المؤلفون: Merel M. Nap-van der Vlist, Reine C. van der Wal, Eva Grosfeld, Elise M. van de Putte, Geertje W. Dalmeijer, Martha A. Grootenhuis, Cornelis K. van der Ent, Marry M. van den Heuvel-Eibrink, Joost F. Swart, Guy Bodenmann, Catrin Finkenauer, Sanne L. Nijhof

المصدر: Frontiers in Psychology, Vol 12 (2021)

مصطلحات موضوعية: childhood disease, dyadic coping, parent-child relationship, quality of life, stress communication, Psychology, BF1-990

وصف الملف: electronic resource

العلاقة: https://www.frontiersin.org/articles/10.3389/fpsyg.2021.701540/fullTest; https://doaj.org/toc/1664-1078Test

الوصول الحر: https://doaj.org/article/e7a705a283d34c2fa521fdde7b774b89Test

المؤلفون: Luiza R. Grazziotin, Gillian Currie, Marinka Twilt, Maarten J. IJzerman, Michelle M. A. Kip, Hendrik Koffijberg, Gouke Bonsel, Susanne M. Benseler, Joost F. Swart, Sebastiaan J. Vastert, Nico M. Wulffraat, Rae S. M. Yeung, Wineke Armbrust, J. Merlijn van den Berg, Deborah A. Marshall

المساهمون: Health Technology & Services Research, Public Health, Paediatric Infectious Diseases / Rheumatology / Immunology, AII - Inflammatory diseases

المصدر: Pediatric Rheumatology, 20(1):51, 1-12. BioMed Central Ltd.
Pediatric rheumatology, 20(1):51. BioMed Central Ltd.
Pediatric Rheumatology, 20(1):51. BioMed Central Ltd.
Pediatric Rheumatology, 20(1):51. BioMed Central

مصطلحات موضوعية: Adult, Male, Adolescent, IMPACT, Arthritis, Juvenile, Cross-Sectional Studies, Caregivers, Rheumatology, Surveys and Questionnaires, SWEDEN, Pediatrics, Perinatology and Child Health, Quality of Life, Humans, Immunology and Allergy, Female, BURDEN, Child

وصف الملف: application/pdf

الوصول الحر: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::7bc075dd2f19fdc25d4f46a8cd83df01Test
https://doi.org/10.1186/s12969-022-00713-7Test

المؤلفون: Merel M, Nap-van der Vlist, Johanna W, Hoefnagels, Geertje W, Dalmeijer, Neha, Moopen, Cornelis K, van der Ent, Joost F, Swart, Elise M, van de Putte, Sanne L, Nijhof

المصدر: European journal of epidemiology. 37(9)

مصطلحات موضوعية: Cohort Studies, Parents, Adolescent, Child, Preschool, Health Status, Chronic Disease, Quality of Life, Humans, Child, Fatigue

الوصول الحر: https://explore.openaire.eu/search/publication?articleId=pmid________::d0eaa3a6f950d905772ca255434b8f86Test
https://pubmed.ncbi.nlm.nih.gov/35980506Test

المؤلفون: Nathan Buijsse, Joost F. Swart, Nico M Wulffraat, Mark Klein, Sytze de Roock, Vicki L. Seyfert-Margolis, Martijn J. H. Doeleman, Gouke J. Bonsel

المساهمون: Public Health

المصدر: Pediatric Rheumatology, 19, 1. BMC
Pediatric Rheumatology Online Journal, Vol 19, Iss 1, Pp 1-7 (2021)
Pediatric Rheumatology Online Journal
Pediatric Rheumatology, 19(1):40. BioMed Central Ltd.

مصطلحات موضوعية: Male, medicine.medical_specialty, lcsh:Diseases of the musculoskeletal system, Adolescent, Health-related quality of life, Population, Arthritis, Monitoring, Ambulatory, EQ-5D-Y-5 L, 03 medical and health sciences, Juvenile Arthritis Disease Activity Score, Diagnostic Self Evaluation, 0302 clinical medicine, Mobile applications, Rheumatology, Quality of life, Internal medicine, Immunology and Allergy, Medicine, Juvenile, Humans, 030212 general & internal medicine, Disease activity, education, Child, Juvenile idiopathic arthritis, Health-related quality of life, EQ-5D-Y-5 L, Disease activity, Remote monitoring, Mobile applications, E-health, Retrospective Studies, 030203 arthritis & rheumatology, Health related quality of life, education.field_of_study, E-health, Receiver operating characteristic, business.industry, lcsh:RJ1-570, lcsh:Pediatrics, Juvenile idiopathic arthritis, medicine.disease, Arthritis, Juvenile, Remote monitoring, Pediatrics, Perinatology and Child Health, Quality of Life, Female, lcsh:RC925-935, business, Research Article

وصف الملف: text/plain; image/pdf

الوصول الحر: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::a89fb1453ae84b6e4d21143d86ab394bTest
http://www.scopus.com/inward/record.url?scp=85103162695&partnerID=8YFLogxKTest

المؤلفون: Elise M. van de Putte, Kors van der Ent, Marry M. van den Heuvel-Eibrink, Merel M Nap-van der Vlist, Joost F Swart, Sanne L. Nijhof, Martha A. Grootenhuis, Geertje W. Dalmeijer

المصدر: BMJ Paediatrics Open
BMJ Paediatrics Open, Vol 5, Iss 1 (2021)

مصطلحات موضوعية: Biopsychosocial model, Male, medicine.medical_specialty, Adolescent, Cross-sectional study, rheumatology, Pediatrics, RJ1-570, cystic fibrosis, 03 medical and health sciences, 0302 clinical medicine, General Paediatrics, 030225 pediatrics, Internal medicine, Surveys and Questionnaires, medicine, Outpatient clinic, Humans, 030212 general & internal medicine, Child, Depressive symptoms, Fatigue, business.industry, Outcome measures, Regression analysis, Rheumatology, Chronic disease, Cross-Sectional Studies, Pediatrics, Perinatology and Child Health, Chronic Disease, Quality of Life, Female, business, Clinical psychology

الوصول الحر: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::699371f9f6239318012aac0bf20296f7Test
http://europepmc.org/articles/PMC7893660Test

المؤلفون: Merel M. Nap-van der Vlist (11195088), Reine C. van der Wal (11195091), Eva Grosfeld (11195094), Elise M. van de Putte (3611372), Geertje W. Dalmeijer (3850525), Martha A. Grootenhuis (11195097), Cornelis K. van der Ent (11195100), Marry M. van den Heuvel-Eibrink (7391279), Joost F. Swart (8686359), Guy Bodenmann (5902643), Catrin Finkenauer (3831592), Sanne L. Nijhof (11195103)

مصطلحات موضوعية: Applied Psychology, Clinical Psychology, Developmental and Educational Psychology, Neuroscience and Physiological Psychology, Organizational Behavioral Psychology, Personality, Social and Criminal Psychology, Gender Psychology, Health, Clinical and Counselling Psychology, Industrial and Organisational Psychology, Psychology not elsewhere classified, Psychology and Cognitive Sciences not elsewhere classified, childhood disease, dyadic coping, parent-child relationship, quality of life, stress communication

العلاقة: https://figshare.com/articles/dataset/Data_Sheet_1_Parent-Child_Dyadic_Coping_and_Quality_of_Life_in_Chronically_Diseased_Children_docx/15065265Test

الإتاحة: https://doi.org/10.3389/fpsyg.2021.701540.s001Test

المؤلفون: Joost F. Swart, Sanne L. Nijhof, Merel M. Nap-van der Vlist, Elise M. van de Putte, Geertje W. Dalmeijer, Martha A. Grootenhuis, Marry M. van den Heuvel-Eibrink, Nico M Wulffraat, Raphaële R. L. van Litsenburg, Cornelis K. van der Ent

المساهمون: Child and Adolescent Psychiatry & Psychosocial Care, APH - Mental Health, ARD - Amsterdam Reproduction and Development, APH - Methodology, Amsterdam Reproduction & Development (AR&D), Pediatric surgery

المصدر: Archives of disease in childhood, 104(11), 1090-1095. BMJ Publishing Group
Archives of Disease in Childhood, 104(11), 1090. BMJ Publishing Group
Archives of Disease in Childhood, 104(11), 1090-1095. BMJ Publishing Group
Nap-van der Vlist, M M, Dalmeijer, G W, Grootenhuis, M A, van der Ent, C K, van den Heuvel-Eibrink, M M, Wulffraat, N M, Swart, J F, van Litsenburg, R R L, van de Putte, E M & Nijhof, S L 2019, ' Fatigue in childhood chronic disease ', Archives of Disease in Childhood, vol. 104, no. 11, pp. 1090-1095 . https://doi.org/10.1136/archdischild-2019-316782Test

مصطلحات موضوعية: Male, Pediatrics, medicine.medical_specialty, Future studies, Adolescent, Population, autoimmune disease, Disease, Severity of Illness Index, cystic fibrosis, 03 medical and health sciences, 0302 clinical medicine, Quality of life, Cancer Survivors, Journal Article, Medicine, Outpatient clinic, Humans, 030212 general & internal medicine, Pediatrics, Perinatology, and Child Health, education, Child, education.field_of_study, business.industry, Incidence (epidemiology), Hospitals, Pediatric, Perinatology, and Child Health, Chronic disease, Cross-Sectional Studies, paediatric oncology, 030220 oncology & carcinogenesis, Child, Preschool, Pediatrics, Perinatology and Child Health, Quality of Life, Female, fatigue, business, Psychosocial, chronic disease

وصف الملف: image/pdf; text/plain

الوصول الحر: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::9ade11ea1afacd863fa41b6ee4e24f45Test
https://pure.amc.nl/en/publications/fatigue-in-childhood-chronic-diseaseTest(a0c117f1-02a2-4090-a580-59eaf41ae15d).html

المؤلفون: Nicolino Ruperto, Joost F Swart, Rik Joos, Alessandro Consolaro, Francesca Bovis, Carine Wouters, Joke Dehoorne

المصدر: Rheumatology International, 38(suppl 1), 187. Springer Verlag
Rheumatology International
RHEUMATOLOGY INTERNATIONAL

مصطلحات موضوعية: Male, Parents, Gerontology, Disease status, Health Status, Arthritis, CHILDREN, Disability Evaluation, 0302 clinical medicine, Belgium, Medicine and Health Sciences, Immunology and Allergy, Functional ability, Age of Onset, Child, JAMAR, Prognosis, Child, Preschool, Rheumatoid arthritis, language, Female, DISABILITY MEASUREMENT TOOL, IDIOPATHIC ARTHRITIS, medicine.medical_specialty, Adolescent, Patients, Psychometrics, Immunology, Multidimensional assessment, 03 medical and health sciences, Rheumatology, Predictive Value of Tests, 030225 pediatrics, Internal medicine, medicine, Humans, Juvenile, Health related quality of life, Validation Studies, Patient Reported Outcome Measures, 030203 arthritis & rheumatology, Cultural Characteristics, business.industry, PARENT, Reproducibility of Results, Translating, Juvenile idiopathic arthritis, medicine.disease, Arthritis, Juvenile, language.human_language, RHEUMATOID-ARTHRITIS, Flemish, Case-Control Studies, Quality of Life, SCALES, business

وصف الملف: Print-Electronic; application/pdf; image/pdf

الوصول الحر: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::d9e5652742965f5c713d723aa3911b4cTest
https://doi.org/10.1007/s00296-018-3935-2Test

المؤلفون: Nicolino Ruperto, Sebastiaan J. Vastert, Francesca Bovis, Joost F Swart, Sylvia Kamphuis, Philomine A van Pelt, Annette van Dijk-Hummelman, Nico M Wulffraat, Alessandro Consolaro, Pieter Van Dijkhuizen

المساهمون: Pediatrics

المصدر: Rheumatology International, 38(suppl 1), 139. Springer Verlag
Rheumatology International
Rheumatology International, 38, 139-146. Springer-Verlag

مصطلحات موضوعية: Male, Parents, Health Status, Health-related quality of life, Arthritis, Disease status, Functional ability, JAMAR, Juvenile idiopathic arthritis, Rheumatology, Immunology and Allergy, Immunology, Disability Evaluation, 0302 clinical medicine, Age of Onset, Child, Netherlands, Prognosis, Child, Preschool, Female, Polyarthritis, Patient-reported outcome, medicine.medical_specialty, Adolescent, Patients, Psychometrics, Likert scale, 03 medical and health sciences, Cronbach's alpha, Predictive Value of Tests, 030225 pediatrics, medicine, Humans, Validation Studies, Patient Reported Outcome Measures, 030203 arthritis & rheumatology, Cultural Characteristics, business.industry, Discriminant validity, Reproducibility of Results, Construct validity, Translating, medicine.disease, Arthritis, Juvenile, Case-Control Studies, Quality of Life, Physical therapy, business

وصف الملف: image/pdf; application/pdf

الوصول الحر: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::27d8d22b5429c396c5106158dfe09c66Test
https://doi.org/10.1007/s00296-018-3971-yTest

المؤلفون: Nicolino Ruperto, Joost F Swart, Veronika Vargova, Sytze de Roock, Flavio Sztajnbok, Troels Herlin, Sujata Sawhney, Helga Sanner, Pavla Dolezalova, Marite Rygg, Nico M Wulffraat, Gordana Susic, Gabriella Giancane, Roline M Krol, Marco Cattalini, Ellen Nordal, Despoina Maritsi, Tamás Constantin, Sheila Knupp D.E. Oliveira, Alberto Martini, Claudia Saad Magalhães

المصدر: Oral Presentations.

مصطلحات موضوعية: 030203 arthritis & rheumatology, 0301 basic medicine, medicine.medical_specialty, business.industry, Arthritis, Disease, medicine.disease, Inflammatory bowel disease, Etanercept, 03 medical and health sciences, 030104 developmental biology, 0302 clinical medicine, Quality of life, Internal medicine, Pharmacovigilance, Public employee, medicine, business, Psychosocial, medicine.drug

الوصول الحر: https://explore.openaire.eu/search/publication?articleId=doi_________::fb3087010b07128aa336c1235064484fTest
https://doi.org/10.1136/annrheumdis-2019-eular.3189Test