المؤلفون: Sruthi P. Thomas, Christina K. Hardesty, Kristin A. Buxton, Andrew B. Collins, Jessica Pruente, Kelly L.D. Pham, Jordan Sheriko, M. Elise McClanahan, Didem Inanoglu, Rajashree Srinivasan, Laura Ridnour, Robert Cooper, Seema Khurana, the Pediatric ITB Network

المصدر: Journal of Pediatric Rehabilitation Medicine. 13:379-384

مصطلحات موضوعية: Baclofen, 030506 rehabilitation, medicine.medical_specialty, Coronavirus disease 2019 (COVID-19), Severe acute respiratory syndrome coronavirus 2 (SARS-CoV-2), Physical Therapy, Sports Therapy and Rehabilitation, Comorbidity, 03 medical and health sciences, 0302 clinical medicine, Health care, Pandemic, medicine, Humans, Child, Intensive care medicine, Pandemics, Injections, Spinal, Muscle Relaxants, Central, SARS-CoV-2, business.industry, Rehabilitation, COVID-19, medicine.disease, Intrathecal baclofen, Treatment Outcome, Muscle Spasticity, Pediatrics, Perinatology and Child Health, Pediatric rehabilitation medicine, 0305 other medical science, business, 030217 neurology & neurosurgery, Healthcare system

الوصول الحر: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::01ae711fe2e497909f24e3c7e4e8338cTest
https://doi.org/10.3233/prm-200755Test

المؤلفون: Agneta Anderzén-Carlsson, Guro L. Andersen, Frank J. Symons, Randi Dovland Andersen, Olav Aga Kildal, Chantel C. Burkitt, Sindre K. Bruflot, Ira Jeglinsky-Kankainen, Reidun Jahnsen, Lars Wallin, Lara M. Genik, Jordan Sheriko, Ann I. Alriksson-Schmidt, Kjersti Ramstad, Christine T. Chambers

مصطلحات موضوعية: medicine.medical_specialty, Research ethics, cerebral palsy, Neurologi, business.industry, Stakeholder engagement, Pediatrik, Special Interest Group, medicine.disease, Mental health, Pediatrics, Cerebral palsy, Quality of life (healthcare), disability, Neurology, Family medicine, medicine, Social media, pain, survey, business, Everyday life

وصف الملف: application/pdf

الوصول الحر: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::73bad2b6580ffa8ff3e02e5032014d48Test
http://urn.kb.se/resolve?urn=urn:nbn:se:du-41444Test

المؤلفون: Laura McAdam, James J. Dowling, Monique Taillon, Anna McCormick, Said M’dahoma, Gerald Pfeffer, Cam-Tu Emilie Nguyen, Colleen O'Connell, Craig Campbell, Scott Worley, Hernan Gonorazky, Alex MacKenzie, Aaron Izenberg, Jiri Vajsar, Peter Dobrowolski, Emily Butler, Jean K. Mah, Simona Hasal, Alier Marerro, Hugh J. McMillan, Garth Smith, Erin K. O'Ferrall, Hanns Lochmüller, Michelle M. Mezei, Christen Shoesmith, Nicolas Dupré, Victoria Hodgkinson, Nicolas Chrestian, Louise R. Simard, Meghan Crone, Cecile Phan, Jodi Warman Chardon, Xavier Rodrigue, Jordan Sheriko, Michel Melanson, Kathy Selby, Angela Genge, Edward Leung, Maryam Oskoui, Kristine M. Chapman, Stephanie Plamondon, Kerri Schellenberg, Rami Massie, Bernard Brais, Joshua J. Lounsberry, Susan Dojeiji, Sean W. Taylor, Wendy Johnston, Chantal Poulin, Lawrence Korngut

المصدر: Paediatrics Publications
The Canadian Journal of Neurological Sciences. Le Journal Canadien Des Sciences Neurologiques

مصطلحات موضوعية: Registry, Canada, medicine.medical_specialty, Neuromuscular disease, Population, Pediatrics, Muscular Atrophy, Spinal, Rare Diseases, Humans, Medicine, Prospective Studies, Registries, Child, Adverse effect, education, Real-world evidence, education.field_of_study, business.industry, General Medicine, Spinal muscular atrophy, medicine.disease, SMA, Clinical trial, Neurology, Family medicine, Original Article, Observational study, Neurology (clinical), business, Rare disease

وصف الملف: application/pdf

الوصول الحر: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::dcd6223874661f3ecd05a30e16b4ebadTest
https://doi.org/10.1017/cjn.2020.111Test

المؤلفون: Tim Benstead, Hernan Gonorazky, C. Krieger, Victoria Hodgkinson, Said M’dahoma, E. Leung, Aaron Izenberg, Angela Russell, Gerald Pfeffer, Kristine M. Chapman, A. Marrero, James J. Dowling, H. Briemberg, Monique Taillon, Lorne Zinman, Nicolas Chrestian, Angela Genge, Nicolas Dupré, Simona Hasal, Agessandro Abrahao, G. Matte, S. Dojeiji, Shannon L. Venance, C. Campbell, S. Botez, Hans D. Katzberg, R.G. Smith, Maryam Oskoui, Erin K. O'Ferrall, Alex MacKenzie, I. Grant, G. Linassi, Colleen O'Connell, P.R. Bourque, J. K. Mah, Xavier Rodrigue, Scott Worley, Michel Melanson, S. Taylor, Anna McCormick, Kerri Schellenberg, Laura McAdam, Christen Shoesmith, Stephanie Plamondon, Joshua J. Lounsberry, C. Phan, Kathy Selby, Rami Massie, M. Crone, H. McMillan, Bernard Brais, G. Jewett, Peter Dobrowolski, Jordan Sheriko, Wendy Johnston, Jodi Warman-Chardon, Lawrence Korngut, Neil R. Cashman, S. Kalra, Hanns Lochmüller, Michelle M. Mezei, C. T. Nguyen, Chantal Poulin

المصدر: Paediatrics Publications
Journal of Neuromuscular Diseases

مصطلحات موضوعية: 0301 basic medicine, Research Report, Adult, Male, Pediatrics, medicine.medical_specialty, Canada, Registry, Neuromuscular disease, Adolescent, Duchenne muscular dystrophy, Myotonic dystrophy, Muscular Atrophy, Spinal, 03 medical and health sciences, Young Adult, 0302 clinical medicine, medicine, Humans, Myotonic Dystrophy, Registries, Amyotrophic lateral sclerosis, Child, real-world evidence, Aged, Aged, 80 and over, business.industry, Amyotrophic Lateral Sclerosis, Infant, Spinal muscular atrophy, Middle Aged, medicine.disease, Natural history, Muscular Dystrophy, Duchenne, 030104 developmental biology, Clinical research, Neurology, Muscular Dystrophies, Limb-Girdle, natural history, Child, Preschool, Female, Neurology (clinical), business, 030217 neurology & neurosurgery, Limb-girdle muscular dystrophy

وصف الملف: application/pdf

الوصول الحر: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::5225e12fc979e2aa3b4ca1e72fb59591Test
https://ir.lib.uwo.ca/context/paedpub/article/3596/viewcontent/jnd_8_jnd200538.pdfTest