نتائج البحث - "Erwin Patricia J"

العلاقة: Shippee, Nathan D.; Domecq Garces, Juan Pablo; Prutsky Lopez, Gabriela J.; Wang, Zhen; Elraiyah, Tarig A.; Nabhan, Mohammed; Brito, Juan P.; Boehmer, Kasey; Hasan, Rim; Firwana, Belal; Erwin, Patricia J.; Montori, Victor M.; Murad, M Hassan (2015). "Patient and service user engagement in research: a systematic review and synthesized framework." Health Expectations 18(5): 1151-1166.; https://hdl.handle.net/2027.42/113737Test; Health Expectations; Wright JG, Young NL. The patient‐specific index: asking patients what they want. Journal of Bone and Joint Surgery. American Volume, 1997; 79: 974 – 983.; Garcia CM, Gilchrist L, Campesino C, Raymond N, Naughton S, de Patino JG. Using community‐based participatory research to develop a bilingual mental health survey for Latinos. Progress in Community Health Partnerships, 2008; 2: 105 – 120.; Cashman SB, Adeky S, Allen AJ III et al. The power and the promise: working with communities to analyze data, interpret findings, and get to outcomes. American Journal of Public Health, 2008; 98: 1407 – 1417.; McCauley LA, Beltran M, Phillips J, Lasarev M, Sticker D. The Oregon migrant farmworker community: an evolving model for participatory research. Environmental Health Perspectives, 2001; 109 ( Suppl. 3 ): 449 – 455.; Cotterell P. Exploring the value of service user involvement in data analysis: ‘Our interpretation is about what lies below the surface'. Educational Action Research, 2008; 16: 5 – 17.; Chalmers I. What do I want from health research and researchers when I am a patient? BMJ, 1995; 310: 1315 – 1318.; Seifer SD, Sisco S. Mining the challenges of CBPR for improvements in urban health. Journal of urban health: bulletin of the New York Academy of Medicine, 2006; 83: 981 – 984.; Roe KM, Minkler M, Saunders FF. Combining research, advocacy, and education: the methods of the Grandparent Caregiver Study. Health Education Quarterly, 1995; 22: 458 – 475.; van Wersch A, Eccles M. Involvement of consumers in the development of evidence based clinical guidelines: practical experiences from the North of England evidence based guideline development programme. Quality in health care: QHC, 2001; 10: 10 – 16.; Sayers J. Clinical trial registries: a survey of patient advocate group perceptions. Drug Information Journal, 2009; 2: 195 – 200.; Freysteinson WM. The ethical community consultation model as preparation for nursing research: a case study. Nursing Ethics, 2010; 6: 749 – 758.; van Staa T‐P, Leufkens HG, Zhang B, Smeeth L. A comparison of cost effectiveness using data from randomized trials or actual clinical practice: selective cox‐2 inhibitors as an example. PLoS Medicine, 2009; 6: e1000194.; Involvement Team: NHS County Durham and Darlington. Patient & Public Involvement Toolkit: a quick guide to support healthcare commissioners. NHS, 2011 Report. Available at: http://www.darlington.gov.uk/PublicMinutes/Health%20and%20Partnerships%20Scrutiny%20Committee/February52014%202012/Appendix%205%20-%20Appendix%205.pdfTest, accessed 22 May 2013.; Potvin L, Cargo M, McComber AM, Delormier T, Macaulay AC. Implementing participatory intervention and research in communities: lessons from the Kahnawake Schools Diabetes Prevention Project in Canada. Social Science & Medicine, 2003; 56: 1295 – 1305.; Butterfoss FD. Process evaluation for community participation. Annual Review of Public Health, 2006; 27: 323 – 340.; Thurston WE, Vollman AR, Meadows LM, Rutherford E. Public participation for women's health: strange bedfellows or partners in a cause? Health Care for Women International, 2005; 26: 398 – 421.; Thurston WE, MacKean G, Vollman A et al. Public participation in regional health policy: a theoretical framework. Health Policy, 2005; 73: 237 – 252.; Ntshanga SP, Ngcobo PS, Mabaso ML. Establishment of a Community Advisory Board (CAB) for tuberculosis control and research in the Inanda, Ntuzuma and KwaMashu (INK) area of KwaZulu‐Natal, South Africa. Health Policy, 2010; 2–3: 211 – 215.; Legare F, Boivin A, van der Weijden T et al. Patient and public involvement in clinical practice guidelines: a knowledge synthesis of existing programs. Medical Decision Making, 2011; 31: E45 – E74.; Guyatt G, Oxman AD, Akl EA et al. GRADE guidelines: 1. Introduction‐GRADE evidence profiles and summary of findings tables. Journal of Clinical Epidemiology, 2011; 64: 383 – 394.; Brouwers MC, Kho ME, Browman GP et al. AGREE II: advancing guideline development, reporting and evaluation in health care. CMAJ, 2010; 182: E839 – E842.; Shiffman RN, Dixon J, Brandt C et al. The GuideLine Implementability Appraisal (GLIA): development of an instrument to identify obstacles to guideline implementation. BMC Medical Informatics and Decision Making, 2005; 5: 23. doi:10.1186/1472‐6947‐5‐23; Kreis J, Puhan MA, Schunemann HJ, Dickersin K. Consumer involvement in systematic reviews of comparative effectiveness research. Health Expectations, 2012; doi:10.1111/j.1369-7625.2011.00722.x [Epub ahead of print]; van de Bovenkamp HM, Trappenburg MJ. Reconsidering patient participation in guideline development. Health Care Analysis, 2009; 3: 198 – 216.; ACOR.org. Association of Cancer Online Resources, 2012. Available at: http://www.acor.org/pages/faqsTest, accessed 22 May 2013.; NHS. National Institute for Health Research, 2012. Available at: http://www.nihr.ac.uk/Pages/default.aspxTest, accessed 22 May 2013.; lindalliance.org. The James Lind Alliance, 2012. Available at: http://www.lindalliance.orgTest/, accessed 22 May 2013.; thepatientpartnerproject.org. The PatientPartner project, 2012. Available at: http://www.thepatientpartnerproject.orgTest/, accessed 22 May 2013.; Oliver S, Clarke‐Jones L, Rees RW et al. Involving consumers in research and development agenda setting for the NHS: developing n evidence‐based approach. Health Technology Assessment, 2004; 8: 1 – 148.; Cancer Australia and Cancer Voices Australia. National Framework for Consumer Involvement in Cancer Control. Canberra, Australia: Cancer Australia, 2011.; Staley K. Exploring Impact: Public involvement in NHS, Public Health and Social Care Research. Eastleigh, UK: INVOLVE‐National Health Service‐National Institute for Health Research, 2009.; Telford R, Faulkner A. Learning about service user involvement in mental health research. Journal of Mental Health, 2004; 13: 549 – 559.; Marsden J, Bradburn J; Clinical TCAGf; Macmillan CLJ. Patient and clinician collaboration in the design of a national randomized breast cancer trial. Health Expectations, 2004; 1: 6 – 17.; Abma TA, Nierse CJ, Widdershoven GAM. Patients as partners in responsive research: methodological notions for collaborations in mixed research teams. Qualitative Health Research, 2009; 19: 401 – 415.; O'Donnell M, Entwistle V. Consumer involvement in decisions about what health‐related research is funded. Health Policy, 2004; 70: 281 – 290.; patientslikeme. patientslikeme [12/1/2011]. Available at: http://www.patientslikeme.comTest, accessed 22 May 2013.; Boivin A, Currie K, Fervers B et al. Patient and public involvement in clinical guidelines: international experiences and future perspectives. Quality and Safety in Health Care, 2010; 19: 1 – 4.; Abma TA, Broerse JEW. Patient participation as dialogue: setting research agendas. Health Expectations, 2010; 13: 160 – 173.; Ali K, Roffe C, Crome P. What patients want. Stroke, 2006; 37: 865 – 871.; Tong A, Sainsbury P, Carter SM et al. Patients' priorities for health research: focus group study of patients with chronic kidney disease. Nephrology Dialysis Transplantation, 2008; 23: 3206 – 3214.; Shea B, Santesso N, Qualman A et al. Consumer‐driven health care: building partnerships in research. Health Expectations, 2005; 8: 352 – 359.; Greenhalgh T, Robert G, Macfarlane F, Bate P, Kyriakidou O, Peacock R. Storylines of research in diffusion of innovation: a meta‐narrative approach to systematic review. Social Science & Medicine, 2005; 61: 417 – 430.; Andejeski Y, Bisceglio IT, Dickersin K et al. Quantitative impact of including consumers in the scientific review of breast cancer research proposals. Journal of Women's Health & Gender‐Based Medicine, 2002; 11: 379 – 388.; Faulkner A, Thomas P. User‐led research and evidence‐based medicine. The British Journal of Psychiatry, 2002; 180: 1 – 3.; Gooberman‐Hill R, Horwood J, Calnan M. Citizens' juries in planning research priorities: process, engagement and outcome. Health Expectations, 2008; 11: 272 – 281.; Donovan JL, Brindle L, Mills N. Capturing users' experiences of participating in cancer trials. European Journal Cancer Care (Engl), 2002; 11: 210 – 214.; White MA, Verhoef MJ. Toward a patient‐centered approach: incorporating principles of participatory action research into clinical studies. Integrative Cancer Therapies, 2005; 4: 21 – 24.; Brett J, Staniszewska S, Mockford C, Seers K, Herron‐Marx S, Bayliss H. The PIRICOM Study: A Systematic Review of the Conceptualisation, Measurement, Impact and Outcomes of Patients and Public Involvement in Health and Social Care Research. Warwick: Royal College of Nursing, University of Warwick, and UK Clinical Research Collaborative, Studies SoHS, 2010.; Thompson J, Barber R, Ward PR et al. Health researchers' attitudes towards public involvement in health research. Health Expectations, 2009; 12: 209 – 220.; Bogart LM, Uyeda KE. Community‐based participatory research. Health Psychology, 2009; 28: 391 – 393.; Caron‐Flinterman JF, Broerse JEW, Bunders JFG. The experiential knowledge of patients: a new resource for biomedical research? Social Science & Medicine, 2005; 60: 2575 – 2584.; Nierse CJ, Schipper K, van Zadelhoff E, van de Griendt J, Abma TA. Collaboration and co‐ownership in research: dynamics and dialogues between patient research partners and professional researchers in a research team. Health Expectations, 2011; 15: 242 – 254.; Howe A, MacDonald H, Barrett B, Little B. Ensuring public and patient participation in research: a case study in infrastructure development in one UK Research and Development consortium. Primary Health Care Research and Development, 2006; 7: 60 – 67. Epub 31 Oct 2006.; INVOLVE. July 2012 [cited 2012]. http://www.invo.org.ukTest/, accessed 22 May 2013.; Hanley B, Truesdale A, King A, Elbourne D, Chalmers I. Involving consumers in designing, conducting, and interpreting randomised controlled trials: questionnaire survey. BMJ, 2001; 322: 519 – 523.; Boote J, Telford R, Cooper C. Consumer involvement in health research: a review and research agenda. Health Policy, 2002; 61: 213 – 236.; McKevitt C, Fudge N, Wolfe C. What is involvement in research and what does it achieve? Reflections on a pilot study of the personal costs of stroke. Health Expectations, 2010; 13: 86 – 94.; Hewlett S, de Wit M, Richards P et al. Patients and professionals as research partners: challenges, practicalities, and benefits. Arthritis Care & Research, 2006; 55: 676 – 680.; Whitstock MT. Seeking evidence from medical research consumers as part of the medical research process could improve the uptake of research evidence. Journal of Evaluation in Clinical Practice, 2003; 9: 213 – 224.; Wright D, Foster C, Amir Z, Elliott J, Wilson R. Critical appraisal guidelines for assessing the quality and impact of user involvement in research. Health Expectations, 2010; 13: 359 – 368.; Dewar BJ. Beyond tokenistic involvement of older people in research – a framework for future development and understanding. Journal of Clinical Nursing, 2005; 14: 48 – 53.; Hubbard G, Kidd L, Donaghy E, McDonald C, Kearney N. A review of literature about involving people affected by cancer in research, policy and planning and practice. Patient Education and Counseling, 2007; 65: 21 – 33.; Faridi Z, Grunbaum JA, Sajor Grey B, Franks A, Simoes E. Community‐based participatory research: necessary next steps. Preventing Chronic Disease, 2007; 4: A70.; Bennetts W, Cross W, Bloomer M. Understanding consumer participation in mental health: issues of power and change. International Journal of Mental Health Nursing, 2011; 20: 155 – 164.; Chambers R, Brien LM, Linnell S, Sharp S. Why don't health researchers report consumer involvement? Quality in Primary Care, 2004; 12: 151 – 157.; Shared Decision Making National Resource Center. Patient Advisory Group: Mayo Clinic; 2012 [08/02/2012]. Available from: http://shareddecisions.mayoclinic.org/stakeholders/diabetes-advisory-groupTest/, accessed 22 May 2013.; Lindenmeyer A, Hearnshaw H, Sturt J, Ormerod R, Aitchison G. Assessment of the benefits of user involvement in health research from the Warwick Diabetes Care Research User Group: a qualitative case study. Health Expectations, 2007; 10: 268 – 277.; Morin SF, Morfit S, Maiorana A et al. Building community partnerships: case studies of Community Advisory Boards at research sites in Peru, Zimbabwe, and Thailand. Clinical Trials, 2008; 2: 147 – 156.; May M, Law J. CBPR as community health intervention: institutionalizing CBPR within community based organizations. Progress in Community Health Partnerships, 2008; 2: 145 – 155.; Redwood D, Lanier A, Kemberling M, Klejka J, Sylvester I, Lundgren K. Community‐based participatory research in a large cohort study of chronic diseases among Alaska native adults. Progress in Community Health Partnerships, 2010; 4: 325 – 330.; Evans S, Corley M, Corrie M, Costley K, Donald C. Evaluating services in partnership with older people: exploring the role of ‘community researchers’. Working with Older People: Community Care Policy & Practice, 2011; 15: 26 – 33.; Jinks C, Ong BN, Neill TJO. The Keele community knee pain forum: action research to engage with stakeholders about the prevention of knee pain and disability. BMC Musculoskeletal Disorders, 2009; 10: 85.; Swartz LJ, Callahan KA, Butz AM et al. Methods and issues in conducting a community‐based environmental randomized trial. Environmental Research, 2004; 95: 156 – 165.; Stewart RJ, Caird J, Oliver K, Oliver S. Patients' and clinicians' research priorities. Health Expectations, 2011; 4: 439 – 448.; Stewart MK, Colley D, Huff A et al. Participatory development and implementation of a community research workshop: experiences from a community‐based participatory research partnership. Progress in Community Health Partnerships, 2009; 3: 165 – 178.; Crowe JL, Keifer MC, Salazar MK. Striving to provide opportunities for farm worker community participation in research. Journal of Agricultural Safety and Health, 2008; 14: 205 – 219.; Decker M, Hemmerling A, Lankoande F. Women front and center: the opportunities of involving women in participatory health research worldwide. Journal of Women's Health (15409996), 2010; 19: 2109 – 2114.; Doyle M, Timonen V. Lessons from a community‐based participatory research project: older people's and researcher's reflections. Research on Aging, 2010; 32: 244 – 263.; Fawcett SB, Suarez‐Balcazar Y, Balcazar FE et al. Conducting intervention research—the design and development process. In: Rothman J, Thomas EJ, (eds) Intervention research: Design and development for human service. New York: Haworth Pr, 1994.; Morrow E, Ross F, Grocott P, Bennett J. A model and measure for quality service user involvement in health research. International Journal of Consumer Studies, 2010; 34: 532 – 539.; Turner M, Beresford P. User Controlled Research: Its Meanings and Potential. Final Report 2005 Eastleigh, Hants, UK: Shaping Our Lives and the Centre for Citizen Participation, Brunel University, 2005 [cited 2013 April 1]. Available at: http://www.invo.org.uk/wp-content/uploads/2011/12/UserConRpt081205.pdfTest, accessed 22 May 2013.; Oscos‐Sanchez MA, Lesser J, Kelly P. Cultural competence: a critical facilitator of success in community‐based participatory action research. Issues in Mental Health Nursing, 2008; 2: 197 – 200.; Ahmed SM, Palermo AGS. Community engagement in research: frameworks for education and peer review. American Journal of Public Health, 2010; 8: 1380 – 1387.; Karmaliani R, McFarlane J, Asad N et al. Applying community‐based participatory research methods to improve maternal and child health in Karachi, Pakistan. Nursing Outlook, 2009; 57: 204 – 209.; Harper GW, Salina DD. Building collaborative partnerships to improve community‐based HIV prevention research: the University‐CBO Collaborative partnership (UCCP) model. Journal of Prevention and Intervention in the Community, 2000; 1: 1 – 20.; Danley KE, Ellison ML. A Handbook for Participatory Action Research. Boston: Center for Psychiatric Rehabilitation Sargent College of Health and Rehabilitation Sciences Boston University, 2005.; Becker AB, Israel BA, Allen AJ III. Instructions for conducting a force field analysis. In: Israel BA, Eng E, Schulz AJ, Parker EA, Satcher D. (eds). Methods in Community‐Based Participatory Research for Health. San Francisco: Jossey‐Bass, 2005.; Barnes M, Bennett G. Frail bodies, courageous voices: older people influencing community care. Health & Social Care in the Community, 1998; 6: 102 – 111.; Oliver SR, Rees RW, Clarke‐Jones L et al. A multidimensional conceptual framework for analysing public involvement in health services research. Health Expectations, 2008; 1: 72 – 84.; Hall V. Reflections on engaging in participatory research. Evidence Based Midwifery, 2009; 7: 40 – 45.; Happell B, Roper C. Consumer participation in mental health research: articulating a model to guide practice. Australasian Psychiatry, 2007; 3: 237 – 241.; Gracia J, Blasco JA, Andradas E. A strategy for patient involvement in clinical practice guidelines: methodological approaches. BMJ Quality & Safety, 2011; 20: 779 – 784.; Israel BA, Krieger J, Vlahov D et al. Challenges and facilitating factors in sustaining community‐based participatory research partnerships: lessons learned from the Detroit, New York City and Seattle Urban Research Centers. Journal of Urban Health, 2006; 83: 1022 – 1040.; Saunders C, Crossing S, Girgis A, Butow P, Penman A. Operationalising a model framework for consumer and community participation in health and medical research. Aust New Zealand Health Policy, 2007; 4: 13.; National Health and Medical Research Council. A Model Framework for Consumer and Community Participation in Health and Medical Research. Canberra: Australian Government, 2005.; Wicks P, Vaughan TE, Massagli MP, Heywood J. Accelerated clinical discovery using self‐reported patient data collected online and a patient‐matching algorithm. Nature Biotechnology, 2011; 29: 411 – 414.; Tweet MS, Gulati R, Aase LA, Hayes SN. Spontaneous coronary artery dissection: a disease‐specific, social networking community‐initiated study. Mayo Clinic Proceedings, 2011; 86: 845 – 850.; Chenoweth L, Kilstoff K. Facilitating positive changes in community dementia management through participatory action research. International Journal of Nursing Practice, 1998; 3: 175 – 188.; Staniszewska S, Jones N, Newburn M, Marshall S. User involvement in the development of a research bid: Barriers, enablers and impacts. Health Expectations, 2007; 10: 173 – 183.; Lippman SA, Donini A, Diaz J, Chinaglia M, Reingold A, Kerrigan D. Social‐environmental factors and protective sexual behavior among sex workers: the Encontros intervention in Brazil. American Journal of Public Health, 2010; 100 ( Suppl. 1 ): S216 – S223.; Edwards V, Wyatt K, Logan S, Britten N. Consulting parents about the design of a randomized controlled trial of osteopathy for children with cerebral palsy. Health Expectations, 2011; 14: 429 – 438.; Staniszewska S, Brett J, Mockford C, Barber R. The GRIPP checklist: strengthening the quality of patient and public involvement reporting in research. International Journal of Technology Assessment; Staley K, Hanley B. Scoping research priority setting (and the presence of PPI in priority setting) with UK clinical research organisations and funders, 2008. Report. http://www.lindalliance.org/pdfs/JLA%20Internal%20Reports/TwoCan%20JLA%20report%20March%2009_with%20appendices.pdfTest, accessed 22 May 2013.; Lovato LC, Hill K, Hertert S, Hunninghake DB, Probstfield JL. Recruitment for controlled clinical trials: literature summary and annotated bibliography. Controlled Clinical Trials, 1997; 18: 328 – 352.; Pringle M, Churchill R. Randomised controlled trials in general practice. BMJ, 1995; 311: 1382 – 1383.; Tognoni G, Alli C, Avanzini F et al. Randomised clinical trials in general practice: lessons from a failure. BMJ, 1991; 303: 969 – 971.; Hussain‐Gambles M, Leese B, Atkin K, Brown J, Mason S, Tovey P. Involving South Asian patients in clinical trials. Health Technology Assessment, 2004; 8: iii 1 – 109.; Snowdon C, Garcia J, Elbourne D. Making sense of randomization; responses of parents of critically ill babies to random allocation of treatment in a clinical trial. Social Science & Medicine, 1997; 45: 1337 – 1355.; Snowdon C, Elbourne D, Garcia J. ‘It was a snap decision': parental and professional perspectives on the speed of decisions about participation in perinatal randomised controlled trials. Social Science & Medicine, 2006; 9: 2279 – 2290.; Kelson MC. Consumer collaboration, patient‐defined outcomes and the preparation of Cochrane Reviews. Health Expectations, 1999; 2: 129 – 135.; Whitley R, Goldman HH. Letters: client involvement in services research. Psychiatric Services, 2005; 56: 1315.