المؤلفون: Shieh, Perry B, Kuntz, Nancy L, Dowling, James J, Müller-Felber, Wolfgang, Bönnemann, Carsten G, Seferian, Andreea M, Servais, Laurent, Smith, Barbara K, Muntoni, Francesco, Blaschek, Astrid, Foley, A Reghan, Saade, Dimah N, Neuhaus, Sarah, Alfano, Lindsay N, Beggs, Alan H, Buj-Bello, Ana, Childers, Martin K, Duong, Tina, Graham, Robert J, Jain, Minal, Coats, Julie, MacBean, Vicky, James, Emma S, Lee, Jun, Mavilio, Fulvio, Miller, Weston, Varfaj, Fatbardha, Murtagh, Michael, Han, Cong, Noursalehi, Mojtaba, Lawlor, Michael W, Prasad, Suyash, Rico, Salvador

المصدر: The Lancet Neurology , 22 (12) pp. 1125-1139. (2023)

مصطلحات موضوعية: Male, Child, Humans, Infant, Preschool, France, Genetic Therapy, Myopathies, Structural, Congenital, Sepsis, Germany, Treatment Outcome

وصف الملف: text

العلاقة: https://discovery.ucl.ac.uk/id/eprint/10182401/1/PIIS1474442223003137.pdfTest; https://discovery.ucl.ac.uk/id/eprint/10182401Test/

الإتاحة: https://discovery.ucl.ac.uk/id/eprint/10182401/1/PIIS1474442223003137.pdfTest
https://discovery.ucl.ac.uk/id/eprint/10182401Test/

المؤلفون: Dowling, James J, Müller-Felber, Wolfgang, Smith, Barbara K, Bönnemann, Carsten G, Kuntz, Nancy L, Muntoni, Francesco, Servais, Laurent, Alfano, Lindsay N, Beggs, Alan H, Bilder, Deborah A, Blaschek, Astrid, Duong, Tina, Graham, Robert J, Jain, Minal, Lawlor, Michael W, Lee, Jun, Coats, Julie, Lilien, Charlotte, Lowes, Linda P, MacBean, Victoria, Neuhaus, Sarah, Noursalehi, Mojtaba, Pitts, Teresa, Finlay, Caroline, Christensen, Sarah, Rafferty, Gerrard, Seferian, Andreea M, Tsuchiya, Etsuko, James, Emma S, Miller, Weston, Sepulveda, Bryan, Vila, Maria Candida, Prasad, Suyash, Rico, Salvador, Shieh, Perry B, INCEPTUS investigators

المصدر: Journal of Neuromuscular Diseases, 9 (4), 503-516 (2022)

مصطلحات موضوعية: X-linked myotubular myopathy, centronuclear myopathy, mechanical, motor disorders, neuromuscular diseases, respiratory failure, ventilators, Child, Preschool, Genetic Therapy, Humans, Longitudinal Studies, Male, Prospective Studies, Myopathies, Structural, Congenital/genetics, Congenital/therapy, Quality of Life, Congenital, Neurology, Neurology (clinical), Human health sciences, Pediatrics, Sciences de la santé humaine, Neurologie, Pédiatrie

العلاقة: https://content.iospress.com/download?id=10.3233/JND-210781Test; urn:issn:2214-3599; urn:issn:2214-3602; https://orbi.uliege.be/handle/2268/295915Test; info:hdl:2268/295915; https://orbi.uliege.be/bitstream/2268/295915/1/jnd-9-jnd210781.pdfTest; scopus-id:2-s2.0-85133659377; info:pmid:35694931

الإتاحة: https://doi.org/10.3233/JND-210781Test
https://orbi.uliege.be/handle/2268/295915Test
https://orbi.uliege.be/bitstream/2268/295915/1/jnd-9-jnd210781.pdfTest

المؤلفون: Edwards, Jeffrey D, Houtrow, Amy J, Vasilevskis, Eduard E, Rehm, Roberta S, Markovitz, Barry P, Graham, Robert J, Dudley, R Adams

المصدر: Critical Care Medicine. 40(7)

مصطلحات موضوعية: Paediatrics, Biomedical and Clinical Sciences, Health Sciences, Patient Safety, Pediatric, Clinical Research, Management of diseases and conditions, 7.3 Management and decision making, Good Health and Well Being, Adolescent, Child, Child, Preschool, Chronic Disease, Cohort Studies, Databases, Factual, Female, Hospital Mortality, Humans, Infant, Intensive Care Units, Pediatric, Length of Stay, Logistic Models, Male, Odds Ratio, Patient Admission, Prevalence, Retrospective Studies, Risk Adjustment, United States, child, chronic disease, intensive care units, length of stay, mortality, pediatric, risk adjustment, Clinical Sciences, Nursing, Public Health and Health Services, Emergency & Critical Care Medicine, Clinical sciences

وصف الملف: application/pdf

الوصول الحر: https://escholarship.org/uc/item/95n1d5dmTest

المؤلفون: Pérez-Losada, Marcos, Graham, Robert J, Coquillette, Madeline, Jafarey, Amenah, Castro-Nallar, Eduardo, Aira, Manuel, Hoptay, Claire, Freishtat, Robert J, Mansbach, Jonathan M

المصدر: Epidemiology Faculty Publications

مصطلحات موضوعية: Acute Disease, Adolescent, Bacteria, Child, Preschool, Cohort Studies, Female, Haemophilus influenzae, High-Throughput Nucleotide Sequencing, Humans, Male, Microbiota, Moraxella, RNA, Ribosomal, 16S, Respiratory Tract Infections, Trachea, Tracheostomy, Young Adult, Biostatistics, Epidemiology

العلاقة: https://hsrc.himmelfarb.gwu.edu/sphhs_epibiostats_facpubs/614Test

الإتاحة: https://hsrc.himmelfarb.gwu.edu/sphhs_epibiostats_facpubs/614Test

المؤلفون: Edwards, Jeffrey D, Houtrow, Amy J, Vasilevskis, Eduard E, Rehm, Roberta S, Markovitz, Barry P, Graham, Robert J, Dudley, R Adams

المصدر: Edwards, JD; Houtrow, AJ; Vasilevskis, EE; Rehm, RS; Markovitz, BP; Graham, RJ; et al.(2012). Chronic conditions among children admitted to U.S. pediatric intensive care units: Their prevalence and impact on risk for mortality and prolonged length of stay. Critical Care Medicine, 40(7), 2196-2203. doi: 10.1097/CCM.0b013e31824e68cf. UCSF: Retrieved from: http://www.escholarship.org/uc/item/95n1d5dmTest
Critical care medicine, vol 40, iss 7

مصطلحات موضوعية: Male, Adolescent, intensive care units, Clinical Sciences, Nursing, Cohort Studies, 7.3 Management and decision making, Databases, Patient Admission, risk adjustment, length of stay, Clinical Research, Prevalence, Odds Ratio, Humans, Hospital Mortality, Child, Preschool, Factual, Retrospective Studies, Pediatric, Infant, mortality, Emergency & Critical Care Medicine, United States, Logistic Models, Chronic Disease, Public Health and Health Services, Female, Patient Safety, Management of diseases and conditions

وصف الملف: application/pdf

الوصول الحر: https://explore.openaire.eu/search/publication?articleId=dedup_wf_001::7c3da6c21001f9adc5a81aa8ef6dae84Test
http://www.escholarship.org/uc/item/95n1d5dmTest