دورية أكاديمية
Hiring, training, and supporting Peer Research Associates: Operationalizing community-based research principles within epidemiological studies by, with, and for women living with HIV
| العنوان: | Hiring, training, and supporting Peer Research Associates: Operationalizing community-based research principles within epidemiological studies by, with, and for women living with HIV |
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| المؤلفون: | Kaida, Angela, Carter, Allison, Nicholson, Valerie, Lemay, Jo, O’Brien, Nadia, Greene, Saara, Tharao, Wangari, Proulx-Boucher, Karène, Gormley, Rebecca, Benoit, Anita, Bernier, Mélina, Thomas-Pavanel, Jamie, Lewis, Johanna, de Pokomandy, Alexandra, Loutfy, Mona |
| المساهمون: | British Columbia Centre for Excellence in HIV/AIDS |
| بيانات النشر: | BioMed Central |
| سنة النشر: | 2019 |
| المجموعة: | University of British Columbia: cIRcle - UBC's Information Repository |
| مصطلحات موضوعية: | HIV, Women, Community-based research, Training, Peers, Harm reduction, Community engagement, Cohort studies, CHIWOS |
| جغرافية الموضوع: | British Columbia, Ontario, Québec |
| الوصف: | Background: A community-based research (CBR) approach is critical to redressing the exclusion of women—particularly, traditionally marginalized women including those who use substances—from HIV research participation and benefit. However, few studies have articulated their process of involving and engaging peers, particularly within large-scale cohort studies of women living with HIV where gender, cultural and linguistic diversity, HIV stigma, substance use experience, and power inequities must be navigated. Methods: Through our work on the Canadian HIV Women’s Sexual and Reproductive Health Cohort Study (CHIWOS), Canada’s largest community-collaborative longitudinal cohort of women living with HIV (n = 1422), we developed a comprehensive, regionally tailored approach for hiring, training, and supporting women living with HIV as Peer Research Associates (PRAs). To reflect the diversity of women with HIV in Canada, we initially hired 37 PRAs from British Columbia, Ontario, and Quebec, prioritizing women historically under-represented in research, including women who use or have used illicit drugs, and women living with HIV of other social identities including Indigenous, racialized, LGBTQ2S, and sex work communities, noting important points of intersection between these groups. Results: Building on PRAs’ lived experience, research capacity was supported through a comprehensive, multi-phase, and evidence-based experiential training curriculum, with mentorship and support opportunities provided at various stages of the study. Challenges included the following: being responsive to PRAs’ diversity; ensuring PRAs’ health, well-being, safety, and confidentiality; supporting PRAs to navigate shifting roles in their community; and ensuring sufficient time and resources for the translation of materials between English and French. Opportunities included the following: mutual capacity building of PRAs and researchers; community-informed approaches to study the processes and challenges; enhanced recruitment of ... |
| نوع الوثيقة: | article in journal/newspaper |
| اللغة: | English |
| العلاقة: | Harm Reduction Journal. 2019 Jul 18;16(1):47; http://hdl.handle.net/2429/71053Test |
| DOI: | 10.1186/s12954-019-0309-3 |
| الإتاحة: | https://doi.org/10.1186/s12954-019-0309-3Test http://hdl.handle.net/2429/71053Test |
| حقوق: | Attribution 4.0 International (CC BY 4.0) ; http://creativecommons.org/licenses/by/4.0Test/ ; The Author(s). |
| رقم الانضمام: | edsbas.B3754E18 |
| قاعدة البيانات: | BASE |
| DOI: | 10.1186/s12954-019-0309-3 |
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