دورية أكاديمية

Genomic Testing for Human Health and Disease Across the Life Cycle: Applications and Ethical, Legal, and Social Challenges

التفاصيل البيبلوغرافية
العنوان: Genomic Testing for Human Health and Disease Across the Life Cycle: Applications and Ethical, Legal, and Social Challenges
المؤلفون: Gemma A. Bilkey, Belinda L. Burns, Emily P. Coles, Faye L. Bowman, John P. Beilby, Nicholas S. Pachter, Gareth Baynam, Hugh J. S. Dawkins, Kristen J. Nowak, Tarun S. Weeramanthri
المصدر: Frontiers in Public Health, Vol 7 (2019)
بيانات النشر: Frontiers Media S.A., 2019.
سنة النشر: 2019
المجموعة: LCC:Public aspects of medicine
مصطلحات موضوعية: genomics, public health, healthcare, genomic testing, molecular diagnostics, genetic disease, Public aspects of medicine, RA1-1270
الوصف: The expanding use of genomic technologies encompasses all phases of life, from the embryo to the elderly, and even the posthumous phase. In this paper, we present the spectrum of genomic healthcare applications, and describe their scope and challenges at different stages of the life cycle. The integration of genomic technology into healthcare presents unique ethical issues that challenge traditional aspects of healthcare delivery. These challenges include the different definitions of utility as applied to genomic information; the particular characteristics of genetic data that influence how it might be protected, used and shared; and the difficulties applying existing models of informed consent, and how new consent models might be needed.
نوع الوثيقة: article
وصف الملف: electronic resource
اللغة: English
تدمد: 2296-2565
العلاقة: https://www.frontiersin.org/article/10.3389/fpubh.2019.00040/fullTest; https://doaj.org/toc/2296-2565Test
DOI: 10.3389/fpubh.2019.00040
الوصول الحر: https://doaj.org/article/8bd83fcc61634db1a444ae3304f3f89cTest
رقم الانضمام: edsdoj.8bd83fcc61634db1a444ae3304f3f89c
قاعدة البيانات: Directory of Open Access Journals
الوصف
تدمد:22962565
DOI:10.3389/fpubh.2019.00040