التفاصيل البيبلوغرافية
| العنوان: |
Erythropoietic protoporphyria and afamelanotide: a patient’s perspective. |
| المؤلفون: |
O’Reilly, Marese1 marese.oreilly2@nhs.scot, McGuire, Vicky A.1, Dawe, Robert S.1 |
| المصدر: |
Clinical & Experimental Dermatology. Feb2024, Vol. 49 Issue 2, p186-187. 2p. |
| مصطلحات موضوعية: |
*ERYTHROPOIETIC protoporphyria, *PATIENTS' attitudes, *QUALITY of life, *SCHOOL children, *SEATING (Furniture), *ECZEMA |
| مستخلص: |
This article, titled "Erythropoietic protoporphyria and afamelanotide: a patient's perspective," provides insights into the experiences of a patient living with erythropoietic protoporphyria (EPP). The patient describes the challenges and pain associated with the condition, including severe reactions to sunlight and the resulting skin damage. The article also highlights the positive impact of afamelanotide, a treatment that has significantly improved the patient's quality of life. The article emphasizes the need for increased awareness and access to this life-changing treatment for individuals living with EPP. [Extracted from the article] |
| قاعدة البيانات: |
Academic Search Index |
