المؤلفون: Dowling, James J, Müller-Felber, Wolfgang, Smith, Barbara K, Bönnemann, Carsten G, Kuntz, Nancy L, Muntoni, Francesco, Servais, Laurent, Alfano, Lindsay N, Beggs, Alan H, Bilder, Deborah A, Blaschek, Astrid, Duong, Tina, Graham, Robert J, Jain, Minal, Lawlor, Michael W, Lee, Jun, Coats, Julie, Lilien, Charlotte, Lowes, Linda P, MacBean, Victoria, Neuhaus, Sarah, Noursalehi, Mojtaba, Pitts, Teresa, Finlay, Caroline, Christensen, Sarah, Rafferty, Gerrard, Seferian, Andreea M, Tsuchiya, Etsuko, James, Emma S, Miller, Weston, Sepulveda, Bryan, Vila, Maria Candida, Prasad, Suyash, Rico, Salvador, Shieh, Perry B, INCEPTUS investigators

المصدر: Journal of Neuromuscular Diseases, 9 (4), 503-516 (2022)

مصطلحات موضوعية: X-linked myotubular myopathy, centronuclear myopathy, mechanical, motor disorders, neuromuscular diseases, respiratory failure, ventilators, Child, Preschool, Genetic Therapy, Humans, Longitudinal Studies, Male, Prospective Studies, Myopathies, Structural, Congenital/genetics, Congenital/therapy, Quality of Life, Congenital, Neurology, Neurology (clinical), Human health sciences, Pediatrics, Sciences de la santé humaine, Neurologie, Pédiatrie

العلاقة: https://content.iospress.com/download?id=10.3233/JND-210781Test; urn:issn:2214-3599; urn:issn:2214-3602; https://orbi.uliege.be/handle/2268/295915Test; info:hdl:2268/295915; https://orbi.uliege.be/bitstream/2268/295915/1/jnd-9-jnd210781.pdfTest; scopus-id:2-s2.0-85133659377; info:pmid:35694931

الإتاحة: https://doi.org/10.3233/JND-210781Test
https://orbi.uliege.be/handle/2268/295915Test
https://orbi.uliege.be/bitstream/2268/295915/1/jnd-9-jnd210781.pdfTest

المؤلفون: Sobotka, Sarah A., Dholakia, Ayesha, Agrawal, Rishi K., Berry, Jay G., Brenner, Maria, Graham, Robert J., Goodman, Denise M.

المصدر: Annals of the American Thoracic Society; Nov2020, Vol. 17 Issue 11, p1424-1430, 7p

مصطلحات موضوعية: ARTIFICIAL respiration, TRACHEOTOMY, PATIENTS, SNOWBALL sampling, CAREGIVER education

المؤلفون: Rodday, Angie Mae, Graham, Robert J., Weidner, Ruth Ann, Rothrock, Nan E., Dewalt, Darren A., Parsons, Susan K.

مصطلحات موضوعية: Pediatrics, Physical functioning, Health-related quality of life, PROMIS, Muscular disorders, Neuromuscular disorders

وصف الملف: application/pdf

العلاقة: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC5934938/pdfTest/; Journal of Patient-Reported Outcomes; Rodday, Angie Mae, Robert J. Graham, Ruth Ann Weidner, Nan E. Rothrock, Darren A. Dewalt, and Susan K. Parsons. 2017. “Leveraging pediatric PROMIS item banks to assess physical functioning in children at risk for severe functional loss.” Journal of Patient-Reported Outcomes 1 (1): 10. doi:10.1186/s41687-017-0011-8. http://dx.doi.org/10.1186/s41687-017-0011-8Test.; http://nrs.harvard.edu/urn-3:HUL.InstRepos:37160037Test

الإتاحة: https://doi.org/10.1186/s41687-017-0011-8Test
http://nrs.harvard.edu/urn-3:HUL.InstRepos:37160037Test

المؤلفون: Rodday, Angie Mae, Graham, Robert J., Weidner, Ruth Ann, Terrin, Norma, Leslie, Laurel K., Parsons, Susan K.

المصدر: Journal of Pediatric Healthcare; Nov2017, Vol. 31 Issue 6, p654-662, 9p

المؤلفون: Graham, Robert J., Rodday, Angie Mae, Weidner, Ruth Ann, Parsons, Susan K.

المصدر: Journal of Pediatrics; Aug2016, Vol. 175, p40-46, 7p

المؤلفون: Haley, Stephen M.¹ smhaley@bu.edu, Graham, Robert J.², Dumas, Helene M.³

المصدر: Journal of Intensive Care Medicine. Jul/Aug2004, Vol. 19 Issue 4, p205-219. 15p.

مصطلحات موضوعية: *HEAD injuries, *CHILDREN'S injuries, *PEDIATRIC intensive care, *CRITICAL care medicine, *PEDIATRIC emergencies, *HOSPITAL care of children

المؤلفون: Moynihan, Katie^1,2,3 katie.moynihan@childrens.harvard.edu, França, Urbano L.^4,5, Casavant, David W.^4,5, Graham, Robert J.^4,5, McManus, Michael L.^4,5

المصدر: Pediatrics. Apr2023, Vol. 151 Issue 4, p1-12. 12p.

مصطلحات موضوعية: *TRACHEOTOMY, *HEALTH services accessibility, *SURGICAL anastomosis, *CONFIDENCE intervals, *CHILDREN'S hospitals, *CHRONIC diseases in children, *PEDIATRICS, *PATIENTS, *MEDICAL care use, *HOSPITAL admission & discharge, *DESCRIPTIVE statistics, *EMERGENCY medical services, *RESEARCH funding, *GASTROSTOMY, *MEDICAL appointments

مصطلحات جغرافية: UNITED States

المؤلفون: Edwards, Jeffrey D.¹ (AUTHOR), Davidson, Emily J.² (AUTHOR), Houtrow, Amy J.³ (AUTHOR), Graham, Robert J.⁴ (AUTHOR)

المصدر: American Journal of Physical Medicine & Rehabilitation. Sep2010, Vol. 89 Issue 9, p765-771. 7p.

مصطلحات موضوعية: *ANALYSIS of variance, *ATTITUDE testing, *COMPUTER software, *FISHER exact test, *HOSPITAL medical staff, *PEDIATRICS, *PHYSICIAN-patient relations, *PHYSICIANS, *QUESTIONNAIRES, *SCALE analysis (Psychology), *STATISTICS, *SURVEYS, *DATA analysis, *CHILDREN with disabilities, *MULTIPLE regression analysis, *CROSS-sectional method, *SEVERITY of illness index, *EDUCATION