-
1
المؤلفون: Nicole Gusset, Caroline Stalens, Mencia de Lemus, Marie-Christine Ouillade, Eva Stumpe, Alexandre Mejat, Lori Klouvi
المصدر: Neuromuscular disorders : NMD. 31(5)
مصطلحات موضوعية: 0301 basic medicine, Gerontology, Adult, Male, Adolescent, Severity of Illness Index, Muscular Atrophy, Spinal, 03 medical and health sciences, Young Adult, 0302 clinical medicine, Disease severity, Surveys and Questionnaires, Agency (sociology), medicine, Daily living, Humans, Child, Genetics (clinical), Aged, Response rate (survey), Aged, 80 and over, business.industry, Infant, Newborn, Infant, Patient Preference, Spinal muscular atrophy, Middle Aged, SMA, medicine.disease, Alternative treatment, Clinical trial, Europe, 030104 developmental biology, Neurology, Child, Preschool, Pediatrics, Perinatology and Child Health, Quality of Life, Female, Neurology (clinical), business, 030217 neurology & neurosurgery
الوصول الحر: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::9479a236ce3289c803d3b7d88c34e91fTest
https://pubmed.ncbi.nlm.nih.gov/33752935Test -
2
المؤلفون: Eugenio Mercuri, Sonia Messina, Jacqueline Montes, Francesco Muntoni, Valeria A. Sansone, Laura Antonaci, Matt Civitello, Giorgia Coratti, Mencia de Lemus, Roberto de Sanctis, Marcus Droege Avexis, Tina Duong, Richard Finkel, Anna Lia Frongia, Ksenija Gorni Roche, Chad Heatwole, Nicole Gusset, Erik Henricson, Anna Mayhew, Chiara Marchesi, Amy Pasternak, Astrid Pechmann, Maria Carmela Pera, Ivana Rubino, Valeria Sansone, Mary Schroth, Dylan Trundell, Volker Straub
مصطلحات موضوعية: Gerontology, Health related quality of life, Quality of life, Activities of daily living, Settore MED/48 - SCIENZE INFERMIERISTICHE E TECNICHE NEURO-PSICHIATRICHE E RIABILITATIVE, business.industry, Activity of daily living, MEDLINE, Caregiver burden, Spinal muscular atrophy, medicine.disease, SMA, Quality of life (healthcare), Settore MED/39 - NEUROPSICHIATRIA INFANTILE, Neurology, Pediatrics, Perinatology and Child Health, medicine, Neurology (clinical), business, Genetics (clinical)
الوصول الحر: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::a631e903c9e3ed2f54be943d6ad2b113Test
http://hdl.handle.net/10807/182745Test -
3
المؤلفون: Nicole Gusset, Ria Broekgaarden, Francoise Rouault, Patryk Marczuk, Inge Schwersenz, Vanessa Christie-Brown, Doug Henderson, Gil Bellis, Christian Cottet
المصدر: Neuromuscular disorders : NMD. 27(5)
مصطلحات موضوعية: 0301 basic medicine, Adult, medicine.medical_specialty, Adolescent, media_common.quotation_subject, Disease, 030105 genetics & heredity, Spinal Muscular Atrophies of Childhood, Cohort Studies, 03 medical and health sciences, Young Adult, 0302 clinical medicine, Quality of life (healthcare), Cost of Illness, Perception, Surveys and Questionnaires, Activities of Daily Living, medicine, Humans, Set (psychology), Child, Genetics (clinical), Disease burden, media_common, Aged, business.industry, Infant, Newborn, Infant, Spinal muscular atrophy, Middle Aged, medicine.disease, SMA, Anticipation, Psychological, Europe, Neurology, Child, Preschool, Pediatrics, Perinatology and Child Health, Well-being, Physical therapy, Quality of Life, Neurology (clinical), business, Attitude to Health, 030217 neurology & neurosurgery
الوصول الحر: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::5c11a1544616a94261515d3f3db7fc0cTest
https://pubmed.ncbi.nlm.nih.gov/28237437Test