic medicine, Reinterpretation, Genetics, Medical, MEDLINE, Genetic variants, Genomics, 030105 genetics & heredity, United States, Genealogy, 03 medical and health sciences, 030104 developmental biology, Nothing, Humans, Psychology, Genetics (clinical)
الوصول الحر: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::d67757d089cc98ea505db2ac19809ea0Test
https://doi.org/10.1038/s41436-019-0494-1Test -
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المؤلفون: Adrian Thorogood, Bartha Maria Knoppers, Gratien Dalpé
المصدر: Frontiers in Genetics
Frontiers in Genetics, Vol 10 (2019)مصطلحات موضوعية: 0301 basic medicine, legally authorized representatives, lcsh:QH426-470, Vulnerable adult, media_common.quotation_subject, Best practice, data sharing, education, Vulnerability, human rights, 03 medical and health sciences, 0302 clinical medicine, Policy and Practice Reviews, children, Research participant, Genetics, Data Protection Act 1998, Genetics (clinical), media_common, Research ethics, research, business.industry, capacity, Public relations, 16. Peace & justice, humanities, 3. Good health, lcsh:Genetics, 030104 developmental biology, 030220 oncology & carcinogenesis, Molecular Medicine, consent, incompetent adults, Return of results, Psychology, business, Autonomy
الوصول الحر: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::f261229200ed179927687fe53e51f0a0Test
http://europepmc.org/articles/PMC6459892Test -
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المؤلفون: Chris Gastmans, Serge Gauthier, Adrian Thorogood, Anna Mäki-Petäjä-Leinonen, Gratien Dalpé
مصطلحات موضوعية: Gerontology, Informed Consent, business.industry, MEDLINE, medicine.disease, Ethics, Research, Informed consent, medicine, Openness to experience, Humans, Dementia, Mental Competency, Neurology (clinical), business, Inclusion (education), Dementia research
وصف الملف: Print
الوصول الحر: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::1d3e34605884120ceb2167df3feb3dfaTest
https://lirias.kuleuven.be/handle/123456789/633223Test -
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المؤلفون: Mike Burgess, Lisa Eckstein, Heidi Beate Bentzen, Stephanie M. Fullerton, Eric M. Meslin, Barbara A. Koenig, Jane Kaye, Mahsa Shabani, Spero M. Manson, Kazuto Kato, Kieran C. O’Doherty, Edward S. Dove, Pascal Borry, Mildred K. Cho, Ryuichi Ida, Dianne Nicol, Kimberlyn McGrail, Adrian Thorogood, Jantina de Vries, Wylie Burke, Barbara Prainsack, Holly K. Tabor, Don Chalmers
مصطلحات موضوعية: 0303 health sciences, Multidisciplinary, Informed Consent, business.industry, media_common.quotation_subject, Internet privacy, Genomics, Public domain, Neglect, Data sharing, 03 medical and health sciences, Open data, 0302 clinical medicine, Informed consent, Political science, Confidentiality, business, Data release, 030217 neurology & neurosurgery, 030304 developmental biology, media_common, Clearance
وصف الملف: Print
الوصول الحر: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::6564881176deee6e10187eda1c7eafadTest
http://hdl.handle.net/10852/76217Test -
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المؤلفون: Jerome Atutornu, Richard Milne, Paul Bevan, Adrian Thorogood, James Smith, Danya F. Vears, Emilia Niemiec, Claire Steed, Lauren Farley, Katherine I. Morley, Anna Middleton, Barbara Prainsack, Erika Kleiderman, Heidi Carmen Howard
المساهمون: Middleton, Anna [0000-0003-3103-8098], Milne, Richard [0000-0002-8770-2384], Apollo - University of Cambridge Repository
المصدر: European Journal of Medical Genetics
Middleton, A, Milne, R, Thorogood, A, Kleiderman, E, Niemiec, E, Prainsack, B, Farley, L, Bevan, P, Steed, C, Smith, J, Vears, D, Atutornu, J, Howard, H C & Morley, K I 2018, ' Attitudes of publics who are unwilling to donate DNA data for research ', EUROPEAN JOURNAL OF MEDICAL GENETICS . https://doi.org/10.1016/j.ejmg.2018.11.014Testمصطلحات موضوعية: 0301 basic medicine, Adult, Male, Health Knowledge, Attitudes, Practice, GENETICS, GENOMIC RESEARCH, Information Dissemination, DIVERSITY, Social Sciences, INCLUSION, 030105 genetics & heredity, DATABASES, Article, 03 medical and health sciences, Genetic engineering, FEARS, Informed consent, Genetics, Humans, Sociology, Genetic Privacy, Genetics (clinical), EXPECTATIONS, Medicinsk genetik, Genetics & Heredity, Refusal to Participate, Science & Technology, Informed Consent, business.industry, Interpretation (philosophy), Perspective (graphical), Samhällsvetenskap, VIEWS, Human Genetics, General Medicine, Public relations, SERVICES, Middle Aged, Publics, 3. Good health, 030104 developmental biology, Donation, Female, HEALTH, business, Medical Genetics, Life Sciences & Biomedicine, Medical ethics
وصف الملف: Print-Electronic; application/pdf
الوصول الحر: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::78da7f5bb61ea4a0f14cb3d84a4526a2Test
https://pubmed.ncbi.nlm.nih.gov/30476628Test
